Thenursemum

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She still compares. I remember her saying not so long ago about how much smaller he is to children his age, how he can’t do what they do etc.
you don’t have to have babies nowadays, no one forced her.

The thing is though, although his weight has been low, it’s not much different to my non-SEND 3yr old child! I don’t know how much his weight affects his other health problems, but my child was a big baby, and then just stopped gaining weight, and probably now weighs less than J! She’s seen a paediatrician and dietitian, and they’ve decided this is just her normal!
 
Where does the dad live? Do we know why they split? Also wasn’t sure about the ex situ that she broke up with like what 8 months ago?

I also didn’t know about the respite and then going on holiday for 5 days, when was this?? Totally blown my mind any last shred doubt in my mind after hearing that

His dad lives in london, their relationship was longterm but on and off, they were engaged, they split when he was born, she got with the ex soon after so hes been present most of his life up, I thought they split at their engagement party which was November, she went to dubai shortly after, but I think they got back together again for a few months because it was 6 months ago that she was telling people he had cheated on her and moved in with another woman. She went to venice for 5 days with the ex finance last August, so he was sent to rainbows, she came back just in time for his 2nd birthday and took him to a caravan, she sent him to rainbows again in May when she went to Paris. She took him with her when she went to Spain in April.
 
Just re-reading the reasons why so many people felt they needed an input of cash.

J’s bed wetting. Remember when this was a huge issue ladies? All the nappy/clothes/bed changes he needed? Such a loooooong time since any of that’s been mentioned. It must of miraculously fixed itself.

And the astronomical amount of ‘jobs’ and ‘checks’ she needs to do, no human alive can be expected to carry them out. Just read that statement and the impact it will of had on impressionable and eager to look like they care followers??.
WOW they must be talking about a different woman here because she literally pops a few bags in the boot and they can swan off on holiday or to a hotel. I don’t see him attached to oxygen, a stats machine, being suctioned, no epilepsy monitor, his bed isn’t tilted, there’s no sleep system to ease his limbs, most nights he isn’t even fed when he should be (we’ve all seen her forget his pump battery but never forgets his iPad or chargers) the medical, physical and let’s face it physiological embellishments have been there since the very beginning. In what seems to be a web of lies she simply can’t run away from for much longer.
‘We’ the SEN community saw you for who you are a very long time ago.

I have to agree with this - A child with needs this complex and severe surely couldn’t go camping? Oh wait... he can! In a normal bed too!
 
J’s bed wetting. Remember when this was a huge issue ladies? All the nappy/clothes/bed changes he needed? Such a loooooong time since any of that’s been mentioned. It must of miraculously fixed itself.

Regarding this...when lockdown started and the nappy hoarding started she said she needed size 3 nappies, I think it was? She received some messages then from people telling her he needed to be in bigger nappies and she was insistent that he was wearing the right size. My daughter is small for her age and we have always had to size up her nappies for absorbency about a kilo before she meets the size range on the packetotherwise she wees through them.The tabs end up crossing over but you just do em up tight enough! When you see Js nappies you can see that the tabs barely reach the front. They are far far too small. He was bigger then my kid (she was posting his weight all the time) and she was wearing larger nappies then him.We literally have one incident where she’s weed through her nappy at night and we size her up for nights (and then days follow). Shes healthy, no issues whatsoever, she isn’t over producing pee, it’s just that the numbers on the packets are a guide and they have a big overlap between sizes for a reason.
 
Regarding this...when lockdown started and the nappy hoarding started she said she needed size 3 nappies, I think it was? She received some messages then from people telling her he needed to be in bigger nappies and she was insistent that he was wearing the right size. My daughter is small for her age and we have always had to size up her nappies for absorbency about a kilo before she meets the size range on the packetotherwise she wees through them.The tabs end up crossing over but you just do em up tight enough! When you see Js nappies you can see that the tabs barely reach the front. They are far far too small. He was bigger then my kid (she was posting his weight all the time) and she was wearing larger nappies then him.We literally have one incident where she’s weed through her nappy at night and we size her up for nights (and then days follow). Shes healthy, no issues whatsoever, she isn’t over producing pee, it’s just that the numbers on the packets are a guide and they have a big overlap between sizes for a reason.

