Jenny Apple

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I was thinking that I find it very hard to watch a dying and suffering person on youtube. I cannot watch some of Jenny's videos because of this and could not watch Joe Platter's last few videos at all. Too much suffering and it breaks my heart. I could barely watch Tiffany's initial after surgery vlog. On one hand, yes, this is the reality of cancer but on the other hand, do we need to see it and what purpose does it serve? Is it helpful to the dying and the suffering to be seen like this?
Great points, l fail to see the purpose but l can appreciate if someone is in the same situation with the same diagnosis/prognosis that it might be helpful to them knowing what cancer "looks like". I truly cannot see that it's helpful to the person suffering being filmed dying 😪 and would the family in Jenny's case her young children want to see those videos in the future wouldn't they want to remember their Mum as being healthy and happy.
 
Great points, l fail to see the purpose but l can appreciate if someone is in the same situation with the same diagnosis/prognosis that it might be helpful to them knowing what cancer "looks like". I truly cannot see that it's helpful to the person suffering being filmed dying 😪 and would the family in Jenny's case her young children want to see those videos in the future wouldn't they want to remember their Mum as being healthy and happy.
Exactly what I think. I really wouldn't want my children to see me or remember me like that.
 
At this point Jenny edits all the videos so she is very aware of what is being shown. As she progresses Kyle will have to take on that editing. I agree that it would be best if just did more of a message type video with her status but no video.

Since the sadder the thumbnail the higher the views and revenue I doubt if they will go to not actually showing Jenny any time soon.
 
I am drawn to stories in whatever format about overcoming or living joyfully with adversity. The cancer vlogs pull me in. However, I find it difficult to watch the vlogs when a vlogger’s end is near. Since, I am so invested in the person’s journey I am drawn to watch, but wish there were only written updates not videos. It is each vloggers personal choice on what they want to doz. I do believe when they are healthier and start the vlogs it is for mostly educational purposes and they don’t think about how difficult it will be to continue should their health become grave.
Yes l think they initially start vlogging to spread awareness and document the journey. Unfortunately those $$ start rolling in and whilst they may not have planned to continue until their last day's it becomes a contributing factor to continue. I have an issue with consent, neither Jenny nor Sarah are able to legally make decisions for themselves at this point (medications, disease progression, cognitive impairment from chemo etc) maybe they have discussed this with family earlier in the journey l don't know, but when they started the vlogging they never expected to be dying they truly hoped for the treatment to cure them. It's up to Kyle, Josh or nominated NOK to consider these things when filming and uploading these painful and intimate moments. A written brief update would be more appropriate at this point IMO.
 
Some great discussion on this thread. What I do feel is 90% of you have a heart indeed.
I too hope that those 2 children have greater memories of Jenny when she was well, but sadly they are likely seeing mum in pain alot right now :(
I hope they aren't needing the income and its why he films Jenny high and in pain. When Jenny does pass away he won't bare to see those videos.
 
Sarah actually worked up until the trip to NIH. Josh seems to think her fuzziness is more just the aphasia but her thought processes are still intact. She has been on high doses of pain meds for quite awhile.

Jenny seems to loopy from meds but Saydee, who is so very well informed, says her disease progression is also severely affecting her.

Let's hope Josh and Kyle take Sarah's advice and are kind and make good choices.
 
Some great discussion on this thread. What I do feel is 90% of you have a heart indeed.
I too hope that those 2 children have greater memories of Jenny when she was well, but sadly they are likely seeing mum in pain alot right now :(
I hope they aren't needing the income and its why he films Jenny high and in pain. When Jenny does pass away he won't bare to see those videos.
I hope they never see the light of day again. I don't know how Youtube works, can you take them down?
 
I just hope that Jenny doesn’t feel any external or self-imposed pressure to keep producing videos to maintain a steady stream of income. That would be heartbreaking and quite pitiful.

Tiredness, stress and anxiety are all known to increase pain levels. She must be so exhausted at this point - in fact she is always saying how tired she is - it would be much better for her to conserve what energy she has. She really ought to be resting when she can and if she has bursts of energy then she can enjoy time with the children. If she chooses what to do with her limited energy wisely she and her family will benefit with better quality time together.

She needs to prioritise what she uses her energy for.
 
I did check and they could make another trip to Disney with Jenny in a wheelchair and 02 . She could even go on most of tge usual rides with her portable oxygen.

