Eating disorders- Advice & support

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I imagine that the most challenging times are when you are between therapy sessions and have time to reflect on what you have brought to the surface and how painful it is? I hope you are able to access the ED service at any time once you are in treatment but managing everyday life whilst your thoughts are in turmoil is no mean feat. It's not surprising that you take it out on the ones closest to you. You're not a "horrible person"..You're dealing with a major mental hurdle which you are trying to chip away at all the time which is exhausting.
 
Trigger warning ⚠ of ED specifics and binging/purging

Perhaps a couple of breakthroughs this last week…don’t want to get too hopeful. Have had a couple of binges and managed to stop before they got out of hand and I didn’t purge afterwards. Feels like a big deal. I’m working on forgiveness, fighting that horrible voice in me. I’m so hungry lately - obviously I’m normally very hungry but I can usually ignore it or at least keep going with restricting. Lately I’m finding it harder and harder. Maybe my body and mind fighting back? I don’t want to be like this anymore, I feel a mind shift to “who gives a duck” which is quite freeing. Like I say, I don’t want to get ahead of myself but I’m really hoping I can follow through with these thoughts and start eating more consistently. I plan to get rid of my food scales and delete my Nutracheck on friday as well. Given that I normally even weigh iceberg lettuce, this is huge for me but I’m determined. I want to do this for my kids and get back to the parent I used to be, present with them with energy and focus on their needs instead of wasting away.

I also have an appointment with my GP again tomorrow. After my meltdown the other weekend, I knew I needed to ask for more help. I’m going to bring up perimenopause again (she did bloods but determined I’m not in it - I disagree). I think hormones are feeding the ED stuff. If she still won’t try me with HRT, I will take the antidepressants she keeps offering.

edited to add - I have the first dietician appt on Tuesday which I’m majorly nervous about. I don’t want to be weighed so I’m going to tell her that. Hopefully she can just use my weight from my initial referral appt a couple of weeks ago. I feel sick thinking about it but determined to keep the appointment.

Hope everyone else is doing ok ❤
 
Trigger warning ⚠ of ED specifics and binging/purging

Perhaps a couple of breakthroughs this last week…don’t want to get too hopeful. Have had a couple of binges and managed to stop before they got out of hand and I didn’t purge afterwards. Feels like a big deal. I’m working on forgiveness, fighting that horrible voice in me. I’m so hungry lately - obviously I’m normally very hungry but I can usually ignore it or at least keep going with restricting. Lately I’m finding it harder and harder. Maybe my body and mind fighting back? I don’t want to be like this anymore, I feel a mind shift to “who gives a duck” which is quite freeing. Like I say, I don’t want to get ahead of myself but I’m really hoping I can follow through with these thoughts and start eating more consistently. I plan to get rid of my food scales and delete my Nutracheck on friday as well. Given that I normally even weigh iceberg lettuce, this is huge for me but I’m determined. I want to do this for my kids and get back to the parent I used to be, present with them with energy and focus on their needs instead of wasting away.

I also have an appointment with my GP again tomorrow. After my meltdown the other weekend, I knew I needed to ask for more help. I’m going to bring up perimenopause again (she did bloods but determined I’m not in it - I disagree). I think hormones are feeding the ED stuff. If she still won’t try me with HRT, I will take the antidepressants she keeps offering.

edited to add - I have the first dietician appt on Tuesday which I’m majorly nervous about. I don’t want to be weighed so I’m going to tell her that. Hopefully she can just use my weight from my initial referral appt a couple of weeks ago. I feel sick thinking about it but determined to keep the appointment.

Hope everyone else is doing ok ❤
I didn’t want to respond with a ❤️ and not say anything. I’ve been on a work trip (which was lovely being by the sea) so I’m not going to be that good at expressing myself. Sending hugs. You seem to have such a good insight into your feelings and behaviours. It is hard, but keep on 😊. I’ll be back when I’m not covered in salt and all red! Xx
 
I didn’t want to respond with a ❤ and not say anything. I’ve been on a work trip (which was lovely being by the sea) so I’m not going to be that good at expressing myself. Sending hugs. You seem to have such a good insight into your feelings and behaviours. It is hard, but keep on 😊. I’ll be back when I’m not covered in salt and all red! Xx
Thank you @zetta buttons. I hope the work trip was good for you and the sea has helped you relax a little after your appointment recently. I have been thinking of you ❤️
 
