The Neurodiversity Thread

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Hi I’m so sorry to bring this back but I was on a walk today and I think I may have thought of some more reasons why he’s not sleeping.

1. He’s overstimulated

2. He’s under stimulated - not necessarily physically but it could be he’s not getting enough mental stimulation because he’s not entertained by what he’s doing at school. I had this problem when I was around 8-11 - (long story short) the work at school was
boring for me and I was wired in the evenings because I wasn’t working my brain during the day

3. (This one I think is the most likely scenario) he’s got too much adrenaline in his body to slow him down - he could be anxious at school and he likely knows that he’s “misbehaving” which might be giving him more anxiety cause he’s “naughty” and not “a good boy like the other kids” (“” cause I disagree with these words and I do not think your son is naughty at all but I’m thinking of it from a child’s perspective). It could be that bed time is the sign that he’s got school the next day which is sending his adrenaline through the roof (i say this because I would cry in bed every night as I knew I was getting up for school the next day)
or bed time is the weekend where he doesn’t know what the plans are or what’s happen (im not saying that’s true for your family, but I’m just thinking of it from my perspective of weekends. I now stick to a rigid routine on weekends because I hate just having long days of nothing - even something as small as ‘put washing out’ gets done at the same time. As a kid I hated when I didn’t know what was happening)

I obviously don’t know if any of this is true. These are just more ideas. It could also be a mixture of all 3. I hope that helps
He also might not understand what he’s doing wrong in some aspects. I remember having that issue 😐
I also want to add to this that sometimes you know youve done something wrong but you don’t exactly know what it is that you’ve done wrong.

I have been told that I have been or am rude so many times in my life but have yet to be told what is the exact thing that I’ve done that’s rude and why. I don’t doubt that I am occasionally rude (by accident) but please explain why?!


thanks guys, i appreciate it all i just haven’t responded because i’m so drained and exhausted and i feel depressed with it all.

I just hope things start improving soon because i’m at a huge loss of what to do. x
 
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😡 dyspraxia does not affect your intellect in any way, they probably made it to be approachable for a reason
 
Do any of you feel like you struggle with rejection and confrontation in that regard?

ETA: Posted this with 0 context haha. Something happened to me yesterday that is so stupid but I'm still upset over .
 
Just sent an email to my boss about the sensory issues I’ve been having in the office resulting in me ending up ill. Terrified
 
Hi all
I’m not sure if this is the best thread, but just after some advice for my 13 yo daughter
I think she may have ADHD, but I don’t know where to start and who to turn to. I have struggled with her for years, but just googling adhd in girls, she does have a few signs
I’d be really grateful (and hope you don’t mind me asking) if some of you could tell me what symptoms (sorry if the wrong word) you have of adhd?
Family background - her dad had (has? Not sure if it will ever go and we’ve been split up for 12yrs) it and was diagnosed when he was early teens
I’m not sure who to go to, as her teachers don’t see her the way she is at home
I really appreciate any answers and sorry if I offend anyone x
 
Hi all
I’m not sure if this is the best thread, but just after some advice for my 13 yo daughter
I think she may have ADHD, but I don’t know where to start and who to turn to. I have struggled with her for years, but just googling adhd in girls, she does have a few signs
I’d be really grateful (and hope you don’t mind me asking) if some of you could tell me what symptoms (sorry if the wrong word) you have of adhd?
Family background - her dad had (has? Not sure if it will ever go and we’ve been split up for 12yrs) it and was diagnosed when he was early teens
I’m not sure who to go to, as her teachers don’t see her the way she is at home
I really appreciate any answers and sorry if I offend anyone x


I was diagnosed ADHD at 11 (I think! Might have been 10 or 12 😂) but the main signs were:
- very intelligent without needing to try or do any work in every subject and I couldn’t understand why other people didn’t know this stuff. As I got older (16/17/18) I would only be like this if it was stuff I cared about. If it was science of philosophy then I would zone out and not try. Looking back idk how I passed all my finals and got into uni 😅
- always did everything very quickly and went about my life like a whirlwind or would sit still and not move for hours in end not focusing on anything
- hyperfixating in things for weeks and then dumping them never to be seen again
- big sensory issues with food and people touching me
- stimming, mainly rubbing my feet together ot twiddling my hair, happy hands

I was diagnosed in France/Germany so it’s a wee bit different but I was originally just considered very clever by my primary school (I was bilingual by the age of 6 after moving to France when I was 5). When I moved to a bigger international school at the age of 10/11, I was referred to the school psychologist for ‘bad’ behaviour and demand avoidance by a few of my teachers and they called my parents in and said that it wasn’t behaviour it was most likely adhd. It’s not really recognised in France (they still call people ‘slow’ and we were told to just not talk to the non verbal girl in my primary school class and pretend she wasn’t there 😐). I think your best bet is maybe pastoral care/form tutor or your GP?

