Tiffany Thinks #10

[Leofeldhas]

This is one of those things that certainly sounds correct, but isn't. Pelvic exenteration was first done in the 1940s as a palliative procedure. Even now, PPE (palliative pelvic exenteration) is still done. It's mostly for recurrent pelvic cancers like colorectal and gynecological cancers. I guess if someone has blockages and widespread (but localized) cancer, they've exhausted the chemo and radiation route, and they want to live a little longer, it's the only option.

Here's the (edited to be shorter) text of a 2019 study on PPE: "Twenty-three historical cohorts and case series were included, comprising 509 patients. Most malignancies were of colorectal, gynaecological and urological origin. Common indications for PPE were pain, symptomatic fistula, bleeding, malodour, obstruction and pelvic sepsis. ...the median in-hospital mortality was 6.3%, and median overall survival rate was 14 months. Some symptom relief was reported in a median of 79% of the patients, although the magnitude of effect was poorly measured. Data for QoL measures were inconclusive. Five studies discouraged performing PPE in any patient, while 18 studies concluded that the procedure can be considered in highly selected patients."

I'm not saying Tiffany's surgery is palliative. There's no indication of that. Just that some people are willing to do anything for a little more time and some surgeons are willing to do it.

that´s interesting. thank you for that research.

 

[SueB]

It’s not about moving mountains, sometimes it’s about patient safety. I would prefer a patient who was seriously unwell or recovering from a major operation to be in a high obs bay so they are in sight and can be monitored closely. In a side room that isn’t always practical, they may not always be well enough or with it enough to ring their bell for assistance. I’m glad you got that care though.

As I said in my post however, she has never complained about any sort of intestinal blockage or other symptoms.
I think they have told her it's the best chance she has of bring cancer free. I still can't get my head around that August meeting where she was told there was no cancer though.

I was told to pretty much ignore cancer marker blood tests as they are so inaccurate. Tiffany is writing them in her bullet journal.

She's so tiny I'm sure it's going to be like operating on a child for the surgeon. I really don't envy her. I've been thinking a lot about the recovery period of both my cancer ops and remember the dreadful backache I had from the long period on the operating table. What I'm confused about is I never had morphine- the strongest drug I was given was paracetamol IV. She's had morphine- even before surgery.

 

[KarinaBallerina]

As I said in my post however, she has never complained about any sort of intestinal blockage or other symptoms.
I think they have told her it's the best chance she has of bring cancer free. I still can't get my head around that August meeting where she was told there was no cancer though.

I was told to pretty much ignore cancer marker blood tests as they are so inaccurate. Tiffany is writing them in her bullet journal.

She's so tiny I'm sure it's going to be like operating on a child for the surgeon. I really don't envy her. I've been thinking a lot about the recovery period of both my cancer ops and remember the dreadful backache I had from the long period on the operating table. What I'm confused about is I never had morphine- the strongest drug I was given was paracetamol IV. She's had morphine- even before surgery.

I'm sorry, I can't remember the title of the Youtube to link it, but I did find one Youtube of Tiffany complaining of a blockage, vomiting, blood, and mucous. It was either right before or right after she got her port out. No idea if it turned out to be a real blockage or if she assumed it was because of her symptoms.

 

[pooch&mutt]

First 50 seconds of the video "I didn't sleep the best last night, i think i'm just so ready to go home... because today's Sunday. So I think yeah, I just wanna go home and I just need to kind of just, like i need to go home. I feel like you know when... ah.. I feel fine, I need to get home. Even if I'm bleeding at home it's fine."

HOW MANY TIMES MUST SHE REPEAT A SINGLE SENTIMENT? Is she afraid we won't understand her if she doesn't say everything 5 times?

I'm really losing it with her, not going to watch the video, just the bits you guys pointed out. Geez.

I did exactly the same..used the whizzer box at the bottom to watch the castle and the very awkward clinch/wrestle whatever tf that was at the end and scanned a bit of the transcript..and even just reading it made me confirm all my beliefs about T..our girl is a f****** idiot..let Me just repeat that as she would our girl is a complete and f****** idiot..

