NickNackLou #11

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Imagine her directorial instructions: "Mr. G - film me eating, looking out at the big ball of joy, get a shot of the IV pole, and make sure to film me pain"
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I don’t understand why she doesn’t see that every time she goes away she ends up becoming unwell. She needs a reality check to see that her health is deteriorating and going on all these holidays “to go grab life” put ls so much pressure on her body.
If I was in her position I would be doing everything thing I could to help my body to avoid becoming unwell but Nicky’s mind just doesn’t think like this.
 
DaisyChainSpring said:
L has no tissue mets. N has only been referred now it is in her liver as she has been told no previously too.
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The majority of clinical trials for SBC require soft tissue mets in order to measure the effect of the treatment. Bone mets behave completely differently to tissue mets. Nicky lives in surrey so is also geographically closer to the Royal Marsden than Lizzie, who lives in the Northampton area. There is a serious postcode lottery when it comes to cancer care and access to the teams and hospitals that will go the extra mile and those that offer the bare minimum.
 
I had a friend who worked in clinical trials at a London hospital. They tend to be either Phase I, II or III for patients who have exhausted all conventional lines of treatment and the criteria is lengthy and precise. It was his job to sift through patient histories and finding an eligible candidate was often like finding a needle in a haystack and this was out of all patients with the same diagnosis, organ spread etc.
The trial treatments particularly in Phase I and II are not for the faint hearted. There are a lot of additional scans, blood tests, ECG's and weekly blood tests. Lives can revolve around the trial protocol. Doctors conducting the trials are interested in how well the new drug can be tolerated and there can be a lot of symptoms/side effects to report.
Getting on a trial when a patient is already suffering with existing cancer related issues is no walk in the park and often results in little gains for the patients, certainly in terms of quality of life.
 
I remember listening to Rachel, Deb and Lauren talking about trials and them saying people will often say ‘oh you can get in a trial’ but apparently it’s not that easy. Firstly Rachel said you have to do a lot of your own research and then try and get put forward for it, but as already said, the criteria is really strict and they are really hard to tolerate. As much as I dislike her behaviour its Very sad.
 
ellyjelly2 said:
I remember listening to Rachel, Deb and Lauren talking about trials and them saying people will often say ‘oh you can get in a trial’ but apparently it’s not that easy. Firstly Rachel said you have to do a lot of your own research and then try and get put forward for it, but as already said, the criteria is really strict and they are really hard to tolerate. As much as I dislike her behaviour its Very sad.
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I was just reading some of the comments in her latest post and I started to feel like a right witch. Like maybe I’m just a nasty grump. Because lots of people seem to love her very much. I just don’t get it!
And yes, it’s extremely sad because she’s very young, very sick, and going to die way before her time from it too.
I have to agree with you. Her behaviour is what I dislike so much and I can’t seem to look beyond that. I keep telling myself it might be the only way she can cope. But, bloody hell I do dislike her behaviour. But her condition and prognosis are heartbreaking.
 
coldestofspirits said:
A bit of detachment and self focus when dealing with major illness is one thing… but being so totally unmoved by literally all world events, no matter how significant, how tragic, how impactful for others… That is something else entirely and reveals far more about her than she probably realises. It’s abnormal to have zero interest in anything but oneself.
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Yes, I find this utterly bizarre. Not everyone has to be an expert social commentator, I don't think anyone is expecting that but there is absolutely zero acknowledgement of anything going on outside of the World of Nicky. On the lighter side - no mention of seeing the Barbie movie, or Oppenheimer, zero mention of the Women's World Cup final (even if you're not into footy it's a pretty huge thing!) and then there's the awful things in the news lately. Even small stuff, like books she's read (I know she probably hasn't!), magazine articles, blogs, other posts she finds interesting. Zero, zilch, zip.
 
FingerMouse said:
Yes, I find this utterly bizarre. Not everyone has to be an expert social commentator, I don't think anyone is expecting that but there is absolutely zero acknowledgement of anything going on outside of the World of Nicky. On the lighter side - no mention of seeing the Barbie movie, or Oppenheimer, zero mention of the Women's World Cup final (even if you're not into footy it's a pretty huge thing!) and then there's the awful things in the news lately. Even small stuff, like books she's read (I know she probably hasn't!), magazine articles, blogs, other posts she finds interesting. Zero, zilch, zip.
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I think she has a really boring dull empty life. Theres zero substance to her. She’s got nothing going on in her life whatsoever; no job, no hobbies, no interests, no real friends, nothing.
 
