Tiffany Thinks #8

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Saydee said:
I know that. The fortisip she is prescribed is liquid food which is high in calories and nutrients. What would be the benefit of them stopping that prescription and changing to TPN? Tiffany had TPN when she had C diff, she doesn't have C Diff now, she is capable of eating and drinking. She's prescribed liquid food.
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Have you ever taste Fortisip? The taste is horrible and T. has to drink a couple of these bottles a day. Shiver.
 
Anxious4life said:
Just an FYI as I find it strange (not bad at all, au contraire, but different!). Where I live, unless you're a child or somehow incapable of understanding what might be said (due to cognitive issues of whatever kind), you attend all your meetings alone.

Heck, my husband didn't even accompany me to the hospital, he was working. Now I gotta wonder does he even love me 🤔
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Yeah and that is no reflection on your husband :)
I see many patients alone on the medical oncology unit and in the cancer center. A patient having a relative stay with them overnight is rare because its not usually allowed. I was always kicked out at the end of strict visiting hours. Even when he was in high dependency unit. Each night the doctor always told me to just have my ringing on my phone switched to on, and if anything changed he would call me.

Idrisrex said:
Have you ever taste Fortisip? The taste is horrible and T. has to drink a couple of these bottles a day. Shiver.
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Yeah I have. Thats why they have several brands of liquid nutrition available. Ensure is another available on the NHS.
 
EmyUrban said:
The only change is the suspicious thickening higher than the initial tumour, that was not there before .
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I know but I meant the attitude changed. Now the surgery is a must but 10 weeks ago it wasn't. Was the surgeon himself expecting that there would be no progression and they would just repeat the watch and wait? I know he is a renowned specialist but cancer is unpredictable sometimes.

BCrowl said:
I was just watching “The Patient Story” on YouTube. They were interviewing this lady Joanne, who had Stage 3 colorectal cancer. She had the same treatments as Tiffany. They had thought she would need surgery, but her tumor really responded to the chemo. The tumor kept shrinking, and after chemo, it disappeared. So she told the surgeon she would prefer watch an wait. She has to get checked every month for 5 years.
She would always get her test results a day later. Her medical team already made a plan as to what to do.
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I will watch this. Thanks for sharing.
 
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Saydee said:
If Tiffany had cachexia she wouldn't be having surgeries and biopsies. Nutrition does not help cachexia.

If tiffany had low hemoglobin it would be investigated and reversed before surgery.
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Surgery was in the wait and see region for 8 months were nothing was done in case surgey was somewhere “ near the horizon”. Probably Tiffany did not want it even if she claims lately she did.
Regarding cachexia , “ The current definition of cancer cachexia is a loss of 5% or more of body weight over the preceding 6 months, accompanied by any of a handful of other symptoms, including fatigue and reduced strength.
Regarding the stage of cachexia, “
What stage of cancer is cachexia..
“People with early stage cancers don't usually get cachexia. Up to 8 out of 10 people with advanced cancer (80%) develop some degree of cachexia. Cachexia in advanced cancer can be very upsetting. You can feel very weak and less able to do things”.
“ Cancer can cause chronic inflammation in your body that can lead to cachexia. Cachexia happens when there is an imbalance in how your body metabolizes, or absorbs and uses, the food you eat. It causes severe weight loss, weakness, and fatigue”.
“ Caring for the cachectic patient presents a frustrating and recurring dilemma. Cachexia is defined as ongoing weight loss, often with muscle wasting, associated with a long-standing disease. In cachexia, refeeding often does not induce weight gain.”

LeonorG said:
I doubt Tiffany's haemoglobin is good. She has been bleeding for months and we don't know if anything has been done about that. She must be severely anemic.
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Exactly, bleeding for months.
 
Anxious4life said:
Just an FYI as I find it strange (not bad at all, au contraire, but different!). Where I live, unless you're a child or somehow incapable of understanding what might be said (due to cognitive issues of whatever kind), you attend all your meetings alone.

Heck, my husband didn't even accompany me to the hospital, he was working. Now I gotta wonder does he even love me 🤔
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It is always wise and encouraged to bring another person to important consultations when dealing with medical issues. Not sure where you live but i think it is the same all over.
 
Turaj said:
It is always wise and encouraged to bring another person to important consultations when dealing with medical issues. Not sure where you live but i think it is the same all over.
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They literally don't allow it, I was once present when one woman barely managed to persuade a surgent to let her get inside with her older mother whom she said was in the early dementia stage, but not yet diagnosed. I live in Eastern Europe.
 