Based on her previous experiences I think she might get hit with her usual horrible side effects as soon as she starts treatment again so if she wants to make anymore happy Disney memories with the kids she should try to do it now and leave the damn camera at home.
 
Yes l think they initially start vlogging to spread awareness and document the journey. Unfortunately those $$ start rolling in and whilst they may not have planned to continue until their last day's it becomes a contributing factor to continue. I have an issue with consent, neither Jenny nor Sarah are able to legally make decisions for themselves at this point (medications, disease progression, cognitive impairment from chemo etc) maybe they have discussed this with family earlier in the journey l don't know, but when they started the vlogging they never expected to be dying they truly hoped for the treatment to cure them. It's up to Kyle, Josh or nominated NOK to consider these things when filming and uploading these painful and intimate moments. A written brief update would be more appropriate at this point IMO.

Why would Jenny not be able to consent? Is she not alert & oriented? Does she not know her name, DOB or what year it is? Jenny is absolutely still able to consent.
 
Why would Jenny not be able to consent? Is she not alert & oriented? Does she not know her name, DOB or what year it is? Jenny is absolutely still able to consent.
Both Jenny and Sarah are perfectly able to consent right now. Sarah had that out of it ordeal in the hospital where she wouldn't have been able to consent.

Now the legality of either of them being able to sign legal documents, etc is probably a bit iffy. They are very medicated at all times. I guess that could also be interpreted as not being able to consent to filming but Jenny and most often Sarah still edit their own videos. They know what they are uploading.
 
I did check and they could make another trip to Disney with Jenny in a wheelchair and 02 . She could even go on most of tge usual rides with her portable oxygen.

Based on her previous experiences I think she might get hit with her usual horrible side effects as soon as she starts treatment again so if she wants to make anymore happy Disney memories with the kids she should try to do it now and leave the damn camera at home.
I wish she would make different memories with the kids.
All they do is dress them up and take them to Disneyland. That's all they'll remember. Put them in a pair of jeans snd a t shirt and take them to the park or somewhere.
 
I just hope that Jenny doesn’t feel any external or self-imposed pressure to keep producing videos to maintain a steady stream of income. That would be heartbreaking and quite pitiful.

Tiredness, stress and anxiety are all known to increase pain levels. She must be so exhausted at this point - in fact she is always saying how tired she is - it would be much better for her to conserve what energy she has. She really ought to be resting when she can and if she has bursts of energy then she can enjoy time with the children. If she chooses what to do with her limited energy wisely she and her family will benefit with better quality time together.

She needs to prioritise what she uses her energy for.
Jenny is napping on a 45 minute car journey. Her busy day consisted of an eye test and some scans? Thats a routine morning for a healthy patient :(
In Jennys last video she said she was tired several times, her body is tired. She did say when she took the oxygen off to wash and brush her teeth that she felt she couldn't breathe :( This means she is relying on supplementary oxygen to breathe.
It's awful for them because I can understand why they are hoping for "thee magic treatment", but I don't think Jenny is strong enough to handle further toxic treatment physically. I noticed Jenny said she doesn't even bother doing her hair anymore because she doesnt have the energy.
If the fluid is still around her heart, that will also be impacting her breathing.
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I wish she would make different memories with the kids.
All they do is dress them up and take them to Disneyland. That's all they'll remember. Put them in a pair of jeans snd a t shirt and take them to the park or somewhere.
I don't really know much about Disney with me not being in the US. Is it norm for locals to Disney to attend the parks so frequently?
We went once to Disney World when we was travelling down from New York to Miami, stopping off at Orlando. The kids enjoyed it, but I found the experience quite surreal. Seeing adults screaming and chasing after people dressed up in a Mickey costume. Maybe thats just me though :) I actually found the whole experience rather tiring and felt like I needed to relax after experiencing Disney. I remember the tickets being really expensive too?
 
