Thenursemum

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Nettlesting said:
You sound amazing 👏
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Thank you, but I'm really not at all. I'm just doing what many of us mums are doing behind closed doors, muddling through and doing whatever we can for our children. 16 years into life in the complex medical needs world I have a fair bit of experience to go on which helps. But it also makes watching someone like Kaytee claim to represent us especially hard. Here she is giving people the idea that we can and do just change feed schedules or medications to suit us - that's just not how it works.
 
YomAsal said:
Thank you, but I'm really not at all. I'm just doing what many of us mums are doing behind closed doors, muddling through and doing whatever we can for our children. 16 years into life in the complex medical needs world I have a fair bit of experience to go on which helps. But it also makes watching someone like Kaytee claim to represent us especially hard. Here she is giving people the idea that we can and do just change feed schedules or medications to suit us - that's just not how it works.
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Hopefully more people will join here and see she is being completely disrespectful to all the parents fighting hard each day for their children and how damaging she is being to her poor child. I certainly felt something was wrong for a long time, I'm just glad this thread has been allowed to raise more awareness.
 
Strawberry13 said:
Just saw her latest story and she has Jaxon in the car , in his carseat with a thick jacket on and yet again doesn’t look to be strapped in so many stupid mistakes that could cause her child harm if god forbid she was in an accident
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'Midday collection for bloods' some people might think that means it's daily occurrence the way she writes things. Why on earth does she think it's safe to not strap him in correctly. She's a tit driver as it is, hes in the front too and she encourages him to mess with things 'Jaxon open the window' 'Jaxon can you close it' how long will it be before hes reaching forward grabbing things and distracting her, or even getting out his seat or opening the door whilst shes driving. Being a nurse doesnt make you superhuman and exempt from having to be a good parent.

YomAsal said:
It depends on the circumstances. When my daughter was little and had an NG tube, horrendous reflux, vomiting, failure to thrive etc I did everything in conjunction with the dietician. Now she's older and has a gastrostomy, things are more stable and I feed her a blended diet of actual food rather than prescription milks. She doesn't have any health conditions particularly likely to be affected by diet and she is following the growth charts beautifully. As a result the dietitian and I agree that I make changes where necessary and inform the dietician rather than ask him - eg a period of night waking led me to believe my daughter might be hungry in the night so I successfully trialled adding in another meal just before bed, let the dietitian know and he added it to her plan. You have to bare in mind that dietitian sign-off is required by school, carers, hospice etc if they are to feed my child at all whilst in their care. They won't just take my word for any changes like they would with a child who eats normally. If your child had a heart condition or electrolyte imbalances you just wouldn't mess with this kind of thing without working closely with the dietitian as you go. Not unless you're Kaytee anyway.
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I'm surprised they have never put him back on continuous feeds like he was when he was tiny, my niece used to go through periods where she was put back onto continuous feeds as it built her tolerance, absorbancy and reduced vomits dramatically, her levels never dropped either, she would gain weight and then they would change her feeding plan slowly instead of doing dramatic changes like Kaytee does. She said theres no understanding why hes vomiting but I think it's clear why he is and it's her fault, his body is small and cant keep up with her making changes and ramming in more than double the feed he was already struggling to cope with, just so she can do less feeds. She said shes cut essential meds or those making a difference. We have all assumed she meant to say non-essential and those not making a difference. But what if she meant what she actually wrote. I wouldn't be shocked with anything with her now, how does she know what's making a difference and what isnt, without consulting his doctors. They wouldn't just prescribe a small child things for the sake of it. She's crackers
 
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I'm going to give her the benefit of the doubt here and assume she took that pic before strapping him in? (optimistic?) but we all know she won't have taken that thick coat off him in the seat because she never does. He might as well not be in a car seat for all the good that would do him in a crash. :confused:

Sendparent said:
I'm surprised they have never put him back on continuous feeds like he was when he was tiny, my niece used to go through periods where she was put back onto continuous feeds as it built her tolerance, absorbancy and reduced vomits dramatically, her levels never dropped either, she would gain weight and then they would change her feeding plan slowly instead of doing dramatic changes like Kaytee does.
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As you say, its very common for small tube fed children to be fed slowly for many hours a day. Yes its inconvenient to have a pump in tow all the time but if it's what they need then that's what you do. At that age my daughter was fed all the time she was awake - we couldn't do night times as being fed lying down increased her vomiting and most vomiting episodes ended in aspiration pneumonia and a hospital stay. I can't even imagine trying to cram the required calories into 3 feeds, can't even do that now that she's a teenager.
Not everyone copes with being fed slowly for various reasons but its pretty clear that Jaxon needs a gentler approach than the "least possible effort" attitude that his mother has adopted.
 
