BB situation was different, she paid for her care or had it paid for. I feel for rich, he's been messed about but tbh 99% of people accessing the NHS will currently receive terrible care. I say that as someone working within the system.
The problem rich has is that he's on 2 pathways, nhs and private. With the best will in the world this can lead to conflicts. Most consultants I've ever worked with or come across have egos the size of planets. Having different consultants will lead to different opinions and rich now finds himself in a horrible situation where he wants to throw money at the issue but also wants his treatment to be free on the NHS. He needs to pick a lane, because going from private to NHS is only going to lead to more noise and confusion. Its confusing for his followers too. If he's got money, and we know he has a substantial amount donated in the gonfundme, the he should use it for his care and get the pet scan. The NHS will not be able to offer him the same standard and speed of care private can, and as he's loaded he should press on ahead with the private consultant he saw yesterday who seems to be giving him answers. Unless of course he doesn't want to spend his own money, and if not why not? Why fundraise? He really is an anomaly.
It shouldn't have to be like this. The NHS should be able to cope. His oncologist should have more empathy, he sounds awful. People who have adhd aren't the only ones who want and need direct answers, everyone does. His oncologist shouldn't change the way he communicates so people with adhd are treated better, he needs to change so every patient he sees is treated better.
In both my experiences of loved ones with cancer, once it was deemed Stage 4 they were basically discharged on morphine and left to die, never saw an Oncologist again, certainly no treatment options. I think sadly unless you are the type to fight tooth and nail for your life, the NHS won't do it for you, even though they should.