We always have to size up too. Although my youngest has a kidney problem and wees a LOT at night, he leaks most night, tbh. Pampers used to do the + nappies which were supposed to be more absorbent, but i think they’ve stopped doing them in the bigger sizes because I can’t find them.
 
We always have to size up too. Although my youngest has a kidney problem and wees a LOT at night, he leaks most night, tbh. Pampers used to do the + nappies which were supposed to be more absorbent, but i think they’ve stopped doing them in the bigger sizes because I can’t find them.
Tesco online have “pads”/ larger size nappies.
A SEN mum lobbied them and worked with her. You can ask your local Tesco manager to stock them for you
I don’t want to say her name on here but if you google you will find articles on her campaign
 
I just feel such a fool being taken for a mug by her 😩😭 and it did feel like she was advocating for the SEN/D community so I feel doubly awful now that actually she isn’t and in reality it shows how much I’ve no idea about it.

Was the calendar all a big fix too? She just reminds me so badly of PTWM who fiddled people for cash.

This is what bothers me so badly about Social Media and how my kids will grow up with it in their lives ultimately. Life was so much easier before people could do this fiddling so easily.
 
Regarding this...when lockdown started and the nappy hoarding started she said she needed size 3 nappies, I think it was? She received some messages then from people telling her he needed to be in bigger nappies and she was insistent that he was wearing the right size. My daughter is small for her age and we have always had to size up her nappies for absorbency about a kilo before she meets the size range on the packetotherwise she wees through them.The tabs end up crossing over but you just do em up tight enough! When you see Js nappies you can see that the tabs barely reach the front. They are far far too small. He was bigger then my kid (she was posting his weight all the time) and she was wearing larger nappies then him.We literally have one incident where she’s weed through her nappy at night and we size her up for nights (and then days follow). Shes healthy, no issues whatsoever, she isn’t over producing pee, it’s just that the numbers on the packets are a guide and they have a big overlap between sizes for a reason.

Now it's been discussed on here she will remember she hasnt dont any stories of him soaked in urine for a while, so expect to see some especially with her building up the attention around losing carers again. I'm waiting for the stories where she films herself running upstairs to switch his alarm off too, not seen any of them since she became rich. Oh and the ones where shes filming him with one hand whilst trying to help him with the other as hes being sick, making it look more dramatic instead of just helping him quickly.
 
Just speaking from experience - my toddler was in small nappies for quite as he had such skinny legs. If I tried to size him up, the nappies wouldn’t go effectively around his legs and he would leak out of them.

Perhaps, since J doesn’t walk, his thighs are smaller so it’s likely he can’t size up as he would leak out the legs?

Regarding this...when lockdown started and the nappy hoarding started she said she needed size 3 nappies, I think it was? She received some messages then from people telling her he needed to be in bigger nappies and she was insistent that he was wearing the right size. My daughter is small for her age and we have always had to size up her nappies for absorbency about a kilo before she meets the size range on the packetotherwise she wees through them.The tabs end up crossing over but you just do em up tight enough! When you see Js nappies you can see that the tabs barely reach the front. They are far far too small. He was bigger then my kid (she was posting his weight all the time) and she was wearing larger nappies then him.We literally have one incident where she’s weed through her nappy at night and we size her up for nights (and then days follow). Shes healthy, no issues whatsoever, she isn’t over producing pee, it’s just that the numbers on the packets are a guide and they have a big overlap between sizes for a reason.
 
Just speaking from experience - my toddler was in small nappies for quite as he had such skinny legs. If I tried to size him up, the nappies wouldn’t go effectively around his legs and he would leak out of them.

Perhaps, since J doesn’t walk, his thighs are smaller so it’s likely he can’t size up as he would leak out the legs?
At the time she storied about it my kid wasn’t walking yet, was much smaller then J and has always been a skinny baby, but still wearing larger nappies.
 
Oh that’s really sad about the friend. I saw a few stories without explanation to what it was about so wasn’t sure and then a grid post got deleted
I do feel for her if her friend has died but unfortunately it’s a case of “you ok hun-DM me?”
Would it not have been better for her to explain what the situation was instead of being kinda secretive? It’s very attention seeking behaviour!
 
