Jenny Apple #4 Tears & Ears!

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I don't know how I feel about her team. Kyle said they were notified that her breathing was getting quite bad the past several days. Her team was "concerned." Does anyone think the CoH docs are suprised that the cancer has taken over completely or did they assume it but not order a more recent CT and were trying to be optimistic? It seems that she and Kyle are shocked that the ending is so close. The video with 6-9 mos was posted mid July so it's been about 3 1/2 months.
 
riley123 said:
I don't know how I feel about her team. Kyle said they were notified that her breathing was getting quite bad the past several days. Her team was "concerned." Does anyone think the CoH docs are suprised that the cancer has taken over completely or did they assume it but not order a more recent CT and were trying to be optimistic? It seems that she and Kyle are shocked that the ending is so close. The video with 6-9 mos was posted mid July so it's been about 3 1/2 months.
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i know
 
c.sabatier said:
Maybe Jenny was being fitted with a catheter to take care of urine. Kyle had never told the audience that the left lung was mostly tumor before the live broadcast. Maybe he knew it earlier but had not told Jenny about it.
The one success was the proton therapy, as Jenny has her full consciousness and personality minus the effects of the pain medication.
Live filming in this time of extreme distress may diffuse the gravity of the situation. She may be in a coma before she passes. Her entire family should spend time with her while she is still conscious.
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2 weeks ago she had the brain MRI and they said her brain was better than they expected. She had the last chest CT 6 weeks ago and Kyle said a few more nodules and fluid in the right lung. They haven't talked about him draining her left lung much lately so maybe with it all being tumor there wasn't much fluid to drain.

Is just so sad that she went thru that bullshit clinical trial when she was so close to death.
 
The live feed came back and he was out of the room for a time because they were changing Jenny etc. The children were allowed back in and her sister was too but not him. Maybe it is because he refused to put down the camera?

I bet the sister said something when he was gone or the cousin Tracie because when he did get back in and shoved the camera in her face saying "your peeps want to talk to you" she said my uncle and cousin Tracie are coming so we will end the video here.

I think the family might be catching on.
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TryingMyBest said:
2 weeks ago she had the brain MRI and they said her brain was better than they expected. She had the last chest CT 6 weeks ago and Kyle said a few more nodules and fluid in the right lung. They haven't talked about him draining her left lung much lately so maybe with it all being tumor there wasn't much fluid to drain.

Is just so sad that she went thru that bullshit clinical trial when she was so close to death.
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Absolutely. Someone has dropped the ball that all of a sudden her left lung is totally tumour with all the scans?? Someone is lying somewhere.
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Monkey1651 said:
I haven’t watched it. Did they really say they will intubate her and put her on a vent? She is dying of terminal lung cancer. They know she is dying. She will never come off a vent if they put her on. Why would they do that? Let her die with some dignity left.
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Blobby likely making that up. But the fact they haven't specified that she hasn't agreed to hospice care i.e. no intervention who knows in this whole mess. Sure blobby said 3 days ago she was doing so much better while they were pumping her full of a "trial drug" when the woman was barely conscious! ! Now 3 days later she is dying with a left lung almost completely taken over by cancer! Someone is telling absolute porkies.
 
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riley123 said:
I don't know how I feel about her team. Kyle said they were notified that her breathing was getting quite bad the past several days. Her team was "concerned." Does anyone think the CoH docs are suprised that the cancer has taken over completely or did they assume it but not order a more recent CT and were trying to be optimistic? It seems that she and Kyle are shocked that the ending is so close. The video with 6-9 mos was posted mid July so it's been about 3 1/2 months.
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We could all see her obvious decline. I can't believe her medical team didn't also see it. Of course, we only hear Kyle's version of the medical news. Who knows what was said and when? Kyle, I think, always tried to sugarcoat things in front of Jenny.
 
A couple of weeks ago Kyle said Jenny was being sent for a chest xray to rule out a pulmonary embolism. I privately queried that. Why? My husband was gasping for breath, couldn't exert without panting, had low oxygen sats (hypoxia) and chest pain. Xray showed nothing suspicious but his oncologist then sent him for a CT Angiography which showed a large PE in his left lung in the bronchus middle lobar and right lower lobar arteries and bilateral lower lobe segmental arteries. He was put on daily blood thinners Enoxaparin.
Why Jenny was being specifically sent for Xray to look for PE is strange. CT Angiography is the standard.
This means Jenny has likely had a pulmonary embolism for over 2 - 3 weeks untreated?
Jenny did complain about a new pain in her chest, and Kyle was passing it off as perhaps her pleural effusion drying up.
Jenny shouldn't be on cam struggling to breathe. Her doctor said its likely going to get worse? It doesn't need to get worse, there are drugs to help.

Someone asked earlier if Jenny could have taken blood thinners to prevent a pulmonary embolism (blood clots in the lung). Blood clots in the lungs are actually very common in end stage cancer. Patients become less mobile and end of with DVT's/ PE's. Cancer itself causes sticky blood.
Taking a blood thinner to prevent it can cause more harm than good. Low platelets, risk of internal bleeding. Blood thinners are prescribed to patients who have had DVT's in the past.
 
Saydee said:
A couple of weeks ago Kyle said Jenny was being sent for a chest xray to rule out a pulmonary embolism. I privately queried that. Why? My husband was gasping for breath, couldn't exert without panting, had low oxygen sats (hypoxia) and chest pain. Xray showed nothing suspicious but his oncologist then sent him for a CT Angiography which showed a large PE in his left lung in the bronchus middle lobar and right lower lobar arteries and bilateral lower lobe segmental arteries. He was put on daily blood thinners Enoxaparin.
Why Jenny was being specifically sent for Xray to look for PE is strange. CT Angiography is the standard.
This means Jenny has likely had a pulmonary embolism for over 2 - 3 weeks untreated?
Jenny did complain about a new pain in her chest, and Kyle was passing it off as perhaps her pleural effusion drying up.
Jenny shouldn't be on cam struggling to breathe. Her doctor said its likely going to get worse? It doesn't need to get worse, there are drugs to help.

