Cancer Influencers #10

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I get she needs her time and time with her husband but before I couldn't watch no more she used to say how unfair it was that she was going through this and the kids shouldn't be left without there mum etc and she wanted to spend all the time with them yet she's away all the time! Not disputing she needs time away who doesn't I'm just saying when it comes down to me doing stuff it's what I can afford and if it's me time or time with my children I alway choose my children.... but then I haven't got a GFM on the go to finance all these stuff.

I'm sorry don't agree with going away with no insurance I know once you mention incurable cancer if triples in price but the stress that would be upon her and her family if anything was to happen..... but then she'd pull out the GFM again....... Thank god for GFM pages as don't know what these people would do without them!

I have to agree with you. Thank god for GFM pages.
I also hold my hands up and admit to going to the USA with my other half that had stage 4 without insurance. We was staying some distance from the tourist area in a private rented villa and he became unwell (or so we thought) but it taught us a hard lesson and a lesson learnt.
One of his cancer symptoms was peeing blood. While abroad he told me he felt unwell and he had peed blood. He made me promise if things got bad not to call for medical help because it would probably bankrupt us or leave us with a whole lot of debt. That night a storm hit the US and it hammered it down with torrential rain and thunder and lightening. He laid in bed and I was in a panic about what to do. I telephoned family on both sides and explained that I thought we was in trouble which then naturally caused them to panic.
If he became unwell and it got to the point he couldn't pass urine what was we going to do? (his cancer caused blood clots to block the urine passage and they would need to be cleared with a catheter).
The next morning I had a long think and remembered we had been to sweet tomatoes buffet place/restaurant and he had eaten a salad with mainly beetroot! He got out of bed and he was fine, it was the beetroot that had turned his urine red.
All was good but it scared me and I in turn had scared our parents. We decided no matter what, we would never leave the UK uninsured.
A few months later a friend of his he had met at the unit where he had immunotherapy was holidaying in Florida with his wife uninsured. He was walking on international drive and crossing the road. They didn't know the US state rule that a car can turn right on a red light. He stepped out, the car turned right, he tried getting back on the pavement but fell and broke his leg. It opened a huge can of worms and cost him financially and delayed him immunotherapy treatment.
Its not worth the risk! All of us think "it wont happen to me". Unfortunately we aren't in control and accidents do happen.
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I don’t have cancer and I do have health insurance but when I accidentally ate something I’m slightly allergic to whilst I was in the US, I had a huge panic about the idea of having to go to the hospital because the American system is so predatory.

Going away for a few days is one thing, but to go so far and so vulnerable is a choice.
Agreed. Me time between couples doesn't need to involve traveling with a risk. They could easily have just gone to the lake district etc. We have some beautiful spots in the UK.
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I see that coconutandbuttercup has passed away. She leaves a wee girl behind. I always thought her energy and positivity throughout her
illness was incredible. RIP.
Fly high Cordelia. Not many knew just how special this lady was to so many in the stage 4 community. Cordelia was the co founder of ACT above and beyond. A service which helps stage 4 patients access trials, find treatments and ultimately buy valuable time. An inspiration. https://www.actaboveandbeyond.co.uk/
 
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I have to agree with you. Thank god for GFM pages.
I also hold my hands up and admit to going to the USA with my other half that had stage 4 without insurance. We was staying some distance from the tourist area in a private rented villa and he became unwell (or so we thought) but it taught us a hard lesson and a lesson learnt.
One of his cancer symptoms was peeing blood. While abroad he told me he felt unwell and he had peed blood. He made me promise if things got bad not to call for medical help because it would probably bankrupt us or leave us with a whole lot of debt. That night a storm hit the US and it hammered it down with torrential rain and thunder and lightening. He laid in bed and I was in a panic about what to do. I telephoned family on both sides and explained that I thought we was in trouble which then naturally caused them to panic.
If he became unwell and it got to the point he couldn't pass urine what was we going to do? (his cancer caused blood clots to block the urine passage and they would need to be cleared with a catheter).
The next morning I had a long think and remembered we had been to sweet tomatoes buffet place/restaurant and he had eaten a salad with mainly beetroot! He got out of bed and he was fine, it was the beetroot that had turned his urine red.
All was good but it scared me and I in turn had scared our parents. We decided no matter what, we would never leave the UK uninsured.
A few months later a friend of his he had met at the unit where he had immunotherapy was holidaying in Florida with his wife uninsured. He was walking on international drive and crossing the road. They didn't know the US state rule that a car can turn right on a red light. He stepped out, the car turned right, he tried getting back on the pavement but fell and broke his leg. It opened a huge can of worms and cost him financially and delayed him immunotherapy treatment.
Its not worth the risk! All of us think "it wont happen to me". Unfortunately we aren't in control and accidents do happen.
---

