His tummy being sore isn't just a recent. His gastrostomy site has been sore constantly for years. He has one of the worst looking sites I have seen. Infected. Sore to the point of his top layer of skin burnt away. Bleeding.
She never covers his site. Never disconnects his feeding tube. Leaves it hanging there, full of bile and tummy contents. Milk. Which she's obviously not flushing with water after feeds
That tube has then been pulled by him playing with it (she thinks this is self harm
) it's been pulled up to come out of his top so it's clearly displayed, it's been trailing behind in the grass, the dirt, sand, it's been played with by the kittens.
She never shows she's applied any ointment to it. Never any anti biotics to clear up an infection.
The tube is supposed to be disconnected when not in use. He only gets fed THREE TIMES a day (I won't go into how this is ridiculous) yet he's always got it hanging out .... I think for the sympathy and to show he's disabled. There's no other reason why that would be left like she does. He should be having daily cleans of his site. Flushes after feeds. For his tube to run under his t-shirt when in being fed. Definitely a dressing if he has stomach acid that has leaked from around his button.... This can peel the top layer of skin away, leaving a burn, it can bleed and the is open to infection (cats big no no). She's not bothered about his pain because if she was... She'd be doing daily cares and using that tube properly.
To say she is a "SEN ADVOCATE" and a "voice of the SEN community"... Add keira, nurse degree and most importantly MOTHER to it... I'm not seeing any of those titles in how she cares for her son.
She fucks herself up daily with the things she posts.
Mobility... She said he needs assistance all the time. He cannot sit, cannot walk, he's 100% dependant on her....
Yet films him in her hip, assisting her with trunk control and full head control. Using his arms to put around her. He can bum shuffle, stand, roll, sit, take a few steps, play independently..... She makes a mockery out of every child who has no mobility.
She says he has no communication and cannot tell her if he's in pain, if he wants something....
Yet films him signing, pointing, using words like melon, sore, the list is endless. He can use symbols. He understands conversation and television.
She says he should score high on incontinence.... Yet wears one or two nappies all day as he's doing brilliant with potty training....
She is making him out to be more disabled than he is so she can pass him to Kiera’s so she doesn't have to deal with him simple.
He DOESN'T QUALIFY. HE NEVER DID! Not even as a baby!!!!!!!! I don't know how on earth she got them then. Because his needs are no different to any other baby at that age other than.... Connecting and disconnecting a feeding tube.
How do you think parents who do qualify because their children have high and severe needs!?!? Her insisting her son is like their children.
It's disgusting.
On another note, this goes to show how good at communication J really is. One of her points for needing keiras was that J couldn’t tell her if he was in pain and if so where the pain was. Well he proved her wrong.
