One of my kids has a chromosome disorder and they'll never live independently. Looking at the make a wish charity never even crossed my mind! We have only ever got something from a charity once and it was a specialised disability trike as they cost £000s and we raised some of the money ourselves first. I do see in the disability arena some extremes. There's always a couple of Gummy like grifters who spend their time shouting about all the things out there we should be applying for and getting for free. Then there's some parents who try and be stoic and never even apply for DLA or blue badges let alone other help. I think the majority of parents fall in the middle. In some ways, it's a sign she's coping though, I'd say a lot of disability families don't have the bandwidth to be researching events or applying for grants let alone attending so many events.