Has anyone used an online coach to help with their food issues? I look at a few online and am obviously very wary, but a couple look legit and seem to know what they are talking about.
At the height of my illnesses, I found it very difficult to get support from anyone unless they were specifically trained in EDs. I had a psychologist tell me I had “a great figure” and just needed to focus on not losing any more weight. I also went to see a hypnotist when I was absolutely desperate to stop bingeing, and he was putting me in a trance during one session when he said something about “resetting (my) relationship with food, ensuring (I) can lose weight..”. I sat bolt upright in my chair and said - lose weight? I never said anything about needing to lose weight? It was awful. I’ve since found out that it’s considered highly unethical for hypnotists to say they can treat mental illnesses.

i would also tread extremely carefully with any dietician, or personal trainer, or food coach - unless they are explicitly trained in helping people with eating disorders. So many of them only have a rudimentary understanding. A proper dietician could be very helpful though, although personally I feel I know just as much about nutrition as most professionals, and I’m trying to think LESS about food, not more!
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Perhaps a couple of breakthroughs this last week…

This is amazing, well done!! I have to say that the first step for me in stopping the b/p cycle was learning to stop a binge when it was partially underway, and not purging. Just letting the food settle and accepting it. Eventually the binges became less frequent that way. Nothing keeps that b/p cycle in full swing as much as being starving hungry and dehydrated from purging. It’s just one extreme to the other.

Also STRONG agree on giving up the food scales and counting on apps. Weighing food is absolute torture, and it’s hard at the start to stop but it gets easier. I never count calories now. I have a broad meal plan in my mind each day, and just try to stick to that. If I start weighing again I know I will get sick and obsessive very soon again.
 
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This is such brilliant advice. It's probably the best advice you could possibly get, YoungHollywood. Weighing and counting anything,having all these "nutrition aids" on your phone..all just toxic enabling devices to keep your ED thoughts alive and kicking. I understand the compulsion to keep them "handy" but what actual good are they doing?

It's easy for me to say keep strong and keep remembering what your aims and goals are but it sounds to me that you are determined to get better for yourself and for your family. You are so bravely facing your fears and carrying on. I admire your strength and courage because this is so incredibly hard xx
 
Trigger warning ⚠ of ED specifics and binging/purging

Perhaps a couple of breakthroughs this last week…don’t want to get too hopeful. Have had a couple of binges and managed to stop before they got out of hand and I didn’t purge afterwards. Feels like a big deal. I’m working on forgiveness, fighting that horrible voice in me. I’m so hungry lately - obviously I’m normally very hungry but I can usually ignore it or at least keep going with restricting. Lately I’m finding it harder and harder. Maybe my body and mind fighting back? I don’t want to be like this anymore, I feel a mind shift to “who gives a duck” which is quite freeing. Like I say, I don’t want to get ahead of myself but I’m really hoping I can follow through with these thoughts and start eating more consistently. I plan to get rid of my food scales and delete my Nutracheck on friday as well. Given that I normally even weigh iceberg lettuce, this is huge for me but I’m determined. I want to do this for my kids and get back to the parent I used to be, present with them with energy and focus on their needs instead of wasting away.

I also have an appointment with my GP again tomorrow. After my meltdown the other weekend, I knew I needed to ask for more help. I’m going to bring up perimenopause again (she did bloods but determined I’m not in it - I disagree). I think hormones are feeding the ED stuff. If she still won’t try me with HRT, I will take the antidepressants she keeps offering.

edited to add - I have the first dietician appt on Tuesday which I’m majorly nervous about. I don’t want to be weighed so I’m going to tell her that. Hopefully she can just use my weight from my initial referral appt a couple of weeks ago. I feel sick thinking about it but determined to keep the appointment.

Hope everyone else is doing ok ❤
Hello! Firstly, it sounds like you are starting to make the first steps to progress. Getting rid of the scales and apps is great. Although numbers will be initially in your head, you won’t be reminded of them at every meal and soon they will start to fade.

What the f mentality is fab- honestly, I think that is you (not ED you) saying we’ve had enough of this now. What the f can eating normally do? Everyone else does it. Obviously it won’t happen overnight, like everything, there will be ups and down but if the trend os towards that way of thinking and to restrict less then that can only be a good thing.