Agreed. Me time between couples doesn't need to involve traveling with a risk. They could easily have just gone to the lake district etc. We have some beautiful spots in the UK.
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Fly high Cordelia. Not many knew just how special this lady was to so many in the stage 4 community. Cordelia was the co founder of ACT above and beyond. A service which helps stage 4 patients access trials, find treatments and ultimately buy valuable time. An inspiration. https://www.actaboveandbeyond.co.uk/
Saydee, I love your posts. I have learned so much about cancer and strength from you but I also had a chuckle at you and your husband both panicking and beetroot was the culprit ❤

I kept an eye out for Cordelia after reading about her here. Your probably all know the ‘Life Death What’ Instagram page and she made the most lovely post about Cordelia today. I was very sad to read of her passing
 
Does anyone follow che_momcologist, whose very young daughter Poppy has cancer? I wasn’t sure whether to post because she’s pregnant and her daughter’s in hospital getting tests but I just can’t get on board with doxxing.

It could easily be a burner account but she is very open and living life online, regardless of the circumstances, will attract people who think they can offer opinions. The family have a lot on their plate, you’d think she would just ignore it

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Does anyone follow che_momcologist, whose very young daughter Poppy has cancer? I wasn’t sure whether to post because she’s pregnant and her daughter’s in hospital getting tests but I just can’t get on board with doxxing.

It could easily be a burner account but she is very open and living life online, regardless of the circumstances, will attract people who think they can offer opinions. The family have a lot on their plate, you’d think she would just ignore it

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Yes I follow her. If that was me I'd block and ignore rather than making a deal out of it, she explained when she said that Poppys cancer had returned and there was no options left that they was leaving it in natures hand so to speak rather than trying to find alternatives treatments. I do like her although she is another one always asking for donations for the GFM
 
Yes I follow her. If that was me I'd block and ignore rather than making a deal out of it, she explained when she said that Poppys cancer had returned and there was no options left that they was leaving it in natures hand so to speak rather than trying to find alternatives treatments. I do like her although she is another one always asking for donations for the GFM
It’s so tricky. Of course she wants to make memories, who wouldn’t? But asking for GFM donations and choosing to document online does expose them to people offering their opinions. I wouldn’t in a million years email a stranger like that, it just wouldn’t occur to me. But the person has a point. They’ve been to a lot of different places in a short space of time and the length of time Poppy has been in hospital is a concern. But Mum is right, it’s up to the family to do what they want to do and they’ll be doing everything with Poppy in mind.

Idk, it’s a tragic situation and I don’t think anyone will message with their tuppence worth, which is a good thing
 
Simple solution to all the ‘vloggers’ out there, if you don’t want people asking questions don’t put your life online. I am so over the constant victim playing that goes on. They want and create echo chambers. Anyone who questions are trolls. They quickly put out the begging bowl but again no questions can be asked. I’m over it.
 
It’s so tricky. Of course she wants to make memories, who wouldn’t? But asking for GFM donations and choosing to document online does expose them to people offering their opinions. I wouldn’t in a million years email a stranger like that, it just wouldn’t occur to me. But the person has a point. They’ve been to a lot of different places in a short space of time and the length of time Poppy has been in hospital is a concern. But Mum is right, it’s up to the family to do what they want to do and they’ll be doing everything with Poppy in mind.