LeonorG said:
Disagree with the first part. She knew way back what the surgery was about. She mentioned its life-changing effects back in May (or even before that). I think what happened is that in line with the August results, the doctor proposed 3 options, one of them immediate surgery and the other watching and waiting. When Tiffany heard 'watching and waiting', she started to believe that she is cancer free and chose that option.
Yes nothing makes sense. Now it seems the operation is imminent and she understands that but back in August there was no massive push for the surgery. I don't get what changed. The tumour was still there 10 weeks ago. We will never understand without hearing the actual surgeon's words.
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Thats what I said in the first part, that Tiffany refused surgery after been informed by the doctor of the extreme life changes that meant. She knew exactly what the surgery was about because in one of her videos in August she said “ surgery will bring many life changes, is it worth it?

Turaj said:
It is always wise and encouraged to bring another person to important consultations when dealing with medical issues. Not sure where you live but i think it is the same all over.
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I followed a young girl’s journey with cancer in youtube, from the Netherlands. She is very young in her early tweeties. She lives alone and I was surprised to see that when she was diagnosed with cancer, she attended all her scans and treatments in the hospital either with friends or alone. She has both her parents who are healthy, a brother, she says they are a close family but I never saw her mother accompanying her in the hospital, or helping her around her flat the days she felt really awful. I don’t know if this is normal in the Netherlands for parents to be detached but it made me feel bad for the girl. She relied mostly on her friends. Compared to poor Amma who is so dedicated to her daughter, spoils her yes, but she is a loving self sacrificing mother. Amma wins.
 
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Ionia said:
Thats what I said in the first part, that Tiffany refused surgery after been informed by the doctor of the extreme life changes that meant. She knew exactly what the surgery was about because in one of her videos in August she said “ surgery will bring many life changes, is it worth it?



I followed a young girl’s journey with cancer in youtube, from the Netherlands. She is very young in her early tweeties. She lives alone and I was surprised to see that when she was diagnosed with cancer, she attended all her scans and treatments in the hospital either with friends or alone. She has both her parents who are healthy, a brother, she says they are a close family but I never saw her mother accompanying her in the hospital, or helping her around her flat the days she felt really awful. I don’t know if this is normal in the Netherlands for parents to be detached but it made me feel bad for the girl. She relied mostly on her friends. Compared to poor Amma who is so dedicated to her daughter, spoils her yes, but she is a loving self sacrificing mother. Amma wins.
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yes I have followed Romee and she has an unusual relationship with her parents but I think they were there for her when she wanted. She stayed with them for some time during treatments etc. She seems like a real success story and hope the cancer is gone forever.
 
Turaj said:
yes I have followed Romee and she has an unusual relationship with her parents but I think they were there for her when she wanted. She stayed with them for some time during treatments etc. She seems like a real success story and hope the cancer is gone forever.
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Yes Romee, lovely girl. Other viewers were also commenting about her absent parents, surely we did not see the dedication to their child we see in other families with children going through cancer.
Romee had an unsuccesful stem transplant but gladly she seems to be doing fine now. Luckily she has Hodgkin’s Lymphoma that has high cure rates,
 
Ionia said:
I followed a young girl’s journey with cancer in youtube, from the Netherlands. She is very young in her early tweeties. She lives alone and I was surprised to see that when she was diagnosed with cancer, she attended all her scans and treatments in the hospital either with friends or alone. She has both her parents who are healthy, a brother, she says they are a close family but I never saw her mother accompanying her in the hospital, or helping her around her flat the days she felt really awful. I don’t know if this is normal in the Netherlands for parents to be detached but it made me feel bad for the girl. She relied mostly on her friends. Compared to poor Amma who is so dedicated to her daughter, spoils her yes, but she is a loving self sacrificing mother. Amma wins.
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Romee! Many of us followed her. Yes she is very independent and self-sufficient in comparison to Tiffany who needs to be babied by everyone. And Romee is much younger, only 24. Parents in Holland are not 'detached'. They are loving but they definitely don't baby their adult children. I find the way Tiffany's family and Matt treat her not normal and definitely not representative of Europe (I see the UK as part of Europe. It is geographically anyway). Romee has many close friends and they helped her. I'm sure her parents helped her too, they just did not appear on vlogs that often. Romee does not force them to be on camera unlike Tiffany who does not understand boundaries.
 
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LeonorG said:
Romee! Many of us followed her. Yes she is very independent and self-sufficient in comparison to Tiffany who needs to be babied by everyone. And Romee is much younger, only 24.
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Yes Romme, what a lovely girl and much younger than Tiffany. Yes independent and self sufficient because she is not pampered but honestly I prefer Amma than Romee’s mother. She should have accompanied her young daughter with cancer to hospital visits and treatments, not Romee’s friends. I found that odd.
 