In terms of your dietician appointment, I don’t know how trained they are in ED. I follow a running one who is bang on and definitely knows her stuff about RED-S and the role of ensuring people who exercise eat enough etc and therefore it would be fine if someone who was suffering eating distress saw her. Others, I don’t know.

I hope things continue to get better. Is the appointment today? If so good luck ❤

Thank you for thinking of me. I tried to do something I hadn’t donon Sunday, it backfired and Sunday ended up being a car crash. Yesterday was better because I was distracted by being out with work all day and looking after other people. Every day is new. Just because you’ve restricted or binged doesn’t mean you’ve failed. I’m learning that. It means there’s a new opportunity to learn why you restricted or binged.
 
Thank you all. There are some incredible people on this thread, and the fact you are kind enough to share your own stories and read stuff that is probably quite triggering to help others, like me, is amazing. @eppingforestbambi thanks for your thoughts on online coaching. I have decided to stick with the NHS stuff for now. My dietician tomorrow is through the NHS eating disorder unit so hopefully they are decent but I also know a lot (too much!) about nutrition so don’t feel I need it - I just need help with the HOW rather than the WHAT.
@neroli thank you for the encouragement, as always ❤️
@zetta buttons also thank you to you. I am sorry Sunday was rubbish for you. You are right though, everyday is a new day and a new opportunity. I will be thinking of you and hoping everything starts to be more upward for you.

I’m going to unfollow this thread as part of putting all ED stuff mentally in a little box. I have unfollowed lots of fitness stuff on the small amount of social media I have. I’m going to try my best now to quieten that topic in my head and drown it out with my family and my health. Good luck to anyone struggling, it’s a crappy and cruel thing to go through ❤️ I’m so grateful for all the advice and support on here.
 
I hope everyone is getting on ok (with appointments, with sessions, with being an inpatient ❤).

I just want to come on here because my therapy has been going really well. I’ve managed a meal out, coffee and cake out and exercise is becoming more moderated. All good. A couple of blips but to be expected and we work through those (my wife is getting really good at helping with that too).

Unfortunately I had a really unpleasant neighbour incident just after my session on Friday. It carried on into Saturday before work where my wife and I were called bleeping foul and disgusting . We were both so shocked and I had to rush to work so didn’t really have a chance to digest. We tried to move on (went on a lovely day trip yesterday) but we are both heartbroken. It brought back horrible memories of bullying from school (which I think links in to current eating and exercise behaviour). I’ve spent today bingeing and I feel not guilty, but sad that I cannot control my responses to this. That’s on me, I know. I also know I shouldn’t rely on my wife to help and she’s just as sad but I’m still in early stages and it’s hard.

I’ve had unbelievable support elsewhere on here about the neighbour thing (❤) but didn’t want to bring up how it has affected my eating on different threads in case it affected anyone there. So sorry for a huge mind dump here.
 
I am so very sorry and how very hurtful and painful this experience must have been. It's hardly surprising that you have been so emotionally affected but please don't allow these morons to jeopardise what you have achieved so bravely through therapy and determination? Of course your pain will be reflected in ED behaviours but you realise this and are very wisely not beating yourself up about it. As you say it IS very early days and you wouldn't be in therapy if you could easily control your responses to emotional trauma.

Today is another day and just remember the progress you have made...To me those steps are huge and you should be very proud of yourself xx
 
I had bulimia as a teenager and my dad had me go for hypnotherapy after therapy didn't work. The only thing that helped me in the end was my brother who is a personal trainer encouraged me to go to the gym with him a few times a week and helped me with my diet. My dad is old school and did everything he could for me but the thing I always remember him saying is 'food is not the enemy'. That saying sticks with me when I'm struggling.
 
Hi everyone, I had to unwatch this thread whilst I tried to get my head into a better place.
I just wanted to pop in briefly.

So tomorrow is my 3rd session of intensive CBT; I’ve had my blood test results back. Cholesterol is slightly high which is linked to bingeing on high fat/crappy foods. Doctor isn’t too concerned and said he would rather I focus on managing the ED and he thinks once that is under control then the cholesterol will reduce naturally.
B12 very low, no diabetes, bone density fine, iron very low: I think he said about 13 when normal range is something like 30-160? linked by GP to period blood loss, being vegetarian and binge/purge cycle.
Also put me on folic acid? Not quite sure about that - only knew of it for pregnant women. Box says folic acid food supplement on it…

CBT going ok so far. Therapist: wasn’t sure about her at first - she seems nice. Very strange still, to talk about this on a 1-2-1 conversational way. I’m not used to this at all.
this past week was the first week of me logging my food, my binges, my vomiting and my feelings around it. It’s been quite an interesting thing to do, to be honest.
Not sure what to expect when we go through it tomorrow. I thought my vomiting had reduced a bit this week, though when I counted it on my log, it’s been 31 times since Friday. I’ll see what she says.
 
