Parents of Toddlers with Autism/Global development delays/Speech Delays
- Thread starter BBC1HD
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Livelife01
Well-known member
My son is exact same, he will be 4 this august and has no recognition of Xmas or anything, we are in process of applying for EHCP, so hope that gets accepted , he’s already had the EP assessment 
We had our first SLT assessment last week, and we were told it’s another year for any therapy. Just waiting on a private SLT to give us some availability but everything just takes so long.
We had our first SLT assessment last week, and we were told it’s another year for any therapy. Just waiting on a private SLT to give us some availability but everything just takes so long.
lookwhatthecatdraggedin1
VIP Member
I’m so sorry I didn’t even see this reply this thread was hidden for some reason
He has a EHCP he got it back in July which states he needs 1-1 at all times which he doesn’t get and that he needs a SEN setting which hopefully he’ll get from September but we’ve been told not to get our hopes up as our whole city has next to no spaces available 
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Our S&L lady told us she doesn’t think he’s as ‘bad’ as a child with his genetic order should be because most his age wouldn’t even be babbling or saying words, since Christmas he’s actually said mum and nan which he hasn’t said since he regressed at one! It’s so frustrating knowing there is words there they just can’t get them out
Livelife01
Well-known member
Oh no, do you have a backup plan?I’m so sorry I didn’t even see this reply this thread was hidden for some reason
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Our S&L lady told us she doesn’t think he’s as ‘bad’ as a child with his genetic order should be because most his age wouldn’t even be babbling or saying words, since Christmas he’s actually said mum and nan which he hasn’t said since he regressed at one! It’s so frustrating knowing there is words there they just can’t get them out
luckily the school round the corner from us has a specialist provision within the mainstream so we are hopefully going to try him with that first. It’s just a massive headf**k trying to get the best for our kids!
lookwhatthecatdraggedin1
VIP Member
There’s actually a SEN provision at his mainstream school he’s at now that they’re pushing to get him in but it’s 8 children and the waiting list is miles long, he has his mainstream named by the LA as his school so I think if it comes to it it’ll be mainstream hopefully with a 1-1 5 days a week. It’s just a nightmare knowing that the longer they aren’t in the right setting the harder it’s going to be for them going forward!
I love reading stories like this. My child is 4 and a half and just not talking, so I’m feeling more and more desperate. Professionals have no idea if she will ever talk.
I’m thrilled for you and your little chatterbox. I’ve got a pretty good idea of how much it means to you, and I’ve never even met you.
Livelife01
Well-known member
This is great.
My son was pretty much mute until 2.5. He’s now 3.5 and although he doesn’t say much in context, he can say lots of single words and name everything! I just wish his receptive language would improve but I’ve got everything crossed it will in time.
changing subject a little - my boy has his pre school jabs next week. Any idea how to handle that one? He’s gonna go mental and get so upset cos he doesn’t know what’s coming.
Does he respond to PECS or any pictures? You could try social stories which is a story made up of pictures so you could put pictures of what's going to happen to show him
Livelife01
Well-known member
No he doesn’t really engage like that. But we will try with him. Thank you x
Little stripy beach hut
Active member
Hello, I don't really know if this is the right place to post. My daughter just turned two and she doesn't walk. She bum shuffles everywhere. She can't stand independently but will cruise along the furniture, but this is only in our house where I assume she feels more secure.
She does speak and has good fine motor skills etc but I am so worried about the walking. I feel as though it's holding her back as she's not able to play with her peers because they'll just all run off and shes just left there. She also can't explore her own interests because she can't get to anything. I kind of have to guess what she wants and take her to it.
Just wondering if anyone else has experience with this and whether anyone can give me some hope
thank you.
She does speak and has good fine motor skills etc but I am so worried about the walking. I feel as though it's holding her back as she's not able to play with her peers because they'll just all run off and shes just left there. She also can't explore her own interests because she can't get to anything. I kind of have to guess what she wants and take her to it.
Just wondering if anyone else has experience with this and whether anyone can give me some hope
thank you.
lookwhatthecatdraggedin1
VIP Member
Really stressed tonight, tomorrow is the deadline to have school applications in and up to now we haven’t heard off a single SEN school or provision with spaces, 3 have told us their waiting list is too long and he’s ‘not bad enough’ even though his EHCP says he needs a SEN provision and a 1-1 at all times 
I’ve named his mainstream for a choice as that’s named as his school by the LA so hopefully if it comes to it he gets a place for reception there but I feel like the school just can’t be assed with him, he’s not even a bad behaved kid he just can’t really communicate and has limited understanding even though since being there since last January he has come on a lot and has the confidence to approach staff for help, the kids in there all love him and treat him just the same as every other kid Sorry for the rant it’s just so sad when you don’t know what’s going to happen with your child’s future! 