Sorry I feel like I’ve thrown a whole load of information at you there🤦‍♀️ the fact you’re willing to try and help us all your child could ask for 🤗
 
I was diagnosed ADHD at 11 (I think! Might have been 10 or 12 😂) but the main signs were:
- very intelligent without needing to try or do any work in every subject and I couldn’t understand why other people didn’t know this stuff. As I got older (16/17/18) I would only be like this if it was stuff I cared about. If it was science of philosophy then I would zone out and not try. Looking back idk how I passed all my finals and got into uni 😅
- always did everything very quickly and went about my life like a whirlwind or would sit still and not move for hours in end not focusing on anything
- hyperfixating in things for weeks and then dumping them never to be seen again
- big sensory issues with food and people touching me
- stimming, mainly rubbing my feet together ot twiddling my hair, happy hands

I was diagnosed in France/Germany so it’s a wee bit different but I was originally just considered very clever by my primary school (I was bilingual by the age of 6 after moving to France when I was 5). When I moved to a bigger international school at the age of 10/11, I was referred to the school psychologist for ‘bad’ behaviour and demand avoidance by a few of my teachers and they called my parents in and said that it wasn’t behaviour it was most likely adhd. It’s not really recognised in France (they still call people ‘slow’ and we were told to just not talk to the non verbal girl in my primary school class and pretend she wasn’t there 😐). I think your best bet is maybe pastoral care/form tutor or your GP?

Sorry I feel like I’ve thrown a whole load of information at you there🤦‍♀️ the fact you’re willing to try and help us all your child could ask for 🤗

Ah, thank you! I definitely need to try because living with her is not fun! We had the best week, but she basically just had the biggest strip and told me to duck off (she thinks she’s whispering, but it’s not) because her dad offered to get her something and she said no, and I told her to take advantage of it 🤷🏼‍♀️
She is very clever, in top sets at school, reads through books in a day. She definitely has ‘nervous hands’ as my mums always called them, and she maybe does have food issues also… She also goes from 1 extreme to the other quite quickly.
A few months ago, I noticed marks on her legs and arms, which I have told docs about and they believe she has anxiety, which she 100% has, but I do think she has something a lot deeper.
I had a google, and a few things do stand out - being disorganised is one with the messy bedroom (not sure if this is a sign or just a teenager?!)
She also isn’t great with taking instructions. For eg no food/drink upstairs (new house new carpets) found chewing gum on her last carpet. Keep finding food and drinks upstairs and she thinks she hides things quite well, but, well she doesn’t!
Like I said, I’m not sure if she’s just a teenager and is lazy and hormonal, but some things she does I do question
 
Hello everyone,

I wondered if you might be able to help me. I’ve been poorly for years but only received an official diagnosis around 3 months ago. I’ve been diagnosed with EUPD and am currently on a trial of anti-psychotics. I’m being monitored closely to check my body responds to the drug.

For the past three years I haven’t been well enough to work due to random psychotic breaks. I’ve been hospitalised 3 times. I can go weeks feeling and looking completely normal and then wake up like a different person. It’s so random, I’m unable to plan things very far in advance. We are hoping the medication will help this. My psychiatrist is confident but I’m very wary.

Anyway, I’ve been living on my savings and not claiming anything at all. He told me I may be eligible for PIP due to my diagnosis and medication on record etc. I’ve just started the process and I’m waiting for the claim form to arrive. Does anybody have experience with this? I genuinely think I won’t qualify because as I said, I can be a completely happy and normal person for weeks at a time. It’s like there’s 2 different people living in my head.

PIP would definitely be helpful as I could stop dipping into my savings until I’m stable enough (fingers crossed) to go back to work.

A x
 
Hello everyone,

I wondered if you might be able to help me. I’ve been poorly for years but only received an official diagnosis around 3 months ago. I’ve been diagnosed with EUPD and am currently on a trial of anti-psychotics. I’m being monitored closely to check my body responds to the drug.

For the past three years I haven’t been well enough to work due to random psychotic breaks. I’ve been hospitalised 3 times. I can go weeks feeling and looking completely normal and then wake up like a different person. It’s so random, I’m unable to plan things very far in advance. We are hoping the medication will help this. My psychiatrist is confident but I’m very wary.

Anyway, I’ve been living on my savings and not claiming anything at all. He told me I may be eligible for PIP due to my diagnosis and medication on record etc. I’ve just started the process and I’m waiting for the claim form to arrive. Does anybody have experience with this? I genuinely think I won’t qualify because as I said, I can be a completely happy and normal person for weeks at a time. It’s like there’s 2 different people living in my head.