I always get an iffy feeling about her. No doubt she has it tough and so does her son but I have friends who’s children have it a million times worse and they don’t get any extra help nor did they have a go fund me or get to do social media ads that pay. My friends son has muscular dystrophy (I hope I’ve spelt it right). They get no help, no restbite, no holidays (UK or abroad). They do everything for him with grace and love when their lives shattered when he received his diagnosis (he is now 31 which is amazing considering he was diagnosed at 4yrs old)
 
Tesco online have “pads”/ larger size nappies.
A SEN mum lobbied them and worked with her. You can ask your local Tesco manager to stock them for you
I don’t want to say her name on here but if you google you will find articles on her campaign

I know who you mean, I just didn’t want to use a resource that wasn’t necessarily for us.
 
The woman has had all day to herself (guessing that's it with the nursing now? Probably been sacked but will think of some excuse for it to not be her fault.. She's never in the wrong is she 🙄). She's been for a run... Took a bath... Probably posed in front of the famous bloody kitten cupboard and posed on the staircase with her set up insta wanking backdrop (candles and a print randomly placed) setting up more adverts.
Then when it's time for her son to be home with his mummy who he's probably missed whilst being at school.... She carries on her work and leaves him to play with the ipad.

Films him playing alone on his car to show that he plays. Then that's her done for day.... Theb the next day he shall be at school whilst she prance around thinking she's ever so busy having her PT sessions and probably sat in Js hot tub cackling at everyone whose donated thinking... Idiots. Then picks up her son and chucks him his ipad.. Then it starts all over again.
Oh wait I forget.... The carers 60hours so she won't need to deal with her son through the night as she has her "night shift" to look forward to.

She never has her son. Then when she does have him... She never plays with him. I feel sorry for the poor boy. He should be playing with his mummy. Doing arts and crafts.... Baking together. Reading. Sadly I think non of that goes on. The only Input it seems is his school and the god damn kittens 😂 think she got them as child care too. Chuck him a kitten to play with and she'll be child free.

Not all parents of SEN children use carers. The ones I know of have children who are more severely mobility impaired and having higher medical needs. Then there's her doing her hardest to justify getting continuing care when.... Her son doesn't need oxygen. Doesn't have seizures. Doesn't need suctioning. Doesn't need chest physio and turning in the night. Doesn't have pressure sores. He doesn't qualify.... Because he doesn't have high medical and physical needs. End of.
Whilst she's trying to justify keeping his 60hour care package... On top of school hours... On top of his dad having him... There are parents who struggle getting any help. Who DO QUALIFY. She's had an extension on her care package that should of ended last year... But because it's kaytee she's had special treatment because she's been on TV and radio.....
But what about the parents who don't get special treatment!? How is her care any different to anyone else's?

The woman bangs on about privalage but doesn't see she's in a better off position than many sen parents. Any parents of neurotypical children too!
 
Learnt so much. Ashamed to say I thought all families with sen children got carers. I actually didn't realise carers are there only for extremely medically complex children.
There are two kinds of care, broadly speaking. There's social services funded care, that's where the child is perhaps disabled or has a learning disability but without lots of medical needs, so the needs are deemed to be social. Then there's continuing healthcare which is NHS funded and reserved for the most medically unstable children. It was designed to allow people to live at home rather than in hospital. In my area you pretty much have to be on a ventilator to qualify. Its a messy system, and there are many people not receiving continuing care who should be - but Jaxon really wouldn't qualify these days, he's too well. In this game points win prizes though so a permanently sore stoma, regular hospitalisations for electrolyte imbalances, feeding difficulties and deep suctioning (remember when she was adamant he should have a suction machine? despite almost never aspirating?) would all help towards getting enough points. Some days its like K has reminded herself of the continuing healthcare framework and is trying to make J look like he ticks as many of those boxes as possible.
The lack of hospice input intrigues me. Did they kick him out for being too well? Did they get cross with her going abroad while he was there? We aren't allowed to go abroad whilst our children are in the care of our hospice.
 
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