J wont suffer if he loses keiras, the 60 hours a week of professional dedicated care isn't required at all. His care plan is not extreme, on the basis of hours care he requires a day and the level of care, it's not that much different to the hours and level of care you would provide for his age group. In some ways it's easier. The 60 hours of care are wasted, the keiras wont have much to do on the shifts which is demonstrated when she says she's spent a few hours having a chat with the keira during their shift, shows them lying on the floor in her living room doing her appeal admin and also uses them to lie on the floor so she can measure for a new super king bed. If he required dedicated high level care they would be in his room throughout the shift. She said the other day he feeds for 3-6 hours (no idea how it can vary between 3 and 6), his feeds are free, she only does food shops if she is doing a ad usually its takeaway. Add up the weekly time spent food shopping, then prepping, cooking time and then the time it takes to feed a child of his age, 3 meals a day plus snacks and desserts. You're looking at a similar time scale plus more work and expense. Hence why she stopped doing the blended diet as it cost more and took up too much time. He doesn't vomit to the extent she claims as he remains in the same outfit all day and she admitted its once a day not 50 as she has claimed. His bedtime monitor shows he has approx 11 hours of physical sleep over night, barely any notifications showing a carer has had to tend to him and the movement notifications may just be his arms or legs moving in his sleep, not him being awake needing attention. Unless she has gave up with his toilet training as she hasn't had any adverts to do lately, he was using just 1 nappy a day when at home overnight. He is mobile, can communicate if he's in pain for instance tells her his tube site is sore, he is learning sentences not just words, he can use the phone to call multiple people he likes, he can use the iPad, he can get up and down the stairs. She has also cut lots of medication now in order to reduce the few minutes a day it takes to administer them. J doesn't need high levels of care nor 60 hours of keiras to do it. If she can't cope that's something she needs to talk to herself about. She is not working, he does to his nans and his dads, he also has 30 hours a week at school plus there is no school run, he has transport. The appeal is outrageous, she should be ashamed of appealing and dragging out the pretence. Whilst she does this other families miss out.
On that note, the car is Js isn't it, arent you allowed to be the driver of someone else's mobility car if the journey you are making benefits them? Are you allowed to use it for any journey and for your own benefit?Bet she's using his blue badge illegally to park in London too
Very good point, although I suppose she would argue its medical treatment blah blah blah. But definitely isn't supposed to be used for her benefit!
Depends on the child’s need but continuing healthcare funding is usually for waking nights because of high needs. I don’t expect carers to sit in the room. They sit next to door so they can hear and do visual obs, half hourly checks, pad changes etc as needed.
But being a student was your choice, we didn’t chose to have disabled children. It changes your whole life and nothing can prepare you for what comes with having a profoundly disabled child.
I bet they don’t exist