@alwaysdreaming just wanted to send you love and hugs, am sorry what you're going through, I've never heard of IP before, thought I'd post in here as this thread is quiet and tbh am abit fed up of real housewives at the mo!
Awww thank you.
Your so sweet. You made me cry & smile. I wish I knew people like you in real life.
Don’t be sorry honestly I am in a privilege position. Many have it worst off.
IP ( Incontentia Pigminti) is a rare genetic disorder that affects, eyes, teeth, hair, skin, brain. It’s lethal in males so many don’t survive. Only 1200 people are known to have it in the world.
My daughter has had to be put down to sleep twice before she was 16 months to laser her eye. Thankfully only one eye needed treatment and it was minimal.
It’s her teeth that concerns me as her peers seem to all have double or more. Luckily she will be seen early
October.
I guess we won’t know what will occur as she grows and is able to communicate.
Thankfully she is not affected in the brain. The rest are fixable.
She is under great care and if we have to spend money on her so she has a normal childhood we will and luckily we can.
Thank you again for checking up on me I feel so touched.
How are things with you ? How’s your little doggy?
Yes I can understand why you’re fed up with Hw think social media ruined it.I need to watch a new series but I plan to do it after my baby boy is born in the early hours. What are you watching now?
though I find it strange just having the one, but we tried a pup with him ( even though he was brought up with 2 dogs) he really disliked him, so we had to rehome pup, that was a hard decision.