Ionia said:
Yes Romme, what a lovely girl and much younger than Tiffany. Yes independent and self sufficient because she is not pampered but honestly I prefer Amma than Romee’s mother. She should have accompanied her young daughter with cancer to hospital visits and treatments, not Romee’s friends. I found that odd.
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But why? If Romee preferred to go with her friends? She is a young adult and I'm sure she prefers to be independent. Not everyone is stuck to their parents. And with Tiffany, it's more extreme. She is treated like a spoilt child. It's not healthy.
 
Ionia said:
Thats what I said in the first part, that Tiffany refused surgery after been informed by the doctor of the extreme life changes that meant. She knew exactly what the surgery was about because in one of her videos in August she said “ surgery will bring many life changes, is it worth it?



I followed a young girl’s journey with cancer in youtube, from the Netherlands. She is very young in her early tweeties. She lives alone and I was surprised to see that when she was diagnosed with cancer, she attended all her scans and treatments in the hospital either with friends or alone. She has both her parents who are healthy, a brother, she says they are a close family but I never saw her mother accompanying her in the hospital, or helping her around her flat the days she felt really awful. I don’t know if this is normal in the Netherlands for parents to be detached but it made me feel bad for the girl. She relied mostly on her friends. Compared to poor Amma who is so dedicated to her daughter, spoils her yes, but she is a loving self sacrificing mother. Amma wins.
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Yes, that is quite normal here. Young people are quite mature in the Netherlands and Romee is already 25 years old. And maybe she just preferred to be accompanied by her best friend.
 
Ionia said:
Thats what I said in the first part, that Tiffany refused surgery after been informed by the doctor of the extreme life changes that meant. She knew exactly what the surgery was about because in one of her videos in August she said “ surgery will bring many life changes, is it worth it?



I followed a young girl’s journey with cancer in youtube, from the Netherlands. She is very young in her early tweeties. She lives alone and I was surprised to see that when she was diagnosed with cancer, she attended all her scans and treatments in the hospital either with friends or alone. She has both her parents who are healthy, a brother, she says they are a close family but I never saw her mother accompanying her in the hospital, or helping her around her flat the days she felt really awful. I don’t know if this is normal in the Netherlands for parents to be detached but it made me feel bad for the girl. She relied mostly on her friends. Compared to poor Amma who is so dedicated to her daughter, spoils her yes, but she is a loving self sacrificing mother. Amma wins.
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I know who you mean, it's Romee. People are more independent in the Netherlands, it's also very common for young people (like about 18 years old) to live on their own and pay their own education. I don(t think that's a bad thing, you just grow up very fast. I live in Belgium and my 17 year old daughter goes to Spain next week for a few months, to do an internship. She travels by her self, rented a studio, no big deal (don't know what you guys think about this in the UK)... I told her you don't have to call me every day, no news is good news, I'm not worried at all.
 
LeonorG said:
But why? If Romee preferred to go with her friends? She is a young adult and I'm sure she prefers to be independent. Not everyone is stuck to their parents. And with Tiffany, it's more extreme. She is treated like a spoilt child. It's not healthy.
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Yes Tiffany’s case is extreme, but Romee’s case is extreme too imo. We are talking about cancer in their young daughter, not going shopping to the Mall. Personally I would be at my daughter’s side and Im sure most mothers would.
 
H&N said:
I know who you mean, it's Romee. People are more independent in the Netherlands, it's also very common for young people (like about 18 years old) to live on their own and pay their own education. I don(t think that's a bad thing, you just grow up very fast. I live in Belgium and my 17 year old daughter goes to Spain next week for a few months, to do an internship. She travels by her self, rented a studio, no big deal (don't know what you guys think about this in the UK)... I told her you don't have to call me every day, no news is good news, I'm not worried at all.
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Yes must be differences culture wise. I guess we in southern Europe see things differently
 
Ionia said:
Yes Tiffany’s case is extreme, but Romee’s case is extreme too imo. We are talking about cancer in their young daughter, not going shopping to the Mall. Personally I would be at my daughter’s side and Im sure most mothers would.
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She's 30 years old, I wouldn't take my mother either to the hospital when I was 30 or younger. I like my privacy; But it's different for everyone and that's fine. I couldn't live with my mother in the same house either, and Tiffany seems to have no problem with that (and Matt). But I think in their cas it's a matter of money??
 
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