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Jenny is napping on a 45 minute car journey. Her busy day consisted of an eye test and some scans? Thats a routine morning for a healthy patient :(
In Jennys last video she said she was tired several times, her body is tired. She did say when she took the oxygen off to wash and brush her teeth that she felt she couldn't breathe :( This means she is relying on supplementary oxygen to breathe.
It's awful for them because I can understand why they are hoping for "thee magic treatment", but I don't think Jenny is strong enough to handle further toxic treatment physically. I noticed Jenny said she doesn't even bother doing her hair anymore because she doesnt have the energy.
If the fluid is still around her heart, that will also be impacting her breathing.
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I don't really know much about Disney with me not being in the US. Is it norm for locals to Disney to attend the parks so frequently?
We went once to Disney World when we was travelling down from New York to Miami, stopping off at Orlando. The kids enjoyed it, but I found the experience quite surreal. Seeing adults screaming and chasing after people dressed up in a Mickey costume. Maybe thats just me though :) I actually found the whole experience rather tiring and felt like I needed to relax after experiencing Disney. I remember the tickets being really expensive too?
There are people that are addicted to Disney. It's almost like a cult. The Applefords live very close to Disneyland and they are all pretty much stunted at about Ellis' age so it's perfect for them. They have yearly passes and have had them for several years.


I know Jenny seemed extra tired on that last video but she blamed it on the sedative she took to keep from freaking out during the scans.
 
In a previous video, Kyle showed his phone in queue to buy tickets to Oogie Boogie Bash at Disneyland. It's some kind of Halloween experience during certain days in Sept and Oct. Season ticket holders could buy first. Today I had my phone and 3 different laptop browser windows all in queue for 4 tickets for my daughter, son-in-law and 2 grandsons as the general public sale opened. My queue moved faster than hers and after 2.5 hrs, I was able to buy the tickets for $636!! Crazy but they have $900 airline credit from covid so they needed to take a trip somewhere before the plane credit expires Dec 31. Obviously this is a big money maker for Disney.

I'm sure Kyle bought a ticket for Jenny and I hope she can attend but it's at 6pm-11pm so I highly doubt it.
 
I hope they never see the light of day again. I don't know how Youtube works, can you take them down?
Yes the content creators can remove the video but unlucky for them they are never gone, linked here on TL, and downloaded means they will always be available in the future.
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Why would Jenny not be able to consent? Is she not alert & oriented? Does she not know her name, DOB or what year it is? Jenny is absolutely still able to consent.
On their last day's.
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Both Jenny and Sarah are perfectly able to consent right now. Sarah had that out of it ordeal in the hospital where she wouldn't have been able to consent.

Now the legality of either of them being able to sign legal documents, etc is probably a bit iffy. They are very medicated at all times. I guess that could also be interpreted as not being able to consent to filming but Jenny and most often Sarah still edit their own videos. They know what they are uploading.
I was talking about filming until their last day's, at this/that point they are unable to give consent. Sarah definitely couldn't give consent mid seizure to be filmed.
 
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... I was talking about filming until their last day's, at this/that point they are unable to give consent. Sarah definitely couldn't give consent mid seizure to be filmed.
What if someone gave his/her consent to be filmed at all times? Then, one wouldn't have to consent 'mid-seizure' because the consent would have been given a priori. (I don't watch Sarah's videos but am just responding to the filming-under-duress issue.)
Jenny may have some sort of agreement with Kyle as to what she allows to be filmed of her. Lying down 'sleeping' type videos are not 'end-of-life' unless it is, indeed, the end. In my opinion, Kyle already knows what Jenny has allowed to be filmed of her, and thus wouldn't necessarily need to get consent 'mid-episode' or for other 'sleepy-type' scenes.
Maybe they will tell their kids that mom is doing like 'Sleeping Beauty' since they like Disney so much.
 
Yes the content creators can remove the video but unlucky for them they are never gone, linked here on TL, and downloaded means they will always be available in the future.
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On their last day's.
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I was talking about filming until their last day's, at this/that point they are unable to give consent. Sarah definitely couldn't give consent mid seizure to be filmed.


Some people are of sound mind up until their last breath. Dying doesn't necessarily mean incapacitated.
 
What if someone gave his/her consent to be filmed at all times? Then, one wouldn't have to consent 'mid-seizure' because the consent would have been given a priori. (I don't watch Sarah's videos but am just responding to the filming-under-duress issue.)
Jenny may have some sort of agreement with Kyle as to what she allows to be filmed of her. Lying down 'sleeping' type videos are not 'end-of-life' unless it is, indeed, the end. In my opinion, Kyle already knows what Jenny has allowed to be filmed of her, and thus wouldn't necessarily need to get consent 'mid-episode' or for other 'sleepy-type' scenes.
Maybe they will tell their kids that mom is doing like 'Sleeping Beauty' since they like Disney so much.
Well at least from whats put out pubically at least, the drainings don't occur around the kids. That they don't need to see.
 
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