Sarah & Josh (POG family)

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riley123 said:
Josh has replied back to comments that he will be making another video explaining how they arrived at this decision. Someone actually asked if Sarah could be seen and he, rightfully so, said no but that she can be seen on her previous videos. I can't believe that someone actually asked that.
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Some subscribers are gross, they treat cancer vlogging channels like they are tuning in to soap operas. Why would anyone actually want to see Sarah as she is transitioning?
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riley123 said:
Josh has replied back to comments that he will be making another video explaining how they arrived at this decision. Someone actually asked if Sarah could be seen and he, rightfully so, said no but that she can be seen on her previous videos. I can't believe that someone actually asked that.
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Why does Josh feel like he has to explain to strangers why as a family they have made any decisions? I find it so very sad that he feels the need.
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And Bella needs to give her head a shake




@BellaBella.
Please accept what I'm going to say. We ALL live on after we leave here. Please, please Sarah pray and ask God's forgiveness for your sins. We ALL have sinned! Tell Him you're sorry for your sins and He will instantly forgive you. You will live forever in Heaven with Jesus. I'm so very sorry. I am old and I was once young with young children. You have a beautiful, wonderful family and a loving, caring husband. I hurt for you. I have cried for you. There is a God. We have to answer to Him. The moment we close our eyes here we're in Heaven but only if we have asked His forgiveness. We don't want hell. I just prayed again for you and Jenny Apple and Haley. All of y'all are young with husband's and young children. You're a warrior Sarah. That was my mama's name. She was a warrior too. She's with Jesus now and I'll see her again one day and be with her forever. In fact I'll be with all my family. They loved Jesus too. I don't even know you and I love you. You're my baby girls age.
 
Saydee said:
Some subscribers are gross, they treat cancer vlogging channels like they are tuning in to soap operas. Why would anyone actually want to see Sarah as she is transitioning?
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Why does Josh feel like he has to explain to strangers why as a family they have made any decisions? I find it so very sad that he feels the need.
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And Bella needs to give her head a shake




@BellaBella.
Please accept what I'm going to say. We ALL live on after we leave here. Please, please Sarah pray and ask God's forgiveness for your sins. We ALL have sinned! Tell Him you're sorry for your sins and He will instantly forgive you. You will live forever in Heaven with Jesus. I'm so very sorry. I am old and I was once young with young children. You have a beautiful, wonderful family and a loving, caring husband. I hurt for you. I have cried for you. There is a God. We have to answer to Him. The moment we close our eyes here we're in Heaven but only if we have asked His forgiveness. We don't want hell. I just prayed again for you and Jenny Apple and Haley. All of y'all are young with husband's and young children. You're a warrior Sarah. That was my mama's name. She was a warrior too. She's with Jesus now and I'll see her again one day and be with her forever. In fact I'll be with all my family. They loved Jesus too. I don't even know you and I love you. You're my baby girls age.
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Yup. F off Bella.
 
I’ve been following Sarah’s journey for months now and have been so frustrated by the bad luck that has plagued them every step of the way.

First she went off treatment for 40 days in order to qualify for the NIH study, which allowed the cancer to progress very quickly and aggressively.

Then she got the shingles and NIH canceled on her because they said shingles meant she’d have to be separated from everyone the whole time, which meant they wouldn’t be able to do anything.

Then she was able to speak to NIH some more and succeeded in them allowing her to travel to them for the study. Then just a couple of days before the trip, she had her first seizure and was hospitalized.

Then they take the trip to NIH and they tell her they’re not going to be able to let her participate in the study because the seizure she just had (which they hadn’t completely diagnosed yet) meant there was too big a risk that something would go wrong for something that might potentially not even work.

Then she gets home and reads the results of her newest scans which reveal (as expected) that the cancer had spread dramatically.

Then she goes to her oncologist who tells her she’s got a month to live without treatment and maybe six months with it. The soonest appointment to start her new treatment plan was 10 days away.

THEN she has the massive seizure that puts her in the hospital again. They put her on steroids which means her treatment plan will have to be postponed even longer. By the time she would will be weaned off the steroids, it will have been three whole weeks since she got her one month prognosis for getting now treatment.

She goes home, is a little better for a few days, and then her brain starts to shut down enough that her family realizes hospice would be more compassionate than putting her through a brutal treatment.

It’s just so sad every worst case scenario seems to happen to this family.
 
girlwhowrites said:
I’ve been following Sarah’s journey for months now and have been so frustrated by the bad luck that has plagued them every step of the way.

