Tiffany Thinks #13

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Fluffy just posted a couple more:
 

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KarinaBallerina said:
I watched a lot of her old Youtubes recently, and it appears she was treated for bowel "inflammation" as she called it, which would most likely be IBD. She also showed herself consuming a typical UC/Crohn's diet that some IBD specialists recommend when we are in a bad flare. She mentioned some meds, too, which sounded like Crohn's/UC meds (Cortifoam being one), so I assume she's had lots of colonoscopies over the years, particularly since she had "tummy" surgeries, as she calls them. The thing is, with UC and CD, it can be very hard to diagnose cancer because the mucosa lining of a CD/UC patient may not look like a non-IBD person's. Bear in mind that there is lots of footage to biopsy, and if a GI doesn't biopsy the exact right spot, he/she can easily miss the cancer. My former IBD specialist used to do 20 biopsies during a colonoscopy and 5-7 in the stomach during a gastroscopy with every routine scope, done once every year or two (more if there was a flare). The new doctor I have does only 5 during a colonoscopy and 2-3 during a gastroscopy in the stomach. It's very easy to miss something then.
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I agree it’s possible to miss something during colonoscopy and it’s even worse with IBD patients but she had a huge tumor, low lying, she probably had no colonoscopies for years for the tumor to get this big … Cannot become so huge in less than a year or two I guess, even if it’s a bit agressive and even if she is young …

ginnyw said:
Me and vaginas? That's an unlikely match, seeing as how I'm an old married woman, HA!
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Oh sorry I was speaking about Pankhurst posts, and Matt’s phobia of vaginas HA! 🤣 but I didn’t answer to the right post I don’t know what I did sorry, my mistake …
 
PuzzlesAndWine said:
I agree, I just don't see how this surgery is supposedly in a matter of days. There HAS to be sooo much she isn't sharing. From what I witness of her on the vlogs, I see no possibility she's ready for this. It's very sad, really.
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I speak to admin of the kidney cancer support group. A charity called action kidney cancer, which have helped me and my husband navigate his treatment pathways over the last few years. Action Kidney cancer actually have NHS nurses work for them (volunteer work). The charity work alongside the NHS as a 'middleman' between the patient & NICE.
In the past when I have questioned how often my husband should be having scans, I was sent articles from the charity nurses to explain which guidelines the NHS follow. In my husbands case its the European association of oncology and the NHS stick to the guidance provided.
This week in a convo I asked what the guidelines are for PE in Ts case (rectal) and the nurse emailed me the article I posted earlier in this thread.
If guidelines are being followed. T should have met a stoma nurse by now? The section I have copied the below from is on the basis of the patient having 2 stomas.



The first appointment will be to counsel the patient in having two stomas, or less often a Carter stoma. This includes discussing the post-operative pathway and what the patient should expect, along with ensuring the patient is fully aware of what a stoma is, types of stomas, associated care, and types of available and suitable pouches (e.g., open vs. closed pouch). Relevant literature and practice kits are given to the patient and referral for psychological support is offered if deemed required.

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The second appointment is on the day of admission, routinely the day before the surgery, where any further questions from the patient are answered and the ideal stoma site is marked on the patient's abdomen. This is a very important element of the pre-operative preparation, as the patient will most likely have two permanent stomas and, therefore, sensible consideration needs to be given to the optimal stoma sites [92], ensuring sufficient abdominal area to position two pouches and the patient being able to see both stoma sites [93].
 
LeonorG said:
Yes that's what I was thinking. Lisette is empathetic and gentle. I guess this is Fluffy's tactic to guilt trip Lisette and lure her away from us 😅 Also, not sure if Fluffy is a jokester or is being serious.
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Original Fluffy is quite soft underneath, I think. But now it's difficult over there because there appear to be some other Fluffies (can't believe I am writing this!) who are quite vicious.
 
Well I'm sorry but I have had enough of this pathetic creature who thrives on the attention and plays to the crowd.
Her pain is obviously quite well managed but until you have been screaming and crying in agony, scared for your life and a little nurse comes along, holds your hand and sorts out your dignity because your skirt has risen up in trying to get you in and out of an ambulance when you are fighting them off because of the pain and fear, then she needs to wake up and smell the coffee.
At the moment she is still quite able bodied and she should be researching what to and not to eat, masking up and going for walks in the fresh air. Not swanning around Costco and eating nachos. She is her own worst enemy.
 
truthspeak said:
*disclaimer TMI questions *

Sorry I’d like to ask and sorry to offend anyone who may have the same or similar condition to TT. I’m not sure how much is too much to ask.

Can anyone answer these queries I have and honestly ok and understandable if noone wants to or can’t;


When you use the bathroom bottom/ rear end, is it normal excretion without pain? Or is it loose stools all the time?

Is it just normal but bloody?
Or is it with pain and / or constipation?
Does Someone with TT‘s cancer go to the toilet daily?
Also with the urination, is it pain free?

I’m trying to understand how cancer sufferers lose weight and if the pain is only around abdominal areas and nowhere else?

Is it just fatigue and loss of appetite that causes weight loss? I realise there may be vomiting causing this too, so maybe this question has been answered.


jackolantern said:
How many actually think the surgery will go ahead? I'm in camp no. Although I can't decide if it's because she'll refuse last minute or her disease will become too advanced (or already be that way).
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I cant see it happen in december, and I am now sure how long this surgery can be deferred for? If there is thickening in her colon, her disease is on the move and she's not had any recent treatment to keep it stable (at best). I will never understand why she was allowed to watch and wait and not have any treatment for months. She had to have a second lot of chemo to try keep disease stable while her surgeon needed time to "Put a plan together". Unless there is no treatments left for Tiffany and the ones they have available haven't helped? It could be a funding issue too. NICE are very strict!
For kidney cancer they have around 14/15 different treatments which range from immunotherapy & various TKIs. NICE will only fund 3 treatments. 1st/2nd & 3rd line. After that they won't fund further treatments.
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ginnyw said:
OMG - in response to a kind nurse who recommended that Tiffany avoid crowds, hugging, shopping etc Fluffy has just said this - I am in shock. SHE IS HAVING A GO AT NURSES??????!!!!!

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fluffy fox 🦊
1 hour ago
God will protect Tiffany from becoming ill before surgery. Have more kindness and faith if you want to help her. You nurses can be real bullies.
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Fluffy is actually an embarrassment to all foxes.
 
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