Autism moms and advocates

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PandoraRose said:
From what I remember, lenore had a competition for a trip somewhere in the uk and she said she was going to make sure it went to a carer or someone she felt deserved it best. In the comments someone asked if they had to explain why they deserved it and Lenore said that no, it was open to everyone but the girl asked was the point if Lenore was going to hand pick the winner?
Then Lenore put up a big status about how she was sick of tit and her minions on her page went after this girl, I was absolutely disgusted and unliked and unfollowed straight away
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God I never heard about this before!! That’s such bad form ☹️

does anyone know why there’s a split with them and My Boy Blue??
 
Anyone remember a couple of years ago when fota island announced their autism friendly hours? Nicole was on ranting and raving about how disgraceful it was that the hours were first thing in the morning and not inclusive then the next week was out there on a #gifted visit and suddenly it was brilliant. Can't stand her since then. I've a bit rileys age with autism and I feel his life is hard enough without 1000s of strangers knowing all about his bad days and his worries and how stressed out is mammy is
 
PandoraRose said:
How would Elaine stop her from getting a dog? My friend messaged her about how she found her experience of getting a dog, she read but ignored it and she then messaged Lenore from outinthestickswithsix about getting one through the guide dogs and again read and not answered. I bet if you messaged them about something for free they'd respond straight away😡😡
I unfollowed Elaine after that, I'd already unfollowed Lenore after the way someone was treated after asking a question about a competition on her page😡😡
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To be fair most of them would have highlights on these things .
 
Onthebandwagon said:
I can’t stick Nicole stating on julies post why she’s jus so self centered it’s not even about her son it’s all about her she’s using R and his autism like it’s a game show it’s like wat she can get out of it
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What did Nicole state on Julie's post? Is it twins and me Julie?
 
How did Nicole fare out in her fight with Joe Mchuge. She was stalking him and very using very threatening language. I can't remember what she wanted that time but I felt that her "fights" are never really about the child. She has rage inside of her and I'd say she was probably like that before riley came along. The way she tries to give the evil eye into the phone is laughable. People give into her because she isn't worth the hassle not because she took on an injustice and fought an intelligent, well informed battle. The best thing about lockdown is they can't do those woman of the yr get togethers
 
Nicole is an attention seeker. As godmother and aunt to a non verbal autistic boy aged 8, I’m not undermining or igniting autism is very hard. But I think it suits Nicole to have this in her life. She had made it her whole life. She wants to argue everything from the eyes of autism, hoping she will go viral. There used be a WhatsApp group with Sharon (our wheels big journey) and Lisa (my small wonder) and apparently Nicole always wanted her situation to be worse. If she hadn’t posted in a day she would expect them to be like ‘ are you ok hun’ etc . She doesn’t want to raise highlights for autism she’s seeking fame as she has made this her whole life. You can be an autism mom/parent and still have friends / a job / a house of your own - it’s hard. But you don’t have to make it all you are & then be bitter
 
Mona86 said:
Nicole is an attention seeker. As godmother and aunt to a non verbal autistic boy aged 8, I’m not undermining or igniting autism is very hard. But I think it suits Nicole to have this in her life. She had made it her whole life. She wants to argue everything from the eyes of autism, hoping she will go viral. There used be a WhatsApp group with Sharon (our wheels big journey) and Lisa (my small wonder) and apparently Nicole always wanted her situation to be worse. If she hadn’t posted in a day she would expect them to be like ‘ are you ok hun’ etc . She doesn’t want to raise highlights for autism she’s seeking fame as she has made this her whole life. You can be an autism mom/parent and still have friends / a job / a house of your own - it’s hard. But you don’t have to make it all you are & then be bitter
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Yeah I think she’s definitely in it now for the fame maybe when she started it was to help raise awareness but I definitely think she’s lost the run of herself as her account got bigger I was very annoyed when she was giving out over the July provision program this year now don’t get me wrong it was a disaster for many families but I just felt because it was of no benefit to her she was giving out but if it was of benefit to her she would of been on blowing it up that it was the best thing ever I feel she does the same when she’s gifted autism friendly toys there amazing and the best thing ever she never gives any negative feed back and that’s very misleading for families of children with autism I’m not saying there is anything wrong with the products but when she’s gifted something she is ott on how amazing they are when maybe you could get the same thing cheaper on another site
 
Mona86 said:
Nicole is an attention seeker. As godmother and aunt to a non verbal autistic boy aged 8, I’m not undermining or igniting autism is very hard. But I think it suits Nicole to have this in her life. She had made it her whole life. She wants to argue everything from the eyes of autism, hoping she will go viral. There used be a WhatsApp group with Sharon (our wheels big journey) and Lisa (my small wonder) and apparently Nicole always wanted her situation to be worse. If she hadn’t posted in a day she would expect them to be like ‘ are you ok hun’ etc . She doesn’t want to raise highlights for autism she’s seeking fame as she has made this her whole life. You can be an autism mom/parent and still have friends / a job / a house of your own - it’s hard. But you don’t have to make it all you are & then be bitter
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2 things, was that Lisa one outted as a call out page?
All that wheels big journey, wow she really wants to be a big blogger, constantly tagging, im embarrassed for her sometimes. She went on a huge rant last year about how she was happy in her body, didn't like being asked to lose weight for health purposes?!?! And now she's in SW 🤯
 