 

[truthspeak]

It must be absolutely killing Amma. It bleeping breaks my heart. I slightly clipped my son's finger when I was cutting his nails the other day and cried for 20 minutes because I felt so bad (he didn't even give a tit). I can't begin to imagine how to process watching your child go through this and knowing they might not make it anyway. Now it's getting closer and more real I don't even feel I can joke about her behaviour anymore (I'm not policing or judging anyone who can btw), it's just really all starting to sink in she is actually going to have to face this and it's bleeping horrific

It’s really actually so sad, so scary. The surgery just looks so frightening

Skin crawlers for me :

1. Baby voice
2. Hissy fit that she MUST see her surgeon
3. DRAMATIC thumbnail and title with no development to story.
4. Shots of herself feeling cosy in bed/dozing off.
5. Any kind of attempt to eat which we see now she's defo doing it for the camera and the viewers to show that she does not have an eating disorder.

The cake topper would have to be the latest sexual harassment scene. She definitely looks uncomfortable with Matt groping her.

skin crawlers for me +rant!
1.the screechy baby voice even with her nephew.
2. Ignoring really sound advice especially about diet. She’s having an iron infusion now, but for months I’d leave comments advising her to take iron supplements due to her blood loss and to eat foods like kale and spinach and top up her vitamin b or take well woman tablets.
But my comments were ignored or deleted.
3. Her awful diet and the fact she won’t make a huge change to eat foods that are better for her disease and overall health and well being.
4.Her repetition of the same words or sentences over and over
5. Her boyfriend Matt- something about that dude sorry
6. Amma’s enabling and aloofness, I’m sorry but Amma is strong, she came from her home country to France, to England she raised two daughters literally on her own and can drive but behaves as if she has no clue.
7.Tiffany is lazy. If the doctors say jump she will jump if any of her viewers tell her to exercise and suggest improvements she ignores.
8. Pretence of not wanting gifts and treats! Girl just say I’d appreciate anything you wanna share and stop being phoney..
There I said it.
Sorry, not sorry

 

[Turaj]

I'm not taking it personal to my circumstances, I was simply using them to show they can and do put people in private rooms when they shouldn't usually be. I never mentioned post-op. You don't see it as moving mountains to do something for a patient out of compassion, I do. Agree to disagree.

post op will be a well staffed ICU so private to a point...after that who knows?

 

[pooch&mutt]

Do you think he didn’t push for it because of the spread of cancer to her lungs?
Does anyone know if it’s possible to remove cancer from the lungs too?
so after the PE surgery then that lung area will have to have biopsies or treatment too?
This is quite the load to carry for such a petite woman. I’m not clear about the lung area and I’m hoping she doesn’t go through all of this to then have that lung area ignored, then more growth from pre surgery to discharge from hospital.

there’s no proof that there is any spread to her lungs as lots of us could have an enlarged node in our lungs due to a past infection..plus it didn’t change after her chemo which more than likely would of happened if it was cancer..

 

[Leofeldhas]

gosh..I just realized that I use the TT baby voice when I talk to my mom´s cat

 

[pooch&mutt]

The thing that gets me is that she SO lives in her own little world - now, I totally understand of course how all-consuming her illness is and that's to be expected, but most other health 'grammers I follow (other than NNL but we won't go into that) have some awareness of other things going on in the outside world. She really doesn't exist outside of her house or her hospital room, or maybe a cafe. Hence she can't tell a church from a castle. It's quite scary to me how somebody just doesn't relate to external events - I mean, our whole country is pretty much on strike, there's food poverty, Covid, the planet is dying - and still, the most important thing her world seems to be what sort of salty fatty food she can nibble on next (which I hate, by the way. Just bloody eat it NORMALLY).

I know she bites into her food more carefully than an I’m a celeb get me out of here contestant on a bush tucker trial..

