There are two kinds of care, broadly speaking. There's social services funded care, that's where the child is perhaps disabled or has a learning disability but without lots of medical needs, so the needs are deemed to be social. Then there's continuing healthcare which is NHS funded and reserved for the most medically unstable children. It was designed to allow people to live at home rather than in hospital. In my area you pretty much have to be on a ventilator to qualify. Its a messy system, and there are many people not receiving continuing care who should be - but Jaxon really wouldn't qualify these days, he's too well. In this game points win prizes though so a permanently sore stoma, regular hospitalisations for electrolyte imbalances, feeding difficulties and deep suctioning (remember when she was adamant he should have a suction machine? despite almost never aspirating?) would all help towards getting enough points. Some days its like K has reminded herself of the continuing healthcare framework and is trying to make J look like he ticks as many of those boxes as possible.
The lack of hospice input intrigues me. Did they kick him out for being too well? Did they get cross with her going abroad while he was there? We aren't allowed to go abroad whilst our children are in the care of our hospice.
I dont think he would qualify for social services funded carers, not until hes older at least. I was surprised the hospice allowed her to use them for childcare so she could go abroad and as often as she did too. Most hospices tell you to remain close in case of emergencies. I've never heard of any SEND family being able to put their child in a hospice so they can holiday in another country. Hospices take children not dogs, it's not a boarding kennel.
She knows the CHC framework off by heart now, she goes into detail about how things are scored and what he would need to be like for him to get top scores in each section.
Shes messing with his feeds again, but why did she even attempt this when she knew he was having a GA and MRI. He was supposed to have it the week before but it was cancelled so exactly when did she start faffing around with it. She repeatedly mentions he is high risk for GAs, so wouldn't it be a priority as a parent to make sure hes as strong and healthy as possible if hes going in for a GA? Yet shes now saying shes been faffing around with his feeds, when she knows that the last time she messed with his feeds he ended up in HDU?
GAs can lower potassium as it is, why risk altering his feeds when you know your childs having a GA. In her own words, his button is sore and often leaks valuable calories, but she didnt have time to fix it yet knew he was having a GA within days, why not get onto it straight away so you know hes getting as many calories in as possible. What happened when he went? She goes silent for 36 hours, gets lots of attention with people worried something bad has happened and then she announces they stayed in due to low potassium
Shes a nurse, she knows exactly what she is doing, she knew he would have low potassium after what she was doing combined with a GA. If she can get a few hospital over night stays in over the next few weeks, that gives her content, she gets some sympathy, the chances of a new fundraiser being set up for her increases and This Morning might have her back on again if they see that shes losing carers again. Oh and she might be able to flog even more calendars that shes about to start selling again with people buying them because they feel sorry for her and 'it's a way to support jaxon'