Teaspillingtheory said:
2 things, was that Lisa one outted as a call out page?
All that wheels big journey, wow she really wants to be a big blogger, constantly tagging, im embarrassed for her sometimes. She went on a huge rant last year about how she was happy in her body, didn't like being asked to lose weight for health purposes?!?! And now she's in SW 🤯
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Never heard that about Lisa 😳 used to follow her but had to stop all her moaning and complaining and nothing of any interest... yawn!
 
#obsssessed said:
It def wasn’t the lady from joining the dotz, it was another girl who went by Lizzie Raisin. She seems to gone off insta now
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Ya it was lizzie raisin music teacher from kerry. Falling out between Elaine and linzy was something to do with Nicole and a what's app group I'm sure. It was something petty anyway. Loved Elaine and linzys friendship. Nicole is trying to be like Kate from finding coopers voice. Everything a big drama.Nicole Always fishing looking for random stuff for the child fair enough he has special interest but as a mom of child with asd we have been told by phycologist to not let obsessions take over day to day life. Special interest is fine but obsessions needs to be toned down.
 
None of these are autism advocates. They use their social media as a platform to show hard THEIR life is with autistic children. All we ever hear from Elaine is her complaining about her children and how difficult her life is with them. She's still hasn't accepted her children for who they are even after all this time.

I am not saying her feelings aren't valid but she is not an advocate or helping to raise acceptance for autism and most of these "autism moms" are the same it's all about them. Have a look on Instagram and Twitter for autistic parents of autistc children and you'll see how different it is. Autistic people are very much against accounts like Nicole's and Elaine's. My daughter is autistic and the best thing I did was learn from autistic people on social media

Also there was a lot of drama on one of the Facebook groups about nicole getting the service dog when she did. People who had raised the money and were on the list before her caused uproar over it.

Nicole is definintely not the person everyone thinks she's is, linzy and a few others fell out with her over that whatapp group. She's constantly trying to go viral with her son, his special interests are amazing but she uses him as inspiration porn constantly. I just can't stand these parents exploiting their kids.

Apologies for the essays it's just a very personal and touchy subject
 
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anydaynow said:
None of these are autism advocates. They use their social media as a platform to show hard THEIR life is with autistic children. All we ever hear from Elaine is her complaining about her children and how difficult her life is with them. She's still hasn't accepted her children for who they are even after all this time.

I am not saying her feelings aren't valid but she is not an advocate or helping to raise acceptance for autism and most of these "autism moms" are the same it's all about them. Have a look on Instagram and Twitter for autistic parents of autistc children and you'll see how different it is. Autistic people are very much against accounts like Nicole's and Elaine's. My daughter is autistic and the best thing I did was learn from autistic people on social media

Also there was a lot of drama on one of the Facebook groups about nicole getting the service dog when she did. People who had raised the money and were on the list before her caused uproar over it.

Nicole is definintely not the person everyone thinks she's is, linzy and a few others fell out with her over that whatapp group. She's constantly trying to go viral with her son, his special interests are amazing but she uses him as inspiration porn constantly. I just can't stand these parents exploiting their kids.

Apologies for the essays it's just a very personal and touchy subject
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Who is Elaine?
 
anydaynow said:
None of these are autism advocates. They use their social media as a platform to show hard THEIR life is with autistic children. All we ever hear from Elaine is her complaining about her children and how difficult her life is with them. She's still hasn't accepted her children for who they are even after all this time.

I am not saying her feelings aren't valid but she is not an advocate or helping to raise acceptance for autism and most of these "autism moms" are the same it's all about them. Have a look on Instagram and Twitter for autistic parents of autistc children and you'll see how different it is. Autistic people are very much against accounts like Nicole's and Elaine's. My daughter is autistic and the best thing I did was learn from autistic people on social media

Also there was a lot of drama on one of the Facebook groups about nicole getting the service dog when she did. People who had raised the money and were on the list before her caused uproar over it.

Nicole is definintely not the person everyone thinks she's is, linzy and a few others fell out with her over that whatapp group. She's constantly trying to go viral with her son, his special interests are amazing but she uses him as inspiration porn constantly. I just can't stand these parents exploiting their kids.

Apologies for the essays it's just a very personal and touchy subject
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You put your points across very well. None of the ones you mentioned are advocates. Watching some of them their lives look like a living hell. Its heartbreaking. Like I said about Nicole, she goes to great lengths to make her life with her child look a nightmare so she can garner fame and attention but her life doesn't look like hell at all. The more she pushes it, the worse she looks. Could you recommend one or 2 people who actually educate on asd.

Rosieposie 74 said:
Who is Elaine?
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Upsidedownlife I think she goes under
 
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