PIP would definitely be helpful as I could stop dipping into my savings until I’m stable enough (fingers crossed) to go back to work.

A x
Not sure this is anything to do with neurodiversity? Neurodiversity isn't a personality disorder. The mental health thread might be better for this, you might get more knowledgeable support
 
Hello everyone,

I wondered if you might be able to help me. I’ve been poorly for years but only received an official diagnosis around 3 months ago. I’ve been diagnosed with EUPD and am currently on a trial of anti-psychotics. I’m being monitored closely to check my body responds to the drug.

For the past three years I haven’t been well enough to work due to random psychotic breaks. I’ve been hospitalised 3 times. I can go weeks feeling and looking completely normal and then wake up like a different person. It’s so random, I’m unable to plan things very far in advance. We are hoping the medication will help this. My psychiatrist is confident but I’m very wary.

Anyway, I’ve been living on my savings and not claiming anything at all. He told me I may be eligible for PIP due to my diagnosis and medication on record etc. I’ve just started the process and I’m waiting for the claim form to arrive. Does anybody have experience with this? I genuinely think I won’t qualify because as I said, I can be a completely happy and normal person for weeks at a time. It’s like there’s 2 different people living in my head.

PIP would definitely be helpful as I could stop dipping into my savings until I’m stable enough (fingers crossed) to go back to work.

A x

its not what you have or the name. It's how you're affected. I don't get pip for my Autism because I have no support which somehow means I'm fine. (i'm too sensitive to noise which social services don't understand and refuse to work with me)
 
Hi @soph30,
Jumped over from the I'm a celeb thread to reply. Thanks for the link it was a good idea!
So my story in short... I was an extremely hyperactive child who talked incessantly and was probably fairly socially clueless for the most part. I also had extreme emotional outbursts which I now realise were meltdowns. My parents sought the help of a psychologist at one point and he suggested I may have been brain damaged at birth. Nice. My birth was totally bog standard so nothing to suggest that. My parents never went back! Fast forward to now and three of my children are autistic with co-morbid ADHD. Suddenly it all became clear!

In terms of emotional intelligence, as an adult I've always been able to read a room. To the extent that I would instantly know what any underlying issues were between people, who fancied someone, who wasn't quite right. I can also pick up someone's motives and have a particular wariness of inappropriate over familiarity. I can read even the most subtle facial expressions and mannerisms etc. However, I'm not a fan of small talk and am far more comfortable having open, to the point conversations. I can also see both sides of arguments which I found used to really irritate people. Turns out people don't want reason and logic when they just want to vent. Oops. I've learnt the way to phrase things better now and when it best to say nothing!

It took me a long time to reach that point though and properly attune to it if that makes sense? I used to mask a lot (without realising it) which didn't leave much room for concentrating on the behaviour and motives of others.

I was a frighteningly naive child/teen. I'm quite surprised I'm still alive to be honest because I took so many risks without realising they were risks. I moved out at 16, over a hundred miles away, on a complete whim. There were difficulties at home and I was just so desperate to be free. Now my children are of a similar age that absolutely horrifies me.

The realisation that I masked had to be pointed out to me by someone else. I'd made a comment that I'd always been able to blend with different friendship groups, adapting the way I'd speak etc but that I'd always come away feeling very drained and that I happened to notice the difference with a particular set of friends I made. I could just relax and be me and even better they liked me for me and didn't look at me like I had three heads if I just 'was'. It won't surprise you to know that a large proportion of that friendship group are either ND or have ND children.

Sorry, the world's longest post 😬. It's all very present in my mind at the moment for one reason or another. There's loads more I could add and I think I've probably gone off the point you actually asked a bit, sorry.
 
Hi @soph30,
Jumped over from the I'm a celeb thread to reply. Thanks for the link it was a good idea!
So my story in short... I was an extremely hyperactive child who talked incessantly and was probably fairly socially clueless for the most part. I also had extreme emotional outbursts which I now realise were meltdowns. My parents sought the help of a psychologist at one point and he suggested I may have been brain damaged at birth. Nice. My birth was totally bog standard so nothing to suggest that. My parents never went back! Fast forward to now and three of my children are autistic with co-morbid ADHD. Suddenly it all became clear!

In terms of emotional intelligence, as an adult I've always been able to read a room. To the extent that I would instantly know what any underlying issues were between people, who fancied someone, who wasn't quite right. I can also pick up someone's motives and have a particular wariness of inappropriate over familiarity. I can read even the most subtle facial expressions and mannerisms etc. However, I'm not a fan of small talk and am far more comfortable having open, to the point conversations. I can also see both sides of arguments which I found used to really irritate people. Turns out people don't want reason and logic when they just want to vent. Oops. I've learnt the way to phrase things better now and when it best to say nothing!