Hi everyone, I had to unwatch this thread whilst I tried to get my head into a better place.
I just wanted to pop in briefly.

So tomorrow is my 3rd session of intensive CBT; I’ve had my blood test results back. Cholesterol is slightly high which is linked to bingeing on high fat/crappy foods. Doctor isn’t too concerned and said he would rather I focus on managing the ED and he thinks once that is under control then the cholesterol will reduce naturally.
B12 very low, no diabetes, bone density fine, iron very low: I think he said about 13 when normal range is something like 30-160? linked by GP to period blood loss, being vegetarian and binge/purge cycle.
Also put me on folic acid? Not quite sure about that - only knew of it for pregnant women. Box says folic acid food supplement on it…

CBT going ok so far. Therapist: wasn’t sure about her at first - she seems nice. Very strange still, to talk about this on a 1-2-1 conversational way. I’m not used to this at all.
this past week was the first week of me logging my food, my binges, my vomiting and my feelings around it. It’s been quite an interesting thing to do, to be honest.
Not sure what to expect when we go through it tomorrow. I thought my vomiting had reduced a bit this week, though when I counted it on my log, it’s been 31 times since Friday. I’ll see what she says.
I just want to say a big hug from me for you doing this, and particularly for you logging stuff. That sounds huge and for you to then talk it through.

If you can look here, please let us know how it is going. I know it can be overwhelming to read about others. We are our own worst enemies.

I am so ashamed of what has happened this week. I don’t know how I’m going to face my therapist tomorrow. I feel like a failure. Sometimes it feels so lonely and a dm option would definitely help.

Sending good thoughts out. We need to be kind. Sometimes, it feels like all I see (on here and in the real world) are constant reminders about food to buy, foods we shouldn’t buy, exercise we should do, how we should look and why everyone we see is suddenly losing weight. It’s my heightened awareness but it’s hard.
 
You’ve nothing to be ashamed about ZB, you’ve done nothing wrong. So this week might not have gone as you or Mrs T or the therapist would have liked. Be kind to yourself. Not every week is going to be easy - this is very early stages of treating an illness you’ve had for a very long time. Me - I’ve had this since I was 17/18 and I’m almost 45. I know this is going to be hard to treat - the fact food is almost inescapable in our own lives and on social media makes it even harder, I’m sure you’ll agree.
I wish we could DM too. You kind of suggested you know my Instagram. If you do, please feel free to either follow me, if you don’t already; or if you do, please feel free to send me a wee message. It’s ok xxxxx
 
I have nothing but admiration for you both for your strength and courage in terms of engaging with therapy which must be absolutely overwhelming and exhausting and must leave you feeling very vulnerable no matter how beneficial and healing the long term objectives
will be.

Food, exercise, the perfect diets are everywhere and you can't escape the constant barrage of health advice/weight loss/calorie/carb control column inches. This year I "celebrate" 50 years of eating distress and I know there are many others like me who never had the chance of therapy. That's why I urge you to keep going with therapy no matter how gruelling, no matter how many "blips" you have because blips don't matter in the long run. You are under a team of specialists who can help you no matter how "shamed" you feel. That's all part of the ED as you know xx
 
Hello everyone 👋
I came back on here to see how everyone is doing - also, selfishly, as I have no one to talk to in real life (I talk to my husband and best friend but neither of them “get it”).
@zetta buttons I’m sorry to bring something up that was a little while ago now, but I couldn’t not mention it. I’m so sorry your disgrace of a human neighbour was so vile to you😞 How awful he/she sounds - it’s not justification, as it can’t be excused, but it sounds like they are a truly ignorant and nasty person. What a sad life they must lead. I hope you haven’t had any more encounters.
@Lazarus I hope your CBT is going ok? Some huge steps for you - I can’t imagine logging binging and purging is easy at all.
Thinking of you both. And @neroli hello 😊 I wonder if you are a counsellor or similar (I’m not asking, please don’t feel the need to share). You always know what to say and get it right for those that need it.
Trigger warning ⚠️ highs and lows of recovery
So my recovery has taken several turns in this short space of time.
struggles:
I simply cannot stop eating. The first two/three weeks were insane - it was like once I deleted nutracheck, took off my watch, and fully decided I didn’t want this ED life anymore, my brain and body have a huge sigh of relief and I was constantly binging. However - I wasn’t sick. I felt it, I so so so wanted to but I sat with my stomach bursting and got through it. The eating is still A LOT and I’m starting to panic. Nothing fits. I haven’t weighed myself (another recovery win) but I feel so big. I am trying not to look at myself in the mirror but my head is all over the place.

