Little stripy beach hut
Active member
Wow thank you so much for this. I would like to research it all properly. Can you recommend some youtubes where they talk about which colours to use for different skin tones? I'm quite sallow with dark hair.
Late Diagnosis ADHD/ADD (Women) #2
- Thread starter PunkyMonkey
- Start date
1
PunkyMonkey
VIP Member
Do you mean to escape, or to keep conversation afloat? Asking people questions limits the amount you need to engage, everyone loves talking about themselves.
Meg78
VIP Member
To keep conversation afloat/not feel like such a leper
the school run is an endless hellscape of failed interactions, I overshare and avoid eye contact and spend days beating myself up for being the weirdo, I can’t seem to think of anything to ask in the moment
PunkyMonkey
VIP Member
To keep conversation afloat/not feel like such a leper
Have a look at all the YouTube videos on small talk, there are loads of tutorials and advice like asking open questions with examples, then practice on a friend or relative!
buttonbean1614
Member
I'm on week 3 of taking 30mg of Elvanse. So I currently feel like I am not in a correct dose and will need it put up as I no longer get the same benefits that I experienced the first week of taking it. Big positives I noticed were a massive improvement in my focus and being able to start and finish tasks especially ones I would usually procrastinate with. I also didn't feel as exhausted at the end of my working day and felt able to complete little tasks at night like tidying up etc. I also wasn't as irritable after work and less snippy. It also really quietened down my food noise and I wasn't chasing dopamine hits with sweets and chocolate which is a major downfall for me. Negative side effects for me are dry mouth, cold hands and feet and was sometimes experiencing stomach cramps. As I say I think I need my dose upped as my positives are not as noticeable now but I can really see how this medication could have a real positive impact on my life!
DanaScully
Chatty Member
Hello! I was diagnosed with autism earlier this year and I've just started the process to be assessed for ADHD. Luckily the appointment to request the referral was relatively straightforward and I needn't have worried so much.
My GP surgery has referred me to ADHD360 for an assessment. I'm not sure if this is via "contracted activity", a four week wait, or Right to Choose, a 27 week wait, according to waiting times on adhd.co.uk.
I do have the funds available to go private but I've read too many horror stories of people not being able to access treatment (meds) without an NHS/RTC diagnosis. It seems some people are struggling to get shared care even with the NHS/RTC diagnosis.
My main reason for wanting the assessment is hopefully to receive treatment to help with my poor executive functioning and quieten down the constant chatter in my head. I'd love nothing more than to be able to actually focus on what I'm doing, or to be able to drift off to sleep naturally without the aid of a boring audiobook!
I'm going to read back through the previous pages of the thread but just wanted to say hello.
My GP surgery has referred me to ADHD360 for an assessment. I'm not sure if this is via "contracted activity", a four week wait, or Right to Choose, a 27 week wait, according to waiting times on adhd.co.uk.
I do have the funds available to go private but I've read too many horror stories of people not being able to access treatment (meds) without an NHS/RTC diagnosis. It seems some people are struggling to get shared care even with the NHS/RTC diagnosis.
My main reason for wanting the assessment is hopefully to receive treatment to help with my poor executive functioning and quieten down the constant chatter in my head. I'd love nothing more than to be able to actually focus on what I'm doing, or to be able to drift off to sleep naturally without the aid of a boring audiobook!
I'm going to read back through the previous pages of the thread but just wanted to say hello.
WickedThread
Chatty Member
I’m on Tyvense as well, initially on 20 (which just made me more tired! Like a good Moroccan coffee
Going up to 30 helped a lot initially; it wasn’t like night-and-day, but it did help focus a good bit, and dull down food noise etc.
I’m now at 40 and the improvements are slight - much of a muchness really. Ordinarily I think we’d jump up in doses, or try something else, but I have an arrhythmia disorder and I’m tolerating it well on that side, so I’m just going to manage expectations.
my physical side effects either from this and/or the low dose of Quetiapine I use for sleep is the restless leg/ leg-cramps when I’m trying to sleep. Magnesium Bigysinate (sp?) and topical magnesium cream on the back of my legs help, but I do find myself needing a some sugar to help settle (definitely the quetiapine in that case)
peekachu
VIP Member
Yes! It was a struggle as my GP was confused by RTC, but it’s worth pursuing. It’s a 7 year wait in my area but it was originally 5 years when I first spoke with my GP, so it’s very likely to increase (sadly).