OH.FFS said:
I was just reading some of the comments in her latest post and I started to feel like a right witch. Like maybe I’m just a nasty grump. Because lots of people seem to love her very much. I just don’t get it!
And yes, it’s extremely sad because she’s very young, very sick, and going to die way before her time from it too.
I have to agree with you. Her behaviour is what I dislike so much and I can’t seem to look beyond that. I keep telling myself it might be the only way she can cope. But, bloody hell I do dislike her behaviour. But her condition and prognosis are heartbreaking.
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People do it for many shitnheads on those platforms. Don't try and smash your head against a wall trying to figure out why or how. It doesn't have one answer. It is somewhat cult like.
Let's remember people like Andrew tate.now even charged with rape,trafficking and assault still has his lovers commenting all over the place. Extreme example but show you.
Lots of them on there rhat behave grossly jave huge followings. They all follow similar psychological and emotional pawn play with their followers. Very good at mirroring what the "costomer" needs to see or be told.
But there are sooo many that also don't. Remember those that don't agree will likely either have unfollowed and ran far away from those types.or won't comment because there just isn't a point. Look how it changed though when a few stood tall,alot of people sprang up with frankly a well awaited for voice to fight back. Many many just no there is no point and I everyday world,down the shops a fair few will even no she exists.
She lives in an echo chamber,like they all do with the cult following. And manipulates accordingly.
It doesn't mean it right.
And it's nothing to feel bad over when you nonits wrong.
Sooo many studies,research and bodies are coming forward about the dangers of sm.about rhe dangers and horrific behaviour of these folk. But you are going to see them in the vacuum of their pages. And it's a very easy controllable narrative.
And that's what makes it so dangerous and easy for them.
But they are wrong. And many know it.
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OH.FFS said:
I was just reading some of the comments in her latest post and I started to feel like a right witch. Like maybe I’m just a nasty grump. Because lots of people seem to love her very much. I just don’t get it!
And yes, it’s extremely sad because she’s very young, very sick, and going to die way before her time from it too.
I have to agree with you. Her behaviour is what I dislike so much and I can’t seem to look beyond that. I keep telling myself it might be the only way she can cope. But, bloody hell I do dislike her behaviour. But her condition and prognosis are heartbreaking.
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Don't feel like that.
It's also how she gets people.theu begin with a niggle. And her very mo that you can't possibly question a sick person.
Sick people do sick things.many use it for their advantage. That doesn't make it right. Or acceptable.
And there are really really tit people with xancer. We just don't hear of them. We aren't going to hear about the sad loss of gavin the rapist. Or leanne the abuser. Or Tom who killed someone. Or mel who was a narcissistic witch down the road. No we hear about the lovely people who are lost to it. But cancer doesn't pick and choose like that.
And I use extreme example here to make a point. But she isn't a good person if she can do this I'm sorry it just can't equate to being OK because your young with a horrific illness. We all acknowledge that. And we all have a huge amount of empathy for the suffering it brings. But it doesn't mean you need to feel bad for someone who exploits that. It indeed makes it worse she would use something so horrible for gains.
 
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katesbess said:
People do it for many shitnheads on those platforms. Don't try and smash your head against a wall trying to figure out why or how. It doesn't have one answer. It is somewhat cult like.
Let's remember people like Andrew tate.now even charged with rape,trafficking and assault still has his lovers commenting all over the place. Extreme example but show you.
Lots of them on there rhat behave grossly jave huge followings. They all follow similar psychological and emotional pawn play with their followers. Very good at mirroring what the "costomer" needs to see or be told.
But there are sooo many that also don't. Remember those that don't agree will likely either have unfollowed and ran far away from those types.or won't comment because there just isn't a point. Look how it changed though when a few stood tall,alot of people sprang up with frankly a well awaited for voice to fight back. Many many just no there is no point and I everyday world,down the shops a fair few will even no she exists.
She lives in an echo chamber,like they all do with the cult following. And manipulates accordingly.
It doesn't mean it right.
And it's nothing to feel bad over when you nonits wrong.
Sooo many studies,research and bodies are coming forward about the dangers of sm.about rhe dangers and horrific behaviour of these folk. But you are going to see them in the vacuum of their pages. And it's a very easy controllable narrative.
And that's what makes it so dangerous and easy for them.
But they are wrong. And many know it.
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Don't feel like that.
It's also how she gets people.theu begin with a niggle. And her very mo that you can't possibly question a sick person.
Sick people do sick things.many use it for their advantage. That doesn't make it right. Or acceptable.
And there are really really tit people with xancer. We just don't hear of them. We aren't going to hear about the sad loss of gavin the rapist. Or leanne the abuser. Or Tom who killed someone. Or mel who was a narcissistic witch down the road. No we hear about the lovely people who are lost to it. But cancer doesn't pick and choose like that.
And I use extreme example here to make a point. But she isn't a good person if she can do this I'm sorry it just can't equate to being OK because your young with a horrific illness. We all acknowledge that. And we all have a huge amount of empathy for the suffering it brings. But it doesn't mean you need to feel bad for someone who exploits that. It indeed makes it worse she would use something so horrible for gains.
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I think that you're actually pretty empathetic for a 'narcissistic witch down the road', Kate. Your insights are wise. Plus I suppose you could say that we're all witches on here, but witches with heart at least, unlike NNL. I still think she fits the criteria for being a sociopath.
 
ginnyw said:
I think that you're actually pretty empathetic for a 'narcissistic witch down the road', Kate. Your insights are wise. Plus I suppose you could say that we're all witches on here, but witches with heart at least, unlike NNL. I still think she fits the criteria for being a sociopath.
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I honestly think most on here just call bullshit when we see it, we ask questions, we don’t automatically believe the narrative being pushed. We know it’s all false and we see the crappy behaviour. Sadly it is a cult so the only place you can talk about them are sites like tattle. You will not always agree with each other but at least you can voice your opinion without getting set upon by a flick of rabid sheep! The family vloggers exploiting their kids, the cancer influencers using their illness for greed, the z listers selling lies, the lists go on. You would think youre a proper negative Nancy if it wasn’t for gossip sites. There are some really good influencers out there but they are few and far between.
 
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