It took me a long time to reach that point though and properly attune to it if that makes sense? I used to mask a lot (without realising it) which didn't leave much room for concentrating on the behaviour and motives of others.

I was a frighteningly naive child/teen. I'm quite surprised I'm still alive to be honest because I took so many risks without realising they were risks. I moved out at 16, over a hundred miles away, on a complete whim. There were difficulties at home and I was just so desperate to be free. Now my children are of a similar age that absolutely horrifies me.

The realisation that I masked had to be pointed out to me by someone else. I'd made a comment that I'd always been able to blend with different friendship groups, adapting the way I'd speak etc but that I'd always come away feeling very drained and that I happened to notice the difference with a particular set of friends I made. I could just relax and be me and even better they liked me for me and didn't look at me like I had three heads if I just 'was'. It won't surprise you to know that a large proportion of that friendship group are either ND or have ND children.

Sorry, the world's longest post 😬. It's all very present in my mind at the moment for one reason or another. There's loads more I could add and I think I've probably gone off the point you actually asked a bit, sorry.
Ah when were you diagnosed autistic though, as a child or an adult? :)
 
Ah when were you diagnosed autistic though, as a child or an adult? :)
I was just coming back to add that because I realised I'd forgotten to say and it's a really important point. I'm not. The closest I've got is a discussion with the Paediatrician who has diagnosed all of my children and who has 'known' me for nearly 20 years and I obviously had to give a detailed family history during their diagnostic process. The upshot was I am ND (I lean more toward ADHD myself but there must be an autistic element due to the meltdowns. I've also got a lot of sensory issues but they are easy to hide from others) but I've never really seen the point in progressing it.

I actually mentioned on a thread last night that this is the first time in my life I've considered pursuing a diagnosis. It's a hard one. I'd just to know for certain I suppose. I'd have to go private though. I wouldn't feel right taking space in the NHS queue when there are such long waits and there are people who need their diagnosis. Also I'd be a total hypocrite because one of my children keeps asking us to get him assessed but I've so far refused because he's coping. He has friends, he's doing well at school etc. There is no need for him to be diagnosed because he isn't negatively impacted in the way that my other (diagnosed) children are. I'm very much wrestling with my own thoughts at the moment. I don't really feel I fit anywhere without the bit of paper that confirms it I suppose. Sorry, my reply is a bit rambly.
 
I was just coming back to add that because I realised I'd forgotten to say and it's a really important point. I'm not. The closest I've got is a discussion with the Paediatrician who has diagnosed all of my children and who has 'known' me for nearly 20 years and I obviously had to give a detailed family history during their diagnostic process. The upshot was I am ND (I lean more toward ADHD myself but there must be an autistic element due to the meltdowns. I've also got a lot of sensory issues but they are easy to hide from others) but I've never really seen the point in progressing it.

I actually mentioned on a thread last night that this is the first time in my life I've considered pursuing a diagnosis. It's a hard one. I'd just to know for certain I suppose. I'd have to go private though. I wouldn't feel right taking space in the NHS queue when there are such long waits and there are people who need their diagnosis. Also I'd be a total hypocrite because one of my children keeps asking us to get him assessed but I've so far refused because he's coping. He has friends, he's doing well at school etc. There is no need for him to be diagnosed because he isn't negatively impacted in the way that my other (diagnosed) children are. I'm very much wrestling with my own thoughts at the moment. I don't really feel I fit anywhere without the bit of paper that confirms it I suppose. Sorry, my reply is a bit rambly.
I doubt you'd be able to pick up subtle hints of who fancied someone if you were even moderately autistic. This is from a fellow NDer btw, not someone fed media shite :) The meltdowns do sound like autism though- yep get a diagnosis, I'd just add my name to the NHS waitlist as you might get one in like a year
 
I doubt you'd be able to pick up subtle hints of who fancied someone if you were even moderately autistic. This is from a fellow NDer btw, not someone fed media shite :) The meltdowns do sound like autism though- yep get a diagnosis, I'd just add my name to the NHS waitlist as you might get one in like a year
I appreciate your point of view. As I said, there's lots more info, I can't really condense my life into a few posts. If a qualified professional with years of experience is telling me she thinks I am, I should probably take that on board (and it's taken me a long time to admit that). The wait in my area is about two years though and I'm not sure I currently have the energy for the process. Maybe me just quietly accepting it and making sure I use my own personal experiences to improve life for my children is enough.

Edited to add: there's a massive cross over between ADHD and autism as well presentation wise which clouds the picture.
 
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