Idk, it’s a tragic situation and I don’t think anyone will message with their tuppence worth, which is a good thing
From what I can gather the GFM was initially set up so her husband could take time off work to be either at the hospital or at home/do school runs with the boy and the money would be to pay bills etc! Obvs now that's all changed and the money is being used to go places. Agree she's been to a lot of places and around a lot of people that she wouldn't normally be around as they have kept her isolated or she's been in hospital. This time of year is bad for germs and for someone with little or no immune system she would be prone to catching everything. Saying that they want to create memories which I don't blame them and they have probably done everything they can to ensure she stays safe but they do have to be careful and I agree with the poster that it is along time to be in hospital
 
What memories are being created if you are taking a sick child here there and everywhere and they then becoming ill and spend time in hospital? Why not spend that precious time at home where they are loved and safe. Go for days now and then but create beautiful memories in the home where you all live.
 
I’m always on the fence about GFMs and I think allowing someone to take time off work is a good thing (in saying that, I think Amy Rambo’s family took the piss a bit with their one). And the trip to Disneyland that the taxi drivers charity organised did look fabulous…I just worry that for Poppy, it’s all been too much. I’m keeping everything crossed it’s nothing sinister but also hope that when she’s out of hospital, she’s not going here, there and everywhere because whatever this is, it’s taking it out of her
 
I’m always on the fence about GFMs and I think allowing someone to take time off work is a good thing (in saying that, I think Amy Rambo’s family took the piss a bit with their one). And the trip to Disneyland that the taxi drivers charity organised did look fabulous…I just worry that for Poppy, it’s all been too much. I’m keeping everything crossed it’s nothing sinister but also hope that when she’s out of hospital, she’s not going here, there and everywhere because whatever this is, it’s taking it out of her
I would grudge anyone taking time off but if asking for money to cover bills do that.... not when things get worse use it to go on holidays. By the looks of her instagram Poppy hasn't stopped, 2 abroad holidays in the space of 2 weeks, a caravan holiday and then straight to Disney! The poor child no wonder she can't recover from a sickness bug her body is probably too tired to fight everything!
 
I just sat down and watched the Kris H new documentary on bbc2. God so much more emotional than I thought it would be. The scene with her sister and friends sat around her and caring for her at the end was heartbreaking but also so lovely. God 😭😭😭😭😭
I watched it last night. Very very sad. Curious about her wider family, are her and her sister estranged from their parents? There is never any mention of them? The bond they had was incredible, her twin must be completely lost without her 💔
 
I would grudge anyone taking time off but if asking for money to cover bills do that.... not when things get worse use it to go on holidays. By the looks of her instagram Poppy hasn't stopped, 2 abroad holidays in the space of 2 weeks, a caravan holiday and then straight to Disney! The poor child no wonder she can't recover from a sickness bug her body is probably too tired to fight everything!
Quoting myself because I meant I wouldn't grudge anyone....... need to proof read before posting 🙈
 
Che momcologist said they need to know what's going on so they know if to cram more in of their bucket list. Not sure that's a wise approach but hey I'd be a troll for voicing this opinion?

I feel if Poppy was still able to attend school, she wouldn't hesitate to call out people who send their child in with the sniffles.
 
Che momcologist said they need to know what's going on so they know if to cram more in of their bucket list. Not sure that's a wise approach but hey I'd be a troll for voicing this opinion?

I feel if Poppy was still able to attend school, she wouldn't hesitate to call out people who send their child in with the sniffles.
Her cancer markers seems to have come down from there last tests so whatever they are giving her is working. I know Jude hasn't been at school since they went back after summer but are they planning on allowing him to return?
 
Che momcologist said they need to know what's going on so they know if to cram more in of their bucket list. Not sure that's a wise approach but hey I'd be a troll for voicing this opinion?

I feel if Poppy was still able to attend school, she wouldn't hesitate to call out people who send their child in with the sniffles.
Who is this about?
 
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