I've emailed Tiffany and offered her so much support but she ignores me, so I've given up. She has my contact details if she ever decides to contact me.
I was one of those really pushing her to get a second opinion when she said she'd been advised to wait, the phrase that really concerned me during that video was Matt kept taking about 'risk Reward' and Tiffany really got angry in the following video. Several people including myself said that Matt- lovely as he is- doesn't know enough about this subject to make such a comment.
I've seen someone say here that the surgeon Tiffany has is one of the best in the world, but I don't agree. I think he is lacking experience in this type of case and hence is hesitating and maybe not giving the best advice. Tiffany seems to worship him- yet all he's done is her first EUA with biopsy and tell her she's lovely ( which she is), and he'll look after her like she's his sister. I think there's a cultural thing here that Tiff is clinging to.
As a retired nurse and from my own similar experience, I believe St Marks Harrow is the best place for Tiffany to receive surgery. The wards are not great I'll admit, but the surgery is top notch. The experience there in these complicated cancers is insane. I had the Professor operate on me- the nurses choice at St Marks . I always ask the specialist nurse 'who would you choose' whether for me or if was accompanying someone else to appointments. The specialist nurse team there is also outstanding. You need them after this type of life-changing surgery!
My large tumour- which was at the join of the small to the large intestine ( and starting to cause a blockage)- was removed with the aid of a robot laparascopically during an almost 10 HR op. Leaving only a couple of tiny scars .They created an ileo-anal pouch (J-pouch) for me ( giving me a temporary ileostomy) . That was reduced at 5 months so I have no bag on my stomach. I had over 20 lymph nodes removed and was lucky to have no Ca involvement, but 6 yrs later developed an unrelated cervical cancer. Due to my age and being 'unlucky' in their words, during a colab between St Bart's, the Royal London and St Marks I had further surgery to remove my uterus, ovaries and more lymph nodes. This was a large team of surgeons ( who had to coordinate their diaries) but I was done and dusted in just under 6 weeks despite having a less worrying Ca stage than Tiffany. They found some cancer cells in one lymph node so I went on to radiation therapy with a weekly chemo session. That was 7 years ago.
Obviously my bladder wasn't involved which makes it less complicated.
I've shared all this with Tiffany. I've been an advisor with the NACC for over 10 yrs and have so much I could help her with, or she could contact them durect- but she doesn't want to know.
One thing her sister mentioned during that vlog in the car was that they have to take muscle from Tiffany's thigh to replace her abdo muscle, suggesting the cancer is now possibly involving the mesothelial membrane( peritoneal membrane) and maybe musculature. Pretty serious spread imo . There was also talk of involvement with the blood supply. It's a lot for her to take in.
She hasn't mentioned the thigh muscle herself, but she is so tiny I think this surgery is going to be a complicated struggle for this surgeon- and a few weeks of extra calories isn't going to make it any easier.
I'm really torn about Tiffany: the babyish talk, behaving like a princess at times, the talk of the 'I'm cancer free, I'm cancer free' boomerang and 'tick tick tick' irritate the hell out of me. As do the repeated stock phrases ' I always say when we go to the hospital we have to wear our 'we got this tshirts' . The constant pushing of the overpriced merch and the immature obsession with friends, PJ's etc. However her family is absolutely wonderful ( as is Matt- I wish my daughter's ex who dumped her as soon as she got sick with MS had been more like him!) They all clearly adore her which speaks to her character , and I do think she is a sweet, kind and devout young woman - I only wish her the best.
The oncology and radiotherapy did a great job but this surgeon- needs to do better, imo.