My counselling hasn’t been great - it’s in a group and online and the last session was everyone talking about their specific ED which I found hugely stressful to hear about, and nearly made me spiral

I’m too scared to go back to the gym and have everyone see me bigger.

I feel like everyone is judging me and thinking I’m fat

Positives;
I have so much energy.
I’m happier. Without doubt.
I don’t hate everyone and everything.
I sit with my family to eat meals.
I have been OUT to eat and ordered what I wanted!
I did a full, in person food shop - looking up and down the aisles at everything (it took about 3 hours 🤣). Before I would order the same safe foods in an online shop and would never allow myself to deviate from the same things.

I’m sorry that was a full on rant but felt good to get it out!


 
I'm really sorry but I can't read the last bit of your post, YoungHollwood..It's blurred out.

I'm certainly not a counsellor though..Just had daily experience of surviving with an ED and OCD / anxiety for decades and I'm also a carer for my 2 adult children. Thank god my daughter has no eating distress. Thank you for your kind words which have made me feel useful because I do want to help in some small way and if I can it's great news for me!
 
Just want to pop in to say hello to everyone and to see how everyone is doing.

My treatment had a couple of weeks break and then restarted and has now finished. I am much better than I was before it began but things aren’t 100% (I think, as with everyone life gets in the way, we find it hard to deal with those things and with us eating/exercising is a way to deal with that so what could have been a 90% success is probably 60%).

I’m finding being on certain places on here and insta hard. My wife (currently with OFSTED in😞) is working such long hours and my workplace is stressful so I’m not doing the things I should like read, podcasts etc.

I’m not going to tag anyone, because I know that can seem overwhelming but I hope you are ok Laz ❤. The other thread is a bit much at the mo for various reasons.

Obviously we are getting to a difficult time of year so sending hugs to those who find the constant mention of Sunday dinners, cosy food and the big day hard. I’m there. 😞❤.
 
Hi guys.
I believe it’s my first post on this thread. I was refereed last week by my GP to the eating disorders clinic after about 15 years of suffering with mainly bulimia. I had a call from the eating disorder team yesterday but I missed it and plan to call back today. I seem to have been fast tracked as I’m 4 months post partum and things have got progressively worse. I’m very apprehensive to start treatment. I’ve never ever spoken to anyone about this and it took a lot for me to finally come clean to my GP. Can anybody please share what to expect? Im terrified to open up about this but I’m even more terrified to pass this awful mental illness into my three daughters as my own mother did to me. I don’t know much about the treatment and perhaps it would put my mind at rest to understand more from others who have experienced it.
 
I’m really sorry you are going through this. Firstly, I have no experience with bulimia and secondly I have no experience with going through the GP (I think others on here have experience with both) so I can’t offer you any advice there I’m afraid.

However, you have taken that step (which can seem terrifying and make you want to step away), which is brilliant and shows that you are strong both for you, future you and your daughters. ❤. It must be so hard to go through what you are going through plus being pp, so sending hugs. Please stay on here if you can. We all pop in and out depending on how we feel so there will be someone to listen.

The main thing I learned from my treatment is that you need to be kind to yourself. If you have a bad day or week, you shouldn’t feel guilty or punish yourself. It isn’t a set back. That isn’t the language we should be using. No fresh starts or new beginnings. We just carry on. Trying to be kind, seeing what our bodies need as they recover and navigate their way through life.

It is terrifying to open up, but think about what you and your daughter’s lives will be like if you can. What you will be able to do as a family. Don’t think about the end goal, just a small thing in the future that you would like (for me it wasn’t an evening meal out - too big and still not done, it was a coffee out. We’ve done that ❤- but hopefully on the way to bigger things).

Will be thinking of you xx
 
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