I’ve named his mainstream for a choice as that’s named as his school by the LA so hopefully if it comes to it he gets a place for reception there but I feel like the school just can’t be assed with him, he’s not even a bad behaved kid he just can’t really communicate and has limited understanding even though since being there since last January he has come on a lot and has the confidence to approach staff for help, the kids in there all love him and treat him just the same as every other kid Sorry for the rant it’s just so sad when you don’t know what’s going to happen with your child’s future! 
Lucyxxxx
VIP Member
2 separate things on my mind.
1. Does anyone else worry about what's gonna happen with their kids once your gone? I try eat and stay healthy so I can stay alive for as long as possible for my kids.
2. I'm having another baby and my last 2 are my SEN ones had them in my 20s and I'm in my 30s now and the thought is there what if this one is SEN as well? I'm trying my best to be even more healthy then usual this pregnancy but the worry is there.
1. Does anyone else worry about what's gonna happen with their kids once your gone? I try eat and stay healthy so I can stay alive for as long as possible for my kids.
2. I'm having another baby and my last 2 are my SEN ones had them in my 20s and I'm in my 30s now and the thought is there what if this one is SEN as well? I'm trying my best to be even more healthy then usual this pregnancy but the worry is there.
Livelife01
Well-known member
Oh bless you, that’s a horrible situation to be in. We are also applying for our sons school, and waiting on an EHCP aswell. We were told just to apply as if he doesn’t have an EHCP, even though the EP report states he needs small group and 1:1 interaction.Really stressed tonight, tomorrow is the deadline to have school applications in and up to now we haven’t heard off a single SEN school or provision with spaces, 3 have told us their waiting list is too long and he’s ‘not bad enough’ even though his EHCP says he needs a SEN provision and a 1-1 at all times
I hope you get sorted soon, I hate thinking about school right now! X
BBC1HD
VIP Member
Hello, I don't really know if this is the right place to post. My daughter just turned two and she doesn't walk. She bum shuffles everywhere. She can't stand independently but will cruise along the furniture, but this is only in our house where I assume she feels more secure.
She does speak and has good fine motor skills etc but I am so worried about the walking. I feel as though it's holding her back as she's not able to play with her peers because they'll just all run off and shes just left there. She also can't explore her own interests because she can't get to anything. I kind of have to guess what she wants and take her to it.
Just wondering if anyone else has experience with this and whether anyone can give me some hope
I don't have any experience in this and you haven't mentioned if she may be SEN. I have read about some SEN children taking longer to walk though. Also some dyspraxic children taking longer to walk due to difficulties in motor planning. Maybe hyper mobility?
Have you been referred to community peds/OT/Physio?
This should be your first step. Next, I'd look into dyspraxia and see what strategies there and see what you can incorporate.
You said she is cruising, this is great! It shows she has strength to stand and move around. It could be that she doesn't feel confident yet in making the next step with independent steps
Livelife01
Well-known member
Just been told this morning my son will be getting an EHCP. First of many hurdles. Just need to wait for the draft to come through and hopefully he can get into our chosen school for reception in September.
Little stripy beach hut
Active member
Thank you for replying. I'm not sure if she's SEN or not. I can't see why else she isn't walking! We have paid for a private physio who said she had trouble crossing her midline and thats why she isn't crawling. We have been seen by NHS physios and by a peadiatrician who organised blood tests but they don't seem to have any answers yet.
I was just wondering if anyone had any experience in delayed motor skills with their children.
Hi 
my son is 6 so not a toddler. We are in the process of trying to move him from mainstream to special school. He is ASD and pre-verbal. Been trying to find a placement for a year but no progress. He has made lots of progress in the last year including toilet training which we thought would never happen 
my son is 6 so not a toddler. We are in the process of trying to move him from mainstream to special school. He is ASD and pre-verbal. Been trying to find a placement for a year but no progress. He has made lots of progress in the last year including toilet training which we thought would never happen
BBC1HD
VIP Member
Hi
Aww wow well done to you and your boy on the potty training! My girl is 3.5 and has literally no interest in potty training at all. Maybe next year
.Have you thought of appealing and taking your LA to tribunal for a school place? If they've specified a sen provision in an EHCP then youve got grounds to take them to one!
Livelife01
Well-known member
My boy is the same age, no interest at all. I really wanted to try before he starts schoolAww wow well done to you and your boy on the potty training! My girl is 3.5 and has literally no interest in potty training at all. Maybe next year
Have you thought of appealing and taking your LA to tribunal for a school place? If they've specified a sen provision in an EHCP then youve got grounds to take them to one!
In September but think it will prob do more harm than good x