Someone asked earlier if Jenny could have taken blood thinners to prevent a pulmonary embolism (blood clots in the lung). Blood clots in the lungs are actually very common in end stage cancer. Patients become less mobile and end of with DVT's/ PE's. Cancer itself causes sticky blood.
Taking a blood thinner to prevent it can cause more harm than good. Low platelets, risk of internal bleeding. Blood thinners are prescribed to patients who have had DVT's in the past.
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IMO Jenny needs a syringe driver where her meds Inc breathing relief and everything else can be controlled. Enough messing about with no hospice care and being dragged from pillar to post. And stop the filming and concentrate on real time with family and loved ones. Put that blasted camera away. Please! From someone who has lived this. There are precious days ahead. Live them.
 
Note to self: in the event of end stage terminal cancer, resist the natural inclination to become part of a clinical trial. It seems to have stolen precious time from both Sarah and Jenny. As a former hospice nurse, watching how this has played out is maddening. These last days and weeks and probably months could have been so so so so much better qualitatively for them all. So very sad. The purpose of clinical trials is research treatment efficacy on human beings. That usually has a lot of failed attempts before any success. No thank you for me or my loved ones. 😢
 
Saydee said:
A couple of weeks ago Kyle said Jenny was being sent for a chest xray to rule out a pulmonary embolism. I privately queried that. Why? My husband was gasping for breath, couldn't exert without panting, had low oxygen sats (hypoxia) and chest pain. Xray showed nothing suspicious but his oncologist then sent him for a CT Angiography which showed a large PE in his left lung in the bronchus middle lobar and right lower lobar arteries and bilateral lower lobe segmental arteries. He was put on daily blood thinners Enoxaparin.
Why Jenny was being specifically sent for Xray to look for PE is strange. CT Angiography is the standard.
This means Jenny has likely had a pulmonary embolism for over 2 - 3 weeks untreated?
Jenny did complain about a new pain in her chest, and Kyle was passing it off as perhaps her pleural effusion drying up.
Jenny shouldn't be on cam struggling to breathe. Her doctor said its likely going to get worse? It doesn't need to get worse, there are drugs to help.

Someone asked earlier if Jenny could have taken blood thinners to prevent a pulmonary embolism (blood clots in the lung). Blood clots in the lungs are actually very common in end stage cancer. Patients become less mobile and end of with DVT's/ PE's. Cancer itself causes sticky blood.
Taking a blood thinner to prevent it can cause more harm than good. Low platelets, risk of internal bleeding. Blood thinners are prescribed to patients who have had DVT's in the past.
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I went in the ER for high pulse and blood pressure and because I'm a 2 time cancer patient they did the CT angio. Jenny's care seems a tad iffy.
 
TryingMyBest said:
I went in the ER for high pulse and blood pressure and because I'm a 2 time cancer patient they did the CT angio. Jenny's care seems a tad iffy.
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It really does. Someone isn't telling the truth! Maybe pharma money pushing trial drugs 3 days ago and all of a sudden Jenny is actively dying? I thought end of life cancer care in the UK was bad but this is surreal!
 
TryingMyBest said:
You always say something snide about my posts.

I stick with my post. She's weird.
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Criticizing someone about her attitude to her own death is so bizarre and funny, I just felt I had to make that comment. Sorry, it wasn't personal.
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In my country children as young as Ellis and Winnie are not allowed to visit a patient, let alone a dying patient. I start to think, this is actually a good idea.
 
abitworried said:
Criticizing someone about her attitude to her own death is so bizarre and funny, I just felt I had to make that comment. Sorry, it wasn't personal.
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In my country children as young as Ellis and Winnie are not allowed to visit a patient, let alone a dying patient. I start to think, this is actually a good idea.
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It is a good idea to involve children in this process. And indeed here in Ireland to have a wake where the dead person is brought home and children see the dead person in an open coffin. But the idea of anyone filming that , whilst I don't think it is illegal, would never happen. This is an extremely private time. As are the days and hours leading up to that final moment. They aren't coming back you know. Whether a king or Queen or a President. No matter how important you are death is death and not for pounds and dollars on You Tube. Disgraceful.
 
Bassethoundmama said:
And she's going to go live again later. How do the viewers not find this vile? Live Streaming Her Death is essentially what she's doing
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I am pretty sure there will be a camera rolling at her last breath...that is how low I think Kyle is and the sister seems to just go along with it.
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Bassethoundmama said:
Yeah who was she talking to? And it seems as though Kyle doesn't want to work? Why on earth are they just now having these conversations?!?

And mentioning Jenny has a list for Kyle, Ellis and Winnie to do? Another tug on the heart strings for $. Winnie's cough, she sounds sick poor little bug.
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Winne seems to have a pretty productive cough and probably very run down.
 
Bassethoundmama said:
And she's going to go live again later. How do the viewers not find this vile? Live Streaming Her Death is essentially what she's doing
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I am not a frequent poster here, but I completely agree with this. I only saw the initial part of today's live stream and it was so disturbing. That is just recorded trauma for her children to endure. Enough already. Her husband needs to take control and say No More to filming her dying.
 
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Did anyone see this on a video from a few days ago? Honestly, the mind boggles.
 
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