Give me Strength
VIP Member
this And don’t forget Harley also went to Tanzania. Not a hope in hell anyone with hEDS would be able for that. It’s just not possible. But I suppose if you have enough money to pay for private diagnosis for all your children…….Harley has hEds it's a extremely hard diagnosis to get in Ireland as Ehlers danlos syndrome isn't something that is really know about here. My sister's little boy has it he also has autism and an Arnold chiari 1 malformation. He certainly wouldnt be able to take a 9 hour flight nor spend hours walking around Disney and shopping malls. He's lucky most days to be able to get out the door to school. I think now lenore is like Sarah burke Munchausen syndrome by proxy.
Sorry to hear about your nephew. It must be so hard for your sister. And then to see this lunatic claiming Harley has hEDS