First she went off treatment for 40 days in order to qualify for the NIH study, which allowed the cancer to progress very quickly and aggressively.

Then she got the shingles and NIH canceled on her because they said shingles meant she’d have to be separated from everyone the whole time, which meant they wouldn’t be able to do anything.

Then she was able to speak to NIH some more and succeeded in them allowing her to travel to them for the study. Then just a couple of days before the trip, she had her first seizure and was hospitalized.

Then they take the trip to NIH and they tell her they’re not going to be able to let her participate in the study because the seizure she just had (which they hadn’t completely diagnosed yet) meant there was too big a risk that something would go wrong for something that might potentially not even work.

Then she gets home and reads the results of her newest scans which reveal (as expected) that the cancer had spread dramatically.

Then she goes to her oncologist who tells her she’s got a month to live without treatment and maybe six months with it. The soonest appointment to start her new treatment plan was 10 days away.

THEN she has the massive seizure that puts her in the hospital again. They put her on steroids which means her treatment plan will have to be postponed even longer. By the time she would will be weaned off the steroids, it will have been three whole weeks since she got her one month prognosis for getting now treatment.

She goes home, is a little better for a few days, and then her brain starts to shut down enough that her family realizes hospice would be more compassionate than putting her through a brutal treatment.

It’s just so sad every worst case scenario seems to happen to this family.
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Its the reality for many stage 4 cancer patients.
 
Josh published a video of them slow dancing, I guess it was taken a few days ago. In the video she's not talking, looks a little lost... sister and her husband are dancing too, the cheerful energy going on feels a little forced but I guess Josh is trying to reassure the viewers that Sarah is being surrounded by love and positivity each step of the way.
 
AhoraM said:
Josh published a video of them slow dancing, I guess it was taken a few days ago. In the video she's not talking, looks a little lost... sister and her husband are dancing too, the cheerful energy going on feels a little forced but I guess Josh is trying to reassure the viewers that Sarah is being surrounded by love and positivity each step of the way.
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It's hard to watch
 
suzeq said:
I also felt it wasn't loving to push her to answer the questions. If word-find or expression is difficult, I see no benefit to press her for answers. If it's going to get worse as disease progresses, why demand something she's incapable? We wouldn't do it with a stroke patient. He could have thrown out suggestions so she didn't have to struggle. When he said "root beer float", she immediately said yes, so I get the sense it is aphasia.

She needs gentleness and patience. I would not want to upset her by highlighting and pressing her for things she cannot easily do. It can be agitating and stressful. It might have precipitated a seizure if she was struggling.

It should have had a trigger warning.

I was very uncomfortable, in addition to questions of her ability to consent. It may or may not be simply an articulation issue, not cognitive capacity though.
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She cannot consent!
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SueB said:
I fear Sarah may not have long with the increase of these seizures. She’s upset about not being able to write cards etc for her children and personally I think her remaining time would be much better spent away from the camera and with her family. I’m guessing she is on steroids loom8mg at her face- personally they messed me about terribly and I could barely think straight when I was on the high doses ( when I had total colitis).

I’m also not sure what the push for fundraising is currently for under the circumstances? Are they having to pay for the immunotherapy she needs? I wonder whether she is going to be well enough to have that, I certainly don’t think she is well enough for Disneyland etc. It’s so bl**dy cruel, isn’t it? Jenny is also look8mg very disabled now, It heartbreaking for both families. They are both so young with so much to give.

I have to say that Josh irritates me far more than Matt ever did ( I don’t watch Tiffany anymore,).
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Jenny is also looking very disabled now? Jenny looks good in the family photos on vacation.
 

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AhoraM said:
Josh published a video of them slow dancing, I guess it was taken a few days ago. In the video she's not talking, looks a little lost... sister and her husband are dancing too, the cheerful energy going on feels a little forced but I guess Josh is trying to reassure the viewers that Sarah is being surrounded by love and positivity each step of the way.
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Josh said in a comment it was filmed last night when he was walking get back to bed. He said he plays that song for her a lot and sings.

It was a sweet moment but maybe too sad because while I'm glad she can still walk she is just so not there.
 
The vid of him holding her up and dancing was too much. Somehow I doubt Sarah is able to consent to such stuff being filmed now. It was intrusive and she looked a bit like a marionette being moved about. Time to go private. IMO, this was not in good taste.
 
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