 

[Leofeldhas]

That is very true. We always assume it's a given but nothing with Tiffany is as clear as that. She does seem to have incredibly extensive cancer and considering noone else would operate, it wouldn't be a huge stretch for this surgeon to change his mind now her case is actually worse. It's just all so sad. In my gut I can't believe she won't have microscopic spread elsewhere considering how locally invasive it already is and how long it has been. I still can't fathom why they have waited this long to do the surgery? What isn't she telling us? Everything I suppose.

she keeps exploiting her illness. information about the diagnosis and treatment is only given in small pieces here and there. that keeps the viewers guessing and watching. the emotional *cancer* headlines work as well. clever technique, like in soap operas.

 

[oceanbaby]

This is one of those things that certainly sounds correct, but isn't. Pelvic exenteration was first done in the 1940s as a palliative procedure. Even now, PPE (palliative pelvic exenteration) is still done. It's mostly for recurrent pelvic cancers like colorectal and gynecological cancers. I guess if someone has blockages and widespread (but localized) cancer, they've exhausted the chemo and radiation route, and they want to live a little longer, it's the only option.

Here's the (edited to be shorter) text of a 2019 study on PPE: "Twenty-three historical cohorts and case series were included, comprising 509 patients. Most malignancies were of colorectal, gynaecological and urological origin. Common indications for PPE were pain, symptomatic fistula, bleeding, malodour, obstruction and pelvic sepsis. ...the median in-hospital mortality was 6.3%, and median overall survival rate was 14 months. Some symptom relief was reported in a median of 79% of the patients, although the magnitude of effect was poorly measured. Data for QoL measures were inconclusive. Five studies discouraged performing PPE in any patient, while 18 studies concluded that the procedure can be considered in highly selected patients."

I'm not saying Tiffany's surgery is palliative. There's no indication of that. Just that some people are willing to do anything for a little more time and some surgeons are willing to do it.

Wow, that's quite dire with a median overall survival rate of only 14 months. I wonder how similar this is to Tiffany's exact situation. Hopefully, not very. Tiffany seems to believe she has a high chance of it being curative, so I assume her surgeon must have given her some confidence in this area. If he told her it likely will only buy her more time, I find it hard to believe she could be behaving so optimistically. And, yes, I do know Tiffany is a stick her head in the sand type, but... still..

 

[Daisychain4]

Better to be on a bay post op. More visible and easier to monitor. I don’t think surgeons have much power over bed managers. Especially NHS. Beds in side rooms are for barrier or EOL, there isn’t the capacity to do it just because it’s nicer for the patient. But who knows!

Haha … now that made me smile! Good to know the proverbial Bed Manager is the boss of all bosses in other countries too. You are right, Drs would need a pretty big box of chocolates to navigate that thought.

 

[BCrowl]

she keeps exploiting her illness. information about the diagnosis and treatment is only given in small pieces here and there. that keeps the viewers guessing and watching. the emotional *cancer* headlines work as well. clever technique, like in soap operas.

That is exactly what drives me crazy about this channel! It does feel like a soap opera, and with something this serious, it shouldn’t be this way. I also don’t like the way she keeps us confused about when things are actually taking place. Her earlier videos didn’t seem like this to me. I don’t care for the way she edits, either. She quickly cuts things out, like when she recorded conversations with the doctors and nurses. She always cut out anything that was important.
But she says in the pinned comment under Tuesday’s video, that she will be back on schedule after Thursday’s video (which was yesterday). So maybe things will be a little clearer on Sunday’s video!

 

[Leofeldhas]

That is exactly what drives me crazy about this channel! It does feel like a soap opera, and with something this serious, it shouldn’t be this way. I also don’t like the way she keeps us confused about when things are actually taking place. Her earlier videos didn’t seem like this to me. I don’t care for the way she edits, either. She quickly cuts things out, like when she recorded conversations with the doctors and nurses. She always cut out anything that was important.
But she says in the pinned comment under Tuesday’s video, that she will be back on schedule after Thursday’s video (which was yesterday). So maybe things will be a little clearer on Sunday’s video!

whatever "back on schedule" means...
she could be more precise, for example tell her viewers if or when the meeting with the other doctors involved will take place.
she could also tell them the biopsy results, means the grading (G1 to G4) of the cancer cells.
but we shall see on Sunday

 

[Lululime]

Haha … now that made me smile! Good to know the proverbial Bed Manager is the boss of all bosses in other countries too. You are right, Drs would need a pretty big box of chocolates to navigate that thought.

