Autism moms and advocates

[anydaynow]

You put your points across very well. None of the ones you mentioned are advocates. Watching some of them their lives look like a living hell. Its heartbreaking. Like I said about Nicole, she goes to great lengths to make her life with her child look a nightmare so she can garner fame and attention but her life doesn't look like hell at all. The more she pushes it, the worse she looks. Could you recommend one or 2 people who actually educate on asd.


Upsidedownlife I think she goes under

That’s the thing though, Elaine (lifeupsidedown) gets praised often for being so “open” about her life but it’s at the expense of her children. Their autonomy has been taken away from them, she has often showed them having meltdowns which is absolutely disgusting but she claims it’s all in the name of raising awareness. The only awareness her and other parents like her are raising is how they resent their children. They don’t educate on autism at all. No other parents of a child with a disability would get away with what autism moms do it baffles me.

Nicole is desperately trying to get as big as Find Coopers Voice, the autistic community often talk against FCV because she makes a lot of money exploiting her son on YouTube and Facebook.

I’m you follow the #actuallyautistic on Instagram or Twitter you’ll find loads of real advocates that educate on autism

 

[LilMissSunshine]

You put your points across very well. None of the ones you mentioned are advocates. Watching some of them their lives look like a living hell. Its heartbreaking. Like I said about Nicole, she goes to great lengths to make her life with her child look a nightmare so she can garner fame and attention but her life doesn't look like hell at all. The more she pushes it, the worse she looks. Could you recommend one or 2 people who actually educate on asd.


Upsidedownlife I think she goes under

Queenovershare is lovely. Educates on autism and does highlight the issues but also is soo positive and accepting of her gorgeous son

 

[Sleep_deprived]

From what I heard. Nicole (my boy blue) is actually working with my canine companion. Elaine doesn’t follow them (my boy blue) anymore. Elaine was very close to linzy. Linzy raised the funds (which she still has and people fundraised for her too) for the dog around the time Elaine did. Elaine got a dog and linzy didn’t. I’d be fuming too if I went to the lengths linzy did to get a dog for her child. There was talk of Nicole having a role to play in why she didn’t get one. Which if it’s true is actually disgusting. I think that’s why the friendships ended... plus I did hear of the WhatsApp group but don’t know what was going on inside it.

 

[Whitefloor]

Linzy said on her story before that she donated the money to her son's school. I think for a minibus so they could go on day trips. I also saw on a call out page something about that WhatsApp group and Nicole telling people they didn't have it as bad as her because their child could talk

 

[#obsssessed]

That’s really lousy if the cork mafia stopped Linzy from getting a dog, that’s what I don’t get about it it seems anyone who raises 10k gets a dog. That’s easy for a blogger but the ordinary Joe Soap will find it hard
so far I’ve seen
My Boy Blue
Little Kimmy
Life upside down
Life of Reilly (Ali Dee sister)
All get a dog recently and yer one Ellen is currently fundraising for one!!

 

[anydaynow]

That’s really lousy if the cork mafia stopped Linzy from getting a dog, that’s what I don’t get about it it seems anyone who raises 10k gets a dog. That’s easy for a blogger but the ordinary Joe Soap will find it hard ☹
so far I’ve seen
My Boy Blue
Little Kimmy
Life upside down
Life of Reilly (Ali Dee sister)
All get a dog recently and yer one Ellen is currently fundraising for one!!

Yep and they are all close with Nicole, it wouldn’t surprise me in the least if Nicole had and a say in all of that because she raises a lot of money for them. From what I gather Elaine has no time for Nicole she has mentioned how bigger autism moms never mention the smaller accounts and I always felt like that was a dig at Nicole.

 

[PandoraRose]

Yep and they are all close with Nicole, it wouldn’t surprise me in the least if Nicole had and a say in all of that because she raises a lot of money for them. From what I gather Elaine has no time for Nicole she has mentioned how bigger autism moms never mention the smaller accounts and I always felt like that was a dig at Nicole.

