Sarah’s Day #38 Pushes belly out for the gram, no vax for the Tilse fam

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I’d just like to point out- how do we know any of this information about Sarah’s unborn child? Because of Sarah. She gave this information for people to discuss in the public realm. Again, Sarah did that and she didn’t have to.

She is very inconsistent with her ‘real and raw’ message, telling her ‘besties’ everything (that she has sex with her toddler in the room for example) and then really quick to whip around unexpectedly to say she doesn’t share everything with us and could we stop asking her is she’s pregnant (obviously another example from before she was pregnant).

I think a lot of people need to redirect their frustration back to her. She needs to take responsibility for her family.
I wish her baby all the best, including a family that will love him and protect him
 
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fallingtides said:
Something that has really been eating at me is how she mentioned her doctor telling her (???) that she could essentially become a spokesperson for this disability. You can't have both - you can't make yourself the poster child for being a mother with a disabled child while also keeping the matter private and not letting the issue define your son.

Disabled people all over the spectrum deal with enough trying to establish themselves as a normal human being whose existence is far more than acting as some sort of inspiration porn for abled people and between sarah's ego and her evangelicalism i just feel so scared for this little boy. i hope my feelings are wrong and i do genuinely feel for sarah because this is such a hard thing, especially when you're someone who is already mentally ill (though in denial) and who has never faced any kind of real hardship
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You know I was thinking this. Maybe it wasn’t the dr? She said she talked to a number of people/teams. Maybe she talked to a physio. If the abnormality will require extra cafe around development. Or another health care professional?
 
lbwadoam said:
I guess I am one of those new members defending Sarah. I have been reading on here since her break, went back a couple of threads to get myself into the loop and only created my account when I felt I could add value to the discussion rather than just repeating other users. Is it against the rules to try add perspective?

In my opinion her way of handling her pregnancy and the SM aspect go hand in hand. Yes, there would have been much better ways to do the SM part, and yes, she did it in that typical Sez manner which led most users here originally. But to me she gets a free pass in the pregnancy related actions on SM, however arguable they may be, during the weeks of finding out about her unborn child’s disability. I think that’s what a lot of people mean, that anyone should get a free pass in her situation and this includes her SM presence, her break that was not a break and the pieces of information that she let leak (aka bait).
I do agree with @Whatthehell66 that someone else should have taken responsibility and stopped her from the manic IG activities .

I was absolutely thrilled to find this forum because I got so frustrated reading the comment section on Sarah’s IG and YT posts. Since I started reading it seemed to me like people started to nitpick on every single post instead of focusing on calling out on her BS. Do the long time members agree or is my perception wrong?
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Thanks for sharing your perspective. I do agree that sometimes there is a bit of petty nitpicking, however as someone else mentioned, when somebody angers you so much it's easy to get greatly annoyed at any small thing they do.
I've also found the 'nitpicking' that bothers me, is usually because it's a behaviour I do myself and I feel called out. It used to bother me, but now I either just scroll past or stop and think about how maybe I could do better (a random example is someone nitpicking about scuz using her clothes dryer on a sunny day - I'd been lazy recently and using my dryer too much so I'm now making an effort to use it less)

peridoe said:
I would have given her a free pass if she hadn't acted in a similar way (baiting something's wrong but wouldn't say what until the vlog) with her CIN3 diagnosis, only with that, she actually did take a few days off social media to process it.

Looking back at the current situation it appears to me that she was desperate to say what was happening but because she couldn't yet she just kept coming on her stories and dropping hints instead. She was telling us without telling us. Yes, perhaps that was her way of coping. But at the same time she should acknowledge (to herself) how that looked to everyone looking in who only had these crumbs to go on, and that her getting bitchy when fans naturally speculated wasn't fair. On one hand, it's no one's business but hers. On the other, she kept talking about it when she didn't have to.

There isn't a right or wrong way to cope with devestating news, but how you handle yourself afterwards is important. She dragged it out. Even after she came out the otherside and was back to "normal" on her stories and was making vlogs again, she still kept reminding everyone she was dealing with something. People were moving on. Tattle was moving on. But as soon as it looked like people were, she brought it up again. Of course we know this is because she had a vlog planned and needed to drum up hype for it.

This is the part I won't give her a free pass on because in the end it looked calculated. It still looks that way. If her baby has a good chance of being born with mild version of his condition (I hope that's the case) they didn't need to reveal anything as no one would have been any the wiser. But now it feels like she's setting things up to cash in on it later, especially with the line that doctors apparently said she should use her channel to promote her baby's condition.