Absolutely agree. We all know where the power sits these days. Nice to think that people still think it sits with the clinicians - but a bit outdated. PP will be run as a business and have a business manager as well.

Smoke and mirrors and slight of hand.

 

[jiggy_girl]

Better to be on a bay post op. More visible and easier to monitor. I don’t think surgeons have much power over bed managers. Especially NHS. Beds in side rooms are for barrier or EOL, there isn’t the capacity to do it just because it’s nicer for the patient. But who knows!

After a procedure like that she'll be in a private room on ICU/HDU for probably a week or two, I doubt she'll be around others for weeks. She's in a hospital with swathes of private rooms, she won't be put on a ward until her stomas etc., are under control, until she is stable

 

[Daisychain4]

Absolutely agree. We all know where the power sits these days. Nice to think that people still think it sits with the clinicians - but a bit outdated. PP will be run as a business and have a business manager as well.

Smoke and mirrors and slight of hand.

Even if there was potential for Tiffany to be allocated to a private room post ICU, she would no doubt need to move out to accommodate the real ‘need’ at some point during her hospital stay and this scenario is so often more distressing to the patient, than not being allocated private in the first place.
Given her plans to bring the entire kitchen sink with her, in reality, she is in for a big shock.
I can understand how everyone feels it would be good/nice for her to be allocated a private room, but with all due respects, if you want a private room, either join a fund or fund it yourself.
Tiffany is facing a huge hurdle indeed… but so is everyone else who finds themself in hospital. I don’t agree with the thought of a private room ‘on the house’ just because of what surgery she is having. In an ideal world perhaps, but we live in a real world which is far from ideal in many ways. Tiffany IMO actually needs some ‘real world’ experience to put things back into perspective for her. Just maybe a slap back to reality will give her some direction and fight because it’s all way to fluffy at this point to see her having the grit she’s going to need to get through. Tough love is a very real entity …

 

[Idrisrex]

gosh..I just realized that I use the TT baby voice when I talk to my mom´s cat

Yes and then the look they give you. Something like; you daft idiot, please behave yourself in front of people .

 

[suzeq]

Based on how Amma seems to "pop" into views in the kitchen, I suspect Amma might actually have a lower level bedroom in the house, not one upstairs. If so, wonder if Tiffany will take it over during her convalescence in order to avoid the stairs and have kitchen preps available nearby for those assisting her?

 

[Wildflowerss]

That is exactly what drives me crazy about this channel! It does feel like a soap opera, and with something this serious, it shouldn’t be this way. I also don’t like the way she keeps us confused about when things are actually taking place. Her earlier videos didn’t seem like this to me. I don’t care for the way she edits, either. She quickly cuts things out, like when she recorded conversations with the doctors and nurses. She always cut out anything that was important.
But she says in the pinned comment under Tuesday’s video, that she will be back on schedule after Thursday’s video (which was yesterday). So maybe things will be a little clearer on Sunday’s video!

What exactly do you need to be clearer? I get that during the WW option and the weeks of WW everyone was confused. Everyone flocked here to discuss it, that's when TT threads were created to figure out why the hell did they offer WW. What was seen in the scans, what did the doctor tell her, what did her bloodwork say, what happened to the tumor ...on and on. We were confused after WW was an option and T took it and never explained it.
Isn't the confusion about her state of cancer over with now? The tumor got bigger it spread up into her upper colon, and cancer cells were found during the biopsy, and the surgery's now happening. She hasn't had a date set yet until meeting with other drs involved with the surgery.
I don't understand what else needs to be said.
We are now at the point where we know exactly what's going on with her.
Oh except for if she's ever fucked Matt apparently some creepers want to know that information.
I'll pass, thanks.