My friend has given up hope of getting a dog at this point to be honest, there's definitely a pecking order among the cork autism mammies and they seem to get the dogs, school places etc

 

[Mary.M]

That’s awful if all that is really true my canine companion should be investigated that’s so unfair on ppl anyone that’s applying for a dog obviously needs one so what makes one persons needs greater then another and why should anyone out side of the organisation be allowed to dictate who gets a dog and who doesn’t and if Nicole did tell someone she has it harder then them because their child is verbal and hers isn’t she obviously isn’t that educated in autism just because a person on the spectrum is verbal doesn’t make their needs any less then someone who isn’t verbal

 

[anydaynow]

Elaine has been very quiet today, if she’s seen this thread she’ll be on guns blazing tomorrow telling everyone how awful her life is again looking for sympathy. Then her bestie Lenore will be on backing her up and then all the rest of the autism moms will be on tagging her and praising her for being so open about hating her life with her kids

 

[Rosieposie 74]

I know of a family who had 2 assistance dogs.. For one teenager...north cork... Again not what you know but who you know.. All the same area roughly

 

[PandoraRose]

Elaine has been very quiet today, if she’s seen this thread she’ll be on guns blazing tomorrow telling everyone how awful her life is again looking for sympathy. Then her bestie Lenore will be on backing her up and then all the rest of the autism moms will be on tagging her and praising her for being so open about hating her life with her kids

And the passive-aggressive quotes will start

 

[Taylor17]

Elaine has been very quiet today, if she’s seen this thread she’ll be on guns blazing tomorrow telling everyone how awful her life is again looking for sympathy. Then her bestie Lenore will be on backing her up and then all the rest of the autism moms will be on tagging her and praising her for being so open about hating her life with her kids

Is it wrong of her to acknowledge she hates her life as an asd mother? I've heard her talking about getting slack because of her honesty.

 

[Mona86]

Sharon from our wheely big journey was always chasing numbers and attention

 

[Law7712]

Completely agree about Nicole, talking about stuff going on but can’t say what it is. Like what’s the point. Also do herself and Elaine not get on ??

There’s def an element of who you know and not what you know when it comes to My Canine Companion, there’s something dodge going on for sure!
nicole I can’t take to at all as I said before it’s all drama with her, she used to wreck me coming on to tell a story, it would take forever!! Or this thing where she can’t tell you what’s going on but still talks about it There’s a lady in America who blogs about her son and Nicole is trying to be like her!!

Also what happened Nicole’s meeting with Minister Josepha Madigan. She kept tagging her and was often aggressive. She eventually got the meeting then Nicole cancelled it. Apparently it was rescheduled but did it ever happen ? I also thought she was very aggressive about Joe McHugh the previous minister for education.

 

[Requiemforadream]

I agree Nicole can come across as quite aggressive. I wonder what effect that has on their lives? I know it's easy to comment and I don't know what's going on for anyone else in their life, but I would imagine a Mother being super stressed and annoyed could create a tense atmosphere in the home and add to any anxiety felt by their child or children.

 

[Dusty2020]

Is it wrong of her to acknowledge she hates her life as an asd mother? I've heard her talking about getting slack because of her honesty.

I don’t follow too many autism mammys but out of those I do I really feel bad for Elaine, she really does have it so tough, not taking away from any other mammys/autism mammys as we all have tough days but elaines circumstances are heartbreaking I stopped following her as every time I watched her stories my heart broke for her so I stopped watching for my own mental health

 

[#obsssessed]

Is it wrong of her to acknowledge she hates her life as an asd mother? I've heard her talking about getting slack because of her honesty.

In my opinion it’s not wrong for her to say how she feels, I think the slack she gets is from people who don’t know what it’s like!

 

[Law7712]

In my opinion it’s not wrong for her to say how she feels, I think the slack she gets is from people who don’t know what it’s like!

I really like Elaine. She has a very tough life. I admire her honesty.

 

[anydaynow]

I have a non speaking autistic 7 year old daughter. She has a lot of needs and faces challenges every day because she’s living in a world that is not built for her. I am her full time carer. I know exactly what it’s like but I would never in a million years make a social media account and call myself an advocate if all I did was complain about how my life is affected by my daughter. How can anyone not see how wrong that is.

Let me say it this way. Faces by Grace, Rachel Gorry are women who get slated over their parenting and having their kids on social media. Everything they do with their kids is talked about here, so why is it ok for a mother of an autistic child to do it? None of their kids give consent or are not able to, imagine FBG came on and complained and cried everyday about her kids. She would be crucified and you all know it.

My point is yes its really tough having a child with additional needs and we have a right to express our feelings BUT not on social media to thousands of people. My daughter is not a neurotypical child that’s damaged, she’s autistic. I see her for the things she does and can do, I don’t cry to strangers about the things she can’t I accepted her for who she was a long long time ago.

This is not just about Elaine it’s all of them and as I said above actual autistic teens and adults don’t agree with them.

 

[Taylor17]

You make very valid points. It's true, we only see what these children on some accounts can't do and the heartbreak of their parents and feel empathetic towards them.