I found a Facebook group called “Adult ADHD / Autism Diagnosis - Right to Choose Support (England)” and it has been such a huge help whilst navigating the RTC process, the admin there is so kind and helpful!
I hope you’ll be assessed soon
I went through this, and waited a year from my GP appointment to the actual assessment. It was then another 14 months from assessment to beginning titration.
It’s definitely shorter than NHS but still can take some time.
peekachu
VIP Member
Were you referred to Psychiatry UK by any chance? I was too and waited a similar time for assessment, they have the longest wait time through RTC unfortunately
There are other RTC providers who have much shorter waiting times. Dr J and Colleagues and Harrow Health seem to be only a few months from referral to assessment and titration starts much sooner after diagnosis.
We should technically be allowed to request a provider, but my GP would only refer to PUK, even after I referred them to the NHS guidelines. Accessing ADHD services feels like a lottery based on your GP/location, sadly. Still, it’s better than waiting indefinitely so I’m very grateful RTC exists!
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TrolleyParton
VIP Member
Anyone else here on Concerta and really struggling to access their meds lately? I was NHS diagnosed in my area almost 10 years ago and we had to play about with my meds for ages until landing on the sweet spot which is 1 x 36mg and 1 x 27mg daily. I go through Pharmacy2U, I started using that as my local named pharmacy was always struggling to get them, but on the last 3 attempts my script has just been cancelled due to lack of availability. My job is very demanding and involves a load of multi-tasking and without my meds I'm next to useless. It's so bloody frustrating.
kingseven
VIP Member
I'm having ongoing issues monthly and was due to run out tomorrow. I was given capsules a few months ago instead of the tablets when I could not get any and although they made me feel considerably more nauseous than the tablets I got loads more done and was sleeping better. The following month I could not get capsules so went back to the tablets.
This month I got 30 of the 27mg capsules which last me 15 days as I could not get the full 60 anywhere. I've spent a whole day today on the phone to my Doctors, my Psychiatrist and a tit ton of pharmacies and finally managed to get a prescription issued for capsules again. The stress of not knowing if you are going to run out at the end of each month is horrendous!
In an ideal world I would love to try a combination of the tablet and capsule but given the current shortages I didn't even bother asking if it was a possibility to do that.
TrolleyParton
VIP Member
My doctor has kindly agreed to do a med review, there was a generic that I had once which I know logically has the same ingredients, but still felt like I didn't really get on with it as my anxiety was much worse using it. Fingers crossed! I hope you can get sorted @kingseven, we hear people decrying Big Pharma for flooding us all with meds but they've really dropped the ball on this one! 
yogiessexdubs
VIP Member
I’ve just been diagnosed with ADHD & autism,
I’m going to read the whole thread. This is all quite eye opening as I’ve never googled ‘signs/symptoms’ as I didn’t want to self diagnose & I am also cynical as diagnosis is rife at the moment!
I’m going to read the whole thread. This is all quite eye opening as I’ve never googled ‘signs/symptoms’ as I didn’t want to self diagnose & I am also cynical as diagnosis is rife at the moment!
whyhellothere83
VIP Member
Diagnosis is rife because of everyone being misdiagnosed their whole lives. Congratulations for your diagnosis! I recommend reading ‘unmasked’ by Ellie MiddletonI’ve just been diagnosed with ADHD & autism,
I’m going to read the whole thread. This is all quite eye opening as I’ve never googled ‘signs/symptoms’ as I didn’t want to self diagnose & I am also cynical as diagnosis is rife at the moment!
conrea37
VIP Member
Welcome, impostor syndrome is completely normal. Many symptoms can be blamed on other conditions like social anxiety and if yoy're female it's even harder to diagnose. Only reason I looked into it was a friend being diagnosed and us commenting how similar we can be. I've then used that to have discussions with other friends who have sought referrals.I’ve just been diagnosed with ADHD & autism,
I’m going to read the whole thread. This is all quite eye opening as I’ve never googled ‘signs/symptoms’ as I didn’t want to self diagnose & I am also cynical as diagnosis is rife at the moment!
We're all here to talk if you need!