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Starrysky said:
She did annoy me when she kept saying she was a nurse when she wasn’t even working, she was qualified as a nurse yes, but at the time wasn’t working as one 🤦🏻‍♀️

When I qualified / graduated I needed to get into work straight away rather than wait for a position in the NHS to come up. I ended up working in the chippy, local convenience shop and nights at Asda. When people asked what I did I never once said I did what I graduated in, because well, I wasn’t.

Kaytee uses the whole ‘oh I’m a nurse so I know everything about my son and how to treat it and that other nurses are wrong!’ She actually problems is wrong. Adult nursing and paediatric nursing are two completely different qualifications, they know the very basics about the other, but an adult nurse really doesn’t know what to do when it comes to treating children and vice versa. She knows what she’s doing with J through experience but she definitely doesn’t know more than the doctors or nurses.

So the whole being registered thing. You can’t actually practice until your name is on that register and online and you have your number, so if she is working as a nurse she will be on there. If she has done anything wrong to effect her registration it won’t show online just yet, if she has been suspended from work or dismissed it won’t necessarily show on her registration at all.

It’s hard to call the whole job thing, they are strict with the whole social media but I’ve not seen anything related to her work that could be detrimental. However, the governing bodies do take social media complaints from the public very seriously.

In our social media policy it states we are not to post photos of ourselves in uniform. I never have and never will. I don’t even mention work on social media. There are so many that do this though, write comments about work, tag themselves in at a hospital (we go to different hospitals throughout a shift). Now most get away with it, managers will see it and turn a blind eye. But... if a member of public makes a complaint you’re in the tit.

You could have joe bloggs, posts every day about work, photos in uniform, photos of hospitals making derogatory comments about work on Facebook, and gets away with it for years.

Then John smith posts his first ever work related photo, in uniform holding a brew. A member of public sees it and reports it. John smith then gets investigated.

I reckon Kaytee (is that seriously how she spells it?) is currently on annual leave and is going to hand her notice in soon if not already, she probably thinks she is too good for it now.
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I’m a nurse too. I was shocked that she’s working during this pandemic? Wouldn’t she want to shield with her son?

Basicbasic said:
The parking tickets are infuriating. Just because you have a sen child does not exempt you from the law ffs. And how many times has she got followers to pay for her. Lots of times. She's also accuses the blue badge rules and complains, the rules are there to protect all blue badge holders.

Also re work, how many rants did she have about not being allowed to story in her uniform. When she started work every photo and story was in get uniform until she was told off. She's a total show off, at the cost of cross contamination and js health. I wouldn't be surprised if her new management told her to keep working as a nurse to build her brand. She incident has zero interest in the job.
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I think she works at my hospital. She trained at my trust and Uni.
 
YomAsal said:
As you say, its very common for small tube fed children to be fed slowly for many hours a day. Yes its inconvenient to have a pump in tow all the time but if it's what they need then that's what you do. At that age my daughter was fed all the time she was awake - we couldn't do night times as being fed lying down increased her vomiting and most vomiting episodes ended in aspiration pneumonia and a hospital stay. I can't even imagine trying to cram the required calories into 3 feeds, can't even do that now that she's a teenager.
Not everyone copes with being fed slowly for various reasons but its pretty clear that Jaxon needs a gentler approach than the "least possible effort" attitude that his mother has adopted.
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Thats what I thought, if they need it you just do it. He was on continuous feeds before for about 21 hours a day, it's in her highlights. In her highlights it says she then changed his feeds to blends so she did 3 blend feeds during the day plus water, then over night she doesnt wake him or has his bed tilted and gave him feeds of milk between 9pm and 1am, then water between 1 and 2am then back to milk between 2 and 6am. Not sure if shes still doing the blends now or if shes gone back onto the milk for during the day as she mentioned nursery and schools wouldn't do blend feeds, plus she doesnt do stories about making up the blends anymore. I dont remember him being as bad with the vomiting when he was on continuous feeds and he must be able to tolerate night feeds as hes always asleep lying down flat which I find confusing because she was insisting he was high risk for aspiration and she needed a suction machine at one point and I wondered why she goes to sleep whilst hes having his night feeds if hes that high risk. I would have thought slowing it down and doing continuous feeds would benefit him more than trying to cut all his feeds down to just 3 a day to help her cope with losing carers. It seems cruel to do that to him
 
Smallpotato said:
I’m a nurse too. I was shocked that she’s working during this pandemic? Wouldn’t she want to shield with her son?



I think she works at my hospital. She trained at my trust and Uni.
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Please do some digging and find out if shes been sacked/suspended 😂 We would all like to know the truth because shes taking her time to come up with a good story to tell people why shes never at work anymore.

I'm still having food deliveries which I then clean! She chose to take a job during a global pandemic. It makes you wonder things that make you feel awful for even thinking those things, but what if she is purposely trying to cause him harm. Nothing makes sense. Shes not protecting him from the pandemic, shes not protecting him from weightloss, shes not protecting him from infection, shes missing feeds, shes missing meds, shes even making choices to cut medications altogether. I feel like calling 999 or something because I am so worried about that little boy in her care.
 
MrsJones83 said:
I was very surprised that she decided now was a good time to go to work in a hospital:
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tbh Hospitals are probably the safest place currently, I’d rather be at work than ASDA but then again I don’t have a little boy like Jaxon. My son has a poorly heart (as do I) and when I get home, I strip off in the garage, shower and then hug him. We don’t travel in uniform, uniform in my department has been replaced with dispos scrubs!

what’s her surname? She probably spells her first name different on the register.

looking at her IG she most likely works for my hospital, but I work in the depths of ICU/Theatres. I don’t mind sharing this as I’m known on another thread for endlessly complaining about it.
 
Has anyone been round long enough to remember that time she flew to Dubai with jaxon... she purposely mixed around & dropped his feeds to suit the 4 hour time difference for her own benefit only, knowing full well he would be sick. Have to admit this was when alarm bells first started ringing for me!!

**edit to say he was actually sick on the plane before takeoff and she had basically wrote about it in her caption laughing at the fact the person who was to sit there would have no idea what had just happened (after it was cleaned up)

someone called her out on it and she edited the caption and removed the part mentioning the sick.
 
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Smallpotato said:
tbh Hospitals are probably the safest place currently, I’d rather be at work than ASDA but then again I don’t have a little boy like Jaxon. My son has a poorly heart (as do I) and when I get home, I strip off in the garage, shower and then hug him. We don’t travel in uniform, uniform in my department has been replaced with dispos scrubs!

what’s her surname? She probably spells her first name different on the register.

looking at her IG she most likely works for my hospital, but I work in the depths of ICU/Theatres. I don’t mind sharing this as I’m known on another thread for endlessly complaining about it.
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She was wearing her uniform then got arsey when others messaged her telling her not to, especially around her son. Somebody else on this thread has mentioned they have searched the register for her but cant find her, but they also said she mentioned that her name on official documents isnt really Kaytee Jones. I've seen some on instagram say that both her first and last name is different to what she uses. I cant remember what they said it was but I'll try and find out. You might come across her one day if she is working at the same hospital, she will be the one asking the canteen staff if she can get a gifted banana because shes instafamous
 
Basicbasic said:
Yes Dubai was odd. When she came back she used the carer hours she hadn't used during her holiday by booking carers back to back 24/7 for days so she could relax after her beach holiday. No wonder they were annoyed.
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Yes I’d forgotten about this (I mean there’s just so many atrocities it’s hard to keep up!).

I mean at a time where she didn’t work and he didn’t go to nursery she would always book them in to suit her. Because I mean she has no time to do anything so it’s no surprise she needed them to fit in around her empty schedule 🤣 Sorry I mean nights out AND in (we’ve all seen the girly parties she hosts).
Anyone else cringe when she says the word ‘Keira’ also known as Carer to you and I. 😜
 
BurlieWhurlie said:
Well, her follower count has gone up
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That’s from the Mre.Soeur share.

Another ‘single’ Insta Mum who simply won’t give her coparenting ex the credit he deserves. She’s been up ‘k’s’ arse since the events last year.
(someone who chose to share every intimate detail of her sons life up until a few months ago because now she hides his face. I mean he’s advertising sofa’s on the side of public transport but for the gram he’s just a headless body. Here’s an idea ‘JUST STOP POSTING HIM ALTOGETHER’)
 
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OutrageouslyScarlet said:
You know you have too much money when you give a toddler an iPad Pro with no case on it.
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I’m always stunned that people don’t realise how much her technology costs.
A mac book (he did have an Amazon tablet but clearly not good enough for her image) An iPad Pro. Latest iphone. Ear pods. A New Apple Watch (I wondered when that would appear) because she broke the last one and omg did she go on and on about it clearly begging for a new one that didn’t magically get sent to her 🤣.
And yet they still think she’s on the breadline.
He was always in rags until she started being gifted clothes for him (or she bought a few key items and then tagged the hell out of the posts to get free shizz ‘Are you listening River Island??’). She was NOT happy that RI used ‘disabled’ children and almost demanded to work with them. TBF at least he’s better dressed now they are on board. For a chav I mean.
 
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