She said she wanted to address the matter in a vlog and never talk about it again but I absolutely believe that will not be the case.
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The thing for me that makes it clear she doesn't deserve a 'free pass' is that she left advertising on the YouTube video 😠
 
I think what is strange to me is that she seems busier then ever, selling products and all of her “secrets projects” coming up? This child has a high chance of needing extra attention and care .. she should really be planning how to cancel a lot commitments and how to step back.
Also she reallllly should have posted the video last week so that is wasn’t smack bang in the middle of her plugging her active wear sale. Kinda gross IMO.
 
It's their first weekend out of lockdown and this is how she's spending it.

Tell me you're not vaxxed without telling me you're not vaxxed.

Your life doesn't need to be this dull, sweetie.
 

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peridoe said:
It's their first weekend out of lockdown and this is how she's spending it.

Tell me you're not vaxxed without telling me you're not vaxxed.

Your life doesn't need to be this dull, sweetie.
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This is so sad. Sydney is absolutely buzzing this weekend being our first weekend out of lockdown! Everyone is planning family lunches and catch ups, dinner and drinks out in a proper establishment… literally anything than what we have done for 3.5 months which is stay inside and watch the grass grow. She’s pretty much advertising that she’s unvaccinated at this point.
 
Hey all, I’m a new lurker coming out of the woods! It seems really weird to me how in her video Sarah focuses on when she got the NIPT results (a screening test) but doesn’t say anything about getting the CVS results (a diagnostic test). This jumps out at me because I’m also 19 weeks pregnant and did NIPT screening earlier on and based on what I learnt about NIPT + the follow up diagnostic options (amnio or CVS), NIPT has low positive predictor values for many of the disorders it screens for, excluding Down’s syndrome + 2-3 much more serious disorders (I would think the latter aren’t what Sarah is facing because she suggests her baby’s disorder has a wide spectrum of severity).

The first time I listened I even thought she was saying the doctor recommended termination in a consult within her CVS appointment - i.e. before they’d have results, so based on NIPT alone - which I can’t see happening as the 3x medical practitioners I saw through my process all really hammered home how NIPT is risk screening not diagnostic. On a relisten though it’s just unclear because she never actually mentions getting the CVS result?

Getting high risk results in NIPT screening would be super stressful so I do empathise with her there - but it’s the CVS result that would confirm it so it’s weird she seems to gloss over that moment entirely. Obviously super emotional time though so who knows, I think it at least points to the issue being Down’s syndrome since that’s the one NIPT is really accurate for which can be less severe. But almost wouldn’t be surprised if later on there is no issue?
 
juniperbezel said:
Hey all, I’m a new lurker coming out of the woods! It seems really weird to me how in her video Sarah focuses on when she got the NIPT results (a screening test) but doesn’t say anything about getting the CVS results (a diagnostic test). This jumps out at me because I’m also 19 weeks pregnant and did NIPT screening earlier on and based on what I learnt about NIPT + the follow up diagnostic options (amnio or CVS), NIPT has low positive predictor values for many of the disorders it screens for, excluding Down’s syndrome + 2-3 much more serious disorders (I would think the latter aren’t what Sarah is facing because she suggests her baby’s disorder has a wide spectrum of severity).

The first time I listened I even thought she was saying the doctor recommended termination in a consult within her CVS appointment - i.e. before they’d have results, so based on NIPT alone - which I can’t see happening as the 3x medical practitioners I saw through my process all really hammered home how NIPT is risk screening not diagnostic. On a relisten though it’s just unclear because she never actually mentions getting the CVS result?

Getting high risk results in NIPT screening would be super stressful so I do empathise with her there - but it’s the CVS result that would confirm it so it’s weird she seems to gloss over that moment entirely. Obviously super emotional time though so who knows, I think it at least points to the issue being Down’s syndrome since that’s the one NIPT is really accurate for which can be less severe. But almost wouldn’t be surprised if later on there is no issue?
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I know that we’re not speculating on which disorder the baby has but from what she has said I don’t think it’s Down’s Syndrome. It seems that his disorder isn’t one that is physically recognisable which Down’s syndrome definitely is.
 
leiadeler said:
I know that we’re not speculating on which disorder the baby has but from what she has said I don’t think it’s Down’s Syndrome. It seems that his disorder isn’t one that is physically recognisable which Down’s syndrome definitely is.
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The only thing she said during the whole video that stood out to me as a way to distinguish between the conditions is the Dr telling her to abort. Unless she made that part up....Kurt wasn't in the room.
She said the Dr recommended to ‘Stop and start again’ 😬
 
It s impossible to speculate there are literally so many genetic disorders out there. No judgment on her decision to keep the baby and I do hope he as the mildest form of this health condition. Some people like Einstein and Stephen Hawking had disabilities and they changed the world. With that being said, really and truly I hope Sarahs decision to go against medical advice wasnt because she s into naturopathy and alternative medicine and stuff
 
WhiteFox said:
The only thing she said during the whole video that stood out to me as a way to distinguish between the conditions is the Dr telling her to abort. Unless she made that part up....Kurt wasn't in the room.
She said the Dr recommended to ‘Stop and start again’ 😬
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Yeah, this would also be very weird for a doctor to say for Down’s syndrome (plenty of people choose to continue pregnancies in that case) - but AFAIK the other options screened in NIPT are either much more serious, or sex chromosome disorders where NIPT is much less accurate at predicting positives - in which case its even weirder that she doesn’t talk about getting the CVS result/confirmation.
 
juniperbezel said:
Hey all, I’m a new lurker coming out of the woods! It seems really weird to me how in her video Sarah focuses on when she got the NIPT results (a screening test) but doesn’t say anything about getting the CVS results (a diagnostic test). This jumps out at me because I’m also 19 weeks pregnant and did NIPT screening earlier on and based on what I learnt about NIPT + the follow up diagnostic options (amnio or CVS), NIPT has low positive predictor values for many of the disorders it screens for, excluding Down’s syndrome + 2-3 much more serious disorders (I would think the latter aren’t what Sarah is facing because she suggests her baby’s disorder has a wide spectrum of severity).

The first time I listened I even thought she was saying the doctor recommended termination in a consult within her CVS appointment - i.e. before they’d have results, so based on NIPT alone - which I can’t see happening as the 3x medical practitioners I saw through my process all really hammered home how NIPT is risk screening not diagnostic. On a relisten though it’s just unclear because she never actually mentions getting the CVS result?

Getting high risk results in NIPT screening would be super stressful so I do empathise with her there - but it’s the CVS result that would confirm it so it’s weird she seems to gloss over that moment entirely. Obviously super emotional time though so who knows, I think it at least points to the issue being Down’s syndrome since that’s the one NIPT is really accurate for which can be less severe. But almost wouldn’t be surprised if later on there is no issue?
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Well written! This is what I have been pondering and what hasn’t sat well with me. Her focus on results seems off. And Kurt has no input because he is a careless idiot, even if he was at the appointments I’m sure he would still add nothing
 
Also just to be clear, I’m not meaning to speculate to work out which disorder it is - just that for other than a small number of specific disorders it screens for NIPT has low positive predictor value, so the emphasis in the video on the NIPT (e.g. all the medical consultation that started then) without mentioning anything about getting the CVS results (which are actually diagnostic) is odd.
 
The thing is if she never exploited her children to begin with no one would know if this child had a disability or not. She wants to put all this out there because the internet isn’t nice and she wants to protect her baby if it isn’t meeting milestones etc… then don’t put your baby on the internet. It’s simple. This is a horrible situation to go through for any parent but it doesn’t automatically make Sarah a good person. She does have a chance here of growing up though. Hopefully it teaches her about health on a truly holistic level. Not just what is aesthetically pleasing
 
WhiteFox said:
The only thing she said during the whole video that stood out to me as a way to distinguish between the conditions is the Dr telling her to abort. Unless she made that part up....Kurt wasn't in the room.
She said the Dr recommended to ‘Stop and start again’ 😬
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I found this odd too. Are doctors allowed to straight up say get an abortion? This is how she made it out in the video to me, like the doctor didn’t discuss with her about life with the babies condition and just straight up said to abort. I just can’t see a doctor saying that and getting away with it? I would be absolutely outraged and would want to speak to a different doctor, surely that’s not just me being dramatic?

I also found it odd that the doctor apparently brought up her large following. Why would they know that? And if they did because you know, the internet, again super odd and unprofessional to bring it up? No?

long story short, I believe she put words in the doctors mouth.
 
youalrightmate said:
I found this odd too. Are doctors allowed to straight up say get an abortion? This is how she made it out in the video to me, like the doctor didn’t discuss with her about life with the babies condition and just straight up said to abort. I just can’t see a doctor saying that and getting away with it? I would be absolutely outraged and would want to speak to a different doctor, surely that’s not just me being dramatic?

I also found it odd that the doctor apparently brought up her large following. Why would they know that? And if they did because you know, the internet, again super odd and unprofessional to bring it up? No?

long story short, I believe she put words in the doctors mouth.
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I would have to disagree with statements in this thread stating that a doctor wouldn’t ask someone to terminate a pregnancy.

My mum was told to abort my sister at 20wks. As blunt as that.
They detected trisomy 20 and told her the baby wouldn’t be compatible with life. It took my parents 13 years to conceive that baby so they denied the request. My sister was born healthy, the trisomy 20 chromosomes were eventually located in the placenta after thorough testing and had never passed through to the baby. I know several other people who’ve been told by doctors that it’s in their best interest to terminate. I wouldn’t